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Borderline ovarian cyst

jackban
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Hi everyone I'm 57 and just been diagnosed with borderline ovarian cyst. What a shock!,wasn't expecting that. In March I noticed my stomach was bloated and large but thought it was due to the constipation I was suffering from.after phoning doctors as they were not seeing patients I had consultation with doctor over phone. Was given lactulose to help with the constipation and sent for bloods. Ca125 came back as normal but things didn't get better. More phone consultations with doctors given fybrogel nothing was working and I had a pain on my left side which then moved to the right. In may I telephoned Doctor again and asked if they were seeing patients as I definitely needed someone to take a look at my stomach doctor eventually said he would but would be sending me for a scan anyway. It was decided that I would be better just going to the scan. I paid private for the scan and was told I had a large 25cm multicystic ovarian cyst.i was fast tracked through the nhs as couldn't go private as all private had gone across to nhs. Lots of stressful phone calls at a time when I could have done without it. Had gynaecology appointment then mri. Results borderline ovarian cyst. Needs removing asap am now waiting for a date as with the coronavirus everything is slower. Feel let down and as if healthcare is only bothered about the virus. But resigned to just waiting for my op
 

 

  • Offline in reply to sarahar

    Thank you for your reply and I am glad to hear you are doing well post op. 

    I feel very confused as to what a borderline tumour is..in everything I am reading it states that the prognosis is good...I am cliniging to this. 

  • Offline in reply to nicholala

    Hi Nichola 

    I totally understand how your feeling! I was the exact same. So worried non stop googling reading, trying to find out what a boarderline tumour even is! But please be assured non of that constant reading helped me at all!! I used the Ovacome website that was the best site for me and this forum. To my knowledge now a boarderline tumour is a tumour of malignancy so their could be changes that eventually could turn cancerous. These are classed as boarderline. I had to wait to have it removed for the consultant to be 100 percent sure. It needed to be sent for biopsy, this wasnt done for me until after my total hysterectomy. As youve already had your biopsy sent of they will be able to advise you of the best treatment when you have surgery, like what needs to be removed. I had everything as i wasnt sure what it was and didnt want to wake up to be told i need more surgery. I am now due to see my consultant in April for a check up but was informed the chances of a reappearance are low.  I understand your worry but a lady on here told me deal with it as it comes right now you dont know what it is until then live your life!! Honeslty them words were the best thing i heard and listened too. I eventually started to think positive and realise im stronger than i think. If you need to ask me anything honestly feel free or need to talk just private message me. Good luck with everything xxxx sara xxx

  • Offline in reply to sarahar

    Hi 

    2 years ago I was diagnosed with endometriosis 5 weeks ago I had a cystectomy yesterday I was told I now need more surgery as the cyst is boarderline, this has come as a bit of a shock I was not expecting more surgery as due to other health conditions I'm only just recovering from last surgery 

     

    I just kind of wanted everyone's opinion, the doctor is not keen on doing full hysterectomy due to me only been 38 he wants to just remove ovaries and tubes but I think id be happier with hysterectomy at least then id know there'd be no more surgeries, so is it better to just have ovaries an tubes removed or to have hysterectomy?? 
    bare in mind there's no way of me wanting or having more children and I don't want to live till I'm 90 

     

    thanks 

  • Offline in reply to sarah-1985

    Hi Sarah 

    really sorry I’ve just seen this. Hope your doing ok, if you still need to chat you can message me. 
    take care 

  • Offline

    Just adding this here mostly as a place to vent, but perhaps help someone in a similar situation down the line.

    My wife (33) has been diagnosed with a large Ovarian syst, predominantly on her left side, but stretching across her front - The gynecologist that we saw said it was approximately 24x11x14 in size based on the CT scans that we got from A&E (My wife was in notable pain which we initially chalked up to her pilates! We weren't sure if we were overeacting by going to A&E instead of waiting for an appointment at first and it was a hellish 8 hour wait, but it was the right thing to do I think).

    We're now due a consultation with a Gyno/Oncologist to discuss surgery, they're hoping that the surgery will follow in the next few weeks (And obviously we want that as soon as possible).

    We were trying to conceive but obviously her longterm health is paramount - Both very blue over the prospect that we won't have children if they need to remove both ovaries or more, but frankly far more worried about a cancer diagnosis, or the possibility that this will be a longterm or recurring health worry.

    I'll update after we have more information.

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