Borderline ovarian cyst

Hi everyone I'm 57 and just been diagnosed with borderline ovarian cyst. What a shock!,wasn't expecting that. In March I noticed my stomach was bloated and large but thought it was due to the constipation I was suffering from.after phoning doctors as they were not seeing patients I had consultation with doctor over phone. Was given lactulose to help with the constipation and sent for bloods. Ca125 came back as normal but things didn't get better. More phone consultations with doctors given fybrogel nothing was working and I had a pain on my left side which then moved to the right. In may I telephoned Doctor again and asked if they were seeing patients as I definitely needed someone to take a look at my stomach doctor eventually said he would but would be sending me for a scan anyway. It was decided that I would be better just going to the scan. I paid private for the scan and was told I had a large 25cm multicystic ovarian cyst.i was fast tracked through the nhs as couldn't go private as all private had gone across to nhs. Lots of stressful phone calls at a time when I could have done without it. Had gynaecology appointment then mri. Results borderline ovarian cyst. Needs removing asap am now waiting for a date as with the coronavirus everything is slower. Feel let down and as if healthcare is only bothered about the virus. But resigned to just waiting for my op
 

 

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  • Hi, not sure if you've had your surgery yet?  I've just had a borderline ovarian cyst removed 4 weeks ago. It was 30cm diameter by the time it was removed (22cm when I had my MRI). Covid issues have made it much harder but I got there in the end. Hope your surgery went well

  • Thank you for replying. I had my surgery on the 17 July. I am surprised how well I felt afterwards. I'm not back at work yet but hope to return by the end of this month. My cyst came back as borderline and it burst when they were removing it. I have to be checked in 3 months then every 6 months for 5 years but it's not cancer and that's the main thing. Hopefully you will get a good result and I wish you a speedy 

  • Hi Jackban 

    hooe your recovery is going well and your starting to feel healthy  again. Xx 

    just wanted to update you on my journey and ask you some advice . I have my surgery date now and have agreed to a full hysterectomy just incase the boarderline tumour returns. What im confused about is the consultant said when he does these surgeries if he finds signs of cancer he needs permission to remove it he said something about nodes but he also said if the cancer has spread to the bowel he would cut it away but could mean i would need a stoma bag if it couldnt be rejoined, he did say this is very rare and most likely wouldnt be the case but they need to inform patients of this. This absolutely frightened me as the thought of suregery is scary enough did you get informed of this ?? He said everyone having this kind of surgery is informed of this im just really confused and upset ive just got my head round having a full hysterectomy and now im panicking i may need even bigger surgery. 
    your advice would be greatly appreciated as im very worried and upset xxxx 

    thank you in advance xx 

  • Hi

     

    Yes it's normal for them to ask your permission. It was the same for me for both ops. They will look at the lymph nodes to see if there is anything there this is important as this is the way it can s-read through your lymphatic system I think. Everyone is told the risk they have to when performing surgery but they are very low. I'm sure you will be fine but you have to think if it has spread and they need to do these things is it not better for them to do them and be cancer free.when is your surgery date? I had open surgery and to be honest it was no way as bad as I expected and my recovery was good. Try not to worry too much. Message me whenever. Sending big hugs  

  • Thankyou so much for replying to me you are truly a kind hearted caring lady, your going thru your own health battles and you still reply to other people to help them and ease there minds. I am so happy your surgery is going well and your feeling better amazing news xxxx thats a relief as i was very worried why they was asking me to do this, did you save your bowels on both operations? Im bery worried and scared but i totally understand i need to do what's necessary to save my life. My operation is booked for the beginning of December not had confirmation date yet but consultant said he will get me in then. I never asked what surgery you have for a hysterectomy, do you know ? Sorry to be a pain asking i feel like when i speak to anyone i am so emotional as i take medication for anxiety and can be very panicked, i dont ask what i need too ‍♀️ 
    thankyou for been a supportive member of this chat and always updating as you never hear half the outcomes on here. XXXX

  • Hi

     

    because my tumour was in the ovary and so big 27cm I had to have a laparotomy which is open surgery. You will probably have laparoscopic which is what I've just had for the kidney cancer. You will be fine it's hard when you've never been through anything like this so don't worry about asking questions I'm happy to try help where I can. 

  • Thankyou So much for getting back to me. You dont know how much your messages have put my mind at ease. I have started  to calm down now and honestly its because of your messages as i know youve been in my position and your sharing your experiences. Thankyou xx I will keep you updated and keep you in my prayers xxxxx 

  • Hi Jackban 

    Just wanted to update you on my surgery I will

    be going in on monday now.

    Im very nervous but least i will be getting it over with. Im worried they will wake me up to bad news its so frightening. I know i need to hope for the best and think positive thankyou for all your help and advise it means so much xxxxx 

  • Hi

     

    thats great news that you are having it done next Monday. I'm sure it won't be as bad as you think it will be. The way I try to get through these things are to think by next Tuesday you will be on your way to recovery.try not to worry about the op and focus on getting better and being cancer free. I'll be thinking of you on Monday and let me know when you can how everything goes for you . Sending big hugs  

  • Thanks so much jackban you are a lovely person and always give great advice x I will definitely keep you updated on my surgery hopefully everything will be ok. Hope your recovery is going well  big hugs to you also xxxxx

  • I am in the same position- started to feel really bloated in September, all GP test were normal. I asked for a scan and was told that would take 3-6 months on the NHS, so I had a private ultrasound that showed a large mass from my right ovary to upper abdomen. I only found out when I asked for a private referral letter that bilateral dermoid cysts were detected on a scan I had in October 2020 when I had extreme pain on the left side - which was put done as a suspect kidney stone that had passed, not the radiology department or the GP told me I had these big cysts 5x5 and 6x8 in 2020, I feel totally let down by the health service! I have since had MRI and CT scan which shows a football sized suspicious ovarian cyst from my right ovary, I am due to have a full hysterectomy and removal of the cysts on the 9 December. They did all the same warning with me. If this wasn't enough to deal with and process, I also lost my mum on 11 November and her funeral is the same day as my surgery. I'm so upset about it all. 

  • So sorry to hear you are going through all this.are you going private for the op? Ask if they will rearrange the op so you can go to the funeral it's important that you are able to say your goodbyes and grieve. Try not to worry about the op it's not as bad as you are probably imagining it to be. Sending positive thoughts and big hugs xx

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  • So sorry to hear you are going through all this.are you going private for the op? Ask if they will rearrange the op so you can go to the funeral it's important that you are able to say your goodbyes and grieve. Try not to worry about the op it's not as bad as you are probably imagining it to be. Sending positive thoughts and big hugs xx

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