Borderline ovarian cyst

Hi everyone I'm 57 and just been diagnosed with borderline ovarian cyst. What a shock!,wasn't expecting that. In March I noticed my stomach was bloated and large but thought it was due to the constipation I was suffering from.after phoning doctors as they were not seeing patients I had consultation with doctor over phone. Was given lactulose to help with the constipation and sent for bloods. Ca125 came back as normal but things didn't get better. More phone consultations with doctors given fybrogel nothing was working and I had a pain on my left side which then moved to the right. In may I telephoned Doctor again and asked if they were seeing patients as I definitely needed someone to take a look at my stomach doctor eventually said he would but would be sending me for a scan anyway. It was decided that I would be better just going to the scan. I paid private for the scan and was told I had a large 25cm multicystic ovarian cyst.i was fast tracked through the nhs as couldn't go private as all private had gone across to nhs. Lots of stressful phone calls at a time when I could have done without it. Had gynaecology appointment then mri. Results borderline ovarian cyst. Needs removing asap am now waiting for a date as with the coronavirus everything is slower. Feel let down and as if healthcare is only bothered about the virus. But resigned to just waiting for my op
 

 

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  • Hi, not sure if you've had your surgery yet?  I've just had a borderline ovarian cyst removed 4 weeks ago. It was 30cm diameter by the time it was removed (22cm when I had my MRI). Covid issues have made it much harder but I got there in the end. Hope your surgery went well

  • Thank you for replying. I had my surgery on the 17 July. I am surprised how well I felt afterwards. I'm not back at work yet but hope to return by the end of this month. My cyst came back as borderline and it burst when they were removing it. I have to be checked in 3 months then every 6 months for 5 years but it's not cancer and that's the main thing. Hopefully you will get a good result and I wish you a speedy 

  • Hi so sorry you are feeling like this. It's very hard to stay positive at the moment with COVID being the main priority in the world at the moment. I had my surgery on the 17/7/20 and all went well. When I looked on my doctors notes it said my cyst was mucinous and serous confusing as when you research they always say one or the other not both together. Like you I was told mine was not cancer but borderline. I looked on ovacome website they were very good and also during the day you can do chat with them. They offered to research this for me but I should be having a follow up with gynaecologist very soon so will ask him. I think if you have a mucinous one they need to check that it hasn't stemmed from your appendix and maybe that's why they are looking that was my concern that my appendix was not removed so will be asking about that when I see them. Try stay positive I know it's hard and I too went to a dark place for a short time. But I decided that I couldn't change what was happening so I had a choice to go in to the depths of dispair or take each day as it comes and not worry about the what ifs as they may never be and I would be wasting my life worrying. Hard I know but a positive mindset is the best way of coping with bad news. Always available if you want to chat it helps to talk to someone who had been through it. I've just returned to work this week and I'm trying to put all this in the past.

  • Thnak you so much,  that's really helpful.  I spoke to my GP yesterday which made me feel a bit better.  Because she is medically trained but to her own admission is no expert on borderline tumors, she was able to interpret the jargon for me. She told me that the lab scientists had identified some irregular cells under the microscope when they examined by cyst which were completely enclosed within the ovary but they couldn't determine whether they were dermoid (the type with the teeth and hair - eek!), serous or mucinous.  They therefore wanted to do another CT scan to check my appendix, bowel and abdomen.   So far they haven't detected anything outside of the ovary but they want to re-examine before deciding on a course of action. 

    I've decided to be as positive as possible about it and to take each day as it comes.  I've also now been given some HRT (on advice that the benefits outweigh the risks) so should start to feel better from that. Thanks for the heads up about ovacare. I will give them a call x

  • Thanks for responding so quickly [@annie_louise]‍.  It's my first time on a forum so I've only just seen you responded.

     

    My surgery for my cyst is booked in for 26th November and I've now found out I have to have my right ovary, tube and cyst removed.  They also discovered after my MRI scan that I have a cyst on my left ovary but it is only 18mm so my consultant is going to look at it during the op and decide whether to remove it or just leave it alone.  

     

    Your message about recovery etc. really did put my mind at rest.  How are you feeling now?  I hope you are continuing to recover well x

  • Hi [@jackban]‍, thank you for responding to my message, I'm afraid I'd not seen it until now.  How's work going for you?

     

    I've found out i need my cyst removed, plus my right ovary and tube and that's scheduled for 26th November.  I only hope it's not cancelled or any later and it pushes my recovery into Christmas.

     

    I hope you continue to recover well x

  • Hi, I am doing okay... its 12 weeks today since my surgery and I'm so much better thank you. It sounds like you are having almost identical to me. You havent got long to wait now... you will be so glad when its done! Let me know how it goes x

  • Hi Jackban,

    Hoping you are all OK. I am scheduled to have exactly the same operation (i.e absolutley everything out) in January. I am 59. I teach 2 days a week, am a carer for my 25 year ol daughter the rest of the time (shes bed bound) and I tutor at home a bit as well.  I know we all heal at different speeds and my consultant has said I will be signed off work for at least 8 weeks. I gather lifting my daughter will not be viable for a while and am trying to organise someone to come in everyday to help bath her (my husband can help with other things). But I would really love to know when you were able to sit at a desk and work for an hour, i.e. when will I be able to tutor? Can you remember when you were able to do that? I would realy appreciate some guidance. Thank you.

  • Hi

    hope you are well. You will be fine with the surgery. I know it's daunting I was scared worried etc, but I was surprised how well I felt after. I had 3 months off work as didn't need to rush back as I got full pay from my employer. If you work from home doing your tutoring I, sure even after a couple of weeks post op you would probably d ok. Good luck with the op xx

  • Thank you so much - that is really reassuring. Fingers crossed, all will go well.

  • Hi 

     

    I had the same operation as Jackban 10 days ago to remove a 35cm cyst. The main pain was due to trapped wind and my bowel objecting to the surgery. My pain is very manageable- I took a single codeine at night to help me sleep for the first few days home from hospital and occasional paracetamol. I'm feeling far better than before my surgery. I've been signed off work for at least eight weeks as my job is quite active. I get tired and need more rest.  I'm sure that after a couple of weeks post op it would be fine to spend an hour tutoring. It's very frustrating not being able to do things.  

  • Thank you - that's good to know. Keep safe and take care

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