ET and not taking Hydrauxeria

I am 58 and was diagnosed with ET 5 years ago after a routine blood test my count os presently approx 700. But for the diagnosis i feel well though have cardiovascular disease and take asprin,  statins and blood pressure meds. I run 5k twice per week, go the gym and am generally very active. I was asked by my consultant to take Hydrauxeria. But i read about the side affects and chose not to as i felt fine. My Consultant sees me reguarly to check my count, my condition and to see if i will change my mind. She says that at this moment she will not make me take it. But she says that once I'm 60 she will be less tolerant and will insist. Is anyone else not taking the medocation, and what is the prognosis for someone who doesn't take it, dedpite how active they are?

  • Hello Mikey1962

    We've a number of members here on the forum who are living with ET and hopefully one of them may see your post and share their experiences with you. 

    You might find that if you post on this active thread that you're more likely to connect with other members and get a response to your specific questions. 

    It might also be worth getting in touch with Blood Cancer UK. They also have an online community and nurse contact number but as a specific blood cancer charity you may find more people with experience of living with ET that you can connect with. 

    If you'd like to talk to one of our nurses about your concerns then you're most welcome to call them. They're available Monday to Friday 9am to 5pm on 0808 800 4040. 

    Best wishes, 
    Jenn
    Cancer Chat moderator