Hi Darryl, 

I'm so sorry to hear the loss of your wife. I had to read it a few times as can't believe what she all went through, seems so unfair. I can't imagine what you are going through, I can only relate to loosing my dad all of a sudden at the age of 60. He lives in South Africa so I was lucky to see him before he went. 

This virus has made it so tough on all of us, esp when you loose a loved one. Have you got family and friends to talk to. I know when you chat to people they just want to make it all better, something I've found with my cancer diagnosis. In the end you feel like u comforting them as they can't handle the brutal honesty. You need someone who you can talk to and just listen without trying to make it better. You'll go through all sorts of thoughts and emotions as I'm sure you are aware already. 

It just seems so unfair how she was treated at the hospital. Have you started an enquiry? Seems like there is a lot of unanswered questions. 

It may be too early but have you chatted to anyone from macmillan cancer support? 

Maybe someone else who has lost a loved one recently will reply.

My heart goes out to you at this difficult times. 

Big hugs xx

Hi mich8                                                                               Thank you for your reply still crying as I write this . What you say is very true no one can truly understand what you   go through I'm constantly looking for her . I took her to hospital with slight breathing problem we chatted all the way in the car nothing seemed to bad to worry about . She went into a. e they wouldn't let me in so waited in car park . An hour half later I phoned hospital they told me she was being moved to a ward with chest infection and she be kept in for two days . They told me go back home and get her over night bag which I did by the time I got back at 6 30 she was dead . The only thing I no is they didn't try to resuscitate her I don't no why as yet . Iv has a call from palls who say the meeting should be within the next to weeks iv lots of questions written down and this adds to the unbelievable pain 24/7!. I do have  a son staying with me and my daughter pops round . I really do hope everything goes ok with your diagnosis it's an evil word with so much suffering.           Darryl xx

Hi ceyenne                                                                           The cause of death is neutropenia sepsis wich is a result of chemotherapy my poor wife only had one chemotherapy. We were never given any information regarding sepsis we knew about infection but were told nothing to look out for . I went to every clinic with her she had picc insertion on 23/3 chemotherapy on 24/3 she had call from consultant on 30/3 asking her to suspend her treatment till end of may which she declined as she had watited long enough already . I'm appalled by the whole treatment she had no information not even a follow up call asking about her well being . Every day is a nightmare I should get my meeting with the hospital within two weeks                                                                 Thank you and take care    Darryl x

Dear Darryl, 

So sorry for your continuied loss. 

Did your wife get a card with the number of the chemotherapy unit on it when she started her treatment? My consultant warned me very strongly to come into the hospital if my temperature went higher than 37.5. I've not been neutropenic but have had to call the ambulance twice during treatment as a result of bad reactions to hormonal/bone therapies. Your wife really should have been warned about temperature changes (above 37.5 or below 35). My own symptoms could have been neutropenic rather than a reaction but how would I have known? That's why it's vital to call the ambulance.

I'm so sorry you have been so unlucky. Have you or your legal team accessed your wife's medical records?

Ceyenne

Hi ceyenne.                                                                         All my wife got was a folder with her appointments on it .as they wouldn't let me in to the hospital I don't no what they would have told her but I'm sure if she new what to look out for she would have been doing the checks .she was due to be at the hospital at 8 15 on the day she died for blood test then ready for following Tuesday for her second chemotherapy. This appointment was cancelled by hospital and they sent a nurse to our house around 11oclock to take her blood so I guess whith out Covid virus she would been there around seven hours earlier.i did to get her medical records I sent them all the five documents they asked for but they said I still can't see them so yes I have got legal team taking over for me . Her death was so avoidable that day it makes the pain even worse . It now been eight weeks and they still make me wait to find out what happened in them last three hours  every day is a struggle to get through                     Darryl x

Dear Darryl, 

It seems very strange they didn't try to resuscitate your wife and there are too many unanswered questions. Chemotherapy can be dangerous and Covid has made hospitals insular. If sepsis occurs with chemotherapy, antibiotic drugs have to be administered within one hour of the patient presenting to A&E or on a ward with symptoms. Did this not happen? The antibiotics by IV act as an antidote. 

At least you have a legal team on your side. I can only give you prompts but I'm not a doctor and it's so hard because you weren't there. 

I am so sorry for your loss and hope you get at least some answers from PALS. Don't give up. I take it that you will be meeting with your wife's medical team?

Do take care and let us know what happens. 

Ceyenne

Hi ceyenne                                                                              Yes there are two many unanswered questions we just found out that we can meet the team at a&e in 21 days only via zoom . So the daily pain goes on I will let you no the out come as soon as we speak to them . I have spoke to her consultant who told me he never tells any patient to take there temperature he only tells them if they feel unwell go to hospital which I find a bit strange I be in touch                  Darryl x

So sorry to hear about your loss, its so shocking this cancer and quick too, my younger sister has been diagnosed with bowel cancer and its horrific, we still can't get our heads together she is terminal and I don't know how long she has, my heart goes out to you and your family x

Hi                                                                                           I am truly sorry to hear about your sister it is allfull thing cancer it does hit you very quick. I kind of no what your going through as iv lost four people in my family in the last 12 months my sister was terminal and she lasted 9 months . Nothing I say can change how you and your family are feeling your life's will change forever give your sister big hugs and kisses I am so sorry for all of you.      Darryl x