My sarcoma isn’t on the list

I as of recently in 2020, during The covid-19 lockdown, got diagnosed with a 'Soft-tissue-sarcoma-cancer'. But it's name isn't on the list for cancers, on here or on the booklet that I got given by my hospital.

THE LIST: 

leiomyosarcoma 

liposarcoma

fibroblastic sarcoma

rhabdomyosarcoma

soft tissue Ewing’s sarcoma

synovial sarcoma

vascular sarcomas (angiosarcoma)

kaposi’s sarcoma

nerve sheath tumour

 

MY SARCOMAS NAME: fibromyxiod sarcoma. 
I also got told that my tumour would be used for helping testing to help future people being diagnosed with it. 
 

  • Hi Jiro2hiro and welcome to the forum.

    I'm sorry that you're struggling to find information about your type of sarcoma. It can be difficult when it's a rare type, which yours seems to be, but Sarcoma UK may be able to help. If you'd like to get in touch with them you can find out how by clicking here.

    I hope this helps and you're able to find out more soon.

    Kind regards,

    Steph, Cancer Chat Moderator