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Hi - diagnosed with JAK-2positive Essential Thrombocythaemia

sueliz
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Hi I have just been diagnosed with JAK-2positive essential  thrombocythaemia. I am on Hydroxycarbamide, 500 mg daily, and my platelet levels are coming down. I had a phone comsultation with my consultant 2 weeks ago  and he is happy with my blood counts. The nurse came to my house to take bloods. I will see the consultant  again in 3 months.

I have had a letter from the hospital telling me to shield for 12 weeks which I am doing.

Thank heavens for online deliveries,  as I live on my own since my husband died of cancer.

Have read lots of posts  on here, and have to say feeling really positive.Thank you everyone.

The side effects I get are a wheezing  chest, but apart from that touch wood everything  ok.

  • Hi Sueliz and welcome to Cancer Chat.

    I'm sorry about your diagnosis but I'm glad that your platelets are starting to come down.

    I'm also glad that the posts you've come across on the forum so far have had a positive impact. I'm sure some of our members will introduce themselves to you soon but if you would like to join in on this on-going discussion about E.T just click on the pink reply button at the bottom of a member's post.Our cancer nurses are also available for a chat on 0808 800 4040, Monday - Friday between 9a.m - 5p.m so do give them a call if you have any questions about your diagnosis.

    Stay safe and remember; our community are here to support you on this journey.

    Kind regards,

    Steph, Cancer Chat Moderator

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