My experience of cold cap.

I have been having cold cap treatment during my chemo and found it an absolute doddle . The horror stories you read about did not apply to me in any shape or form . I took paracetamol before I went in to the hospital and every 3/4hours during treatment, the nurse fitted me with the cap which was always quite fun as they never seem to fit the way you expect them to and the nurses all have a pull and tug to get it to fit tightly.  They switch it on and for 5-minutes your head feels a bit like minor nettle rash as it cools down the second 5-minutes is less sensitive and after that you can't feel a thing. One thing that I did try was to take paracetamol and ibuprofen  then half an hour later I wet my hair and then put a large bag of frozen peas on my head... No Laughing !!.I held these down onto my head with a scarf tied under my chin...very glamorous as you can imagine.  I kept these on for 15 mins by which time my scalp was quite numb and it gave me a good indication of how I would feel when the cap was fitted. Obviously the hospital cap is colder than a bag of  peas but the effect is similar. I have now had 4 treatments out of 6 and although my hair has thinned down by about 20% it looks perfectly fine.  Some tips....take a small soft piece I'd fabric to tuck into chin strap as it can be quite tight. Tightness is the key to it working , . .wash hair as rarely as possible ( ideally once a week ) but main thing is don't use hot water ! As cool as you can stand with your normal shampoo and conditioner and treat your hair gently. No heated tongues or rollers. I will probably have mine cut shorter after all treatment has finished but keeping my hair has been the best thing and a real bonus. Good luck to everyone thinking of trying it.  

  • Glad to hear you've held on to your hair. It must be a relief.
     

    I didn't opt for cold cap. I was told that the four drugs I have for treatment would mean I only had a very small chance of keeping my some of my hair which was long and a pain to style. So I'd prepared myself for having none. I've enjoyed wearing scarves in different ways, and turbans. I als have two fabulous wigs which I used when going out, before lockdown. I've had a rough time with chemo side effects, which last two weeks before I start to feel better. Not having to wash my hair and style it has been good for me, and I'm glad I didn't try to hold on to mine. I've decided I will keep my hair in a short pixie cut style when it grows back. No more styling of long hair. I'll keep my wigs to wear when I fancy a change :)