HPV positive and Low grade dyskaryosis

Hello I received my smear result back this weekend and it said I have HPV positive and low grade dyskaryosis. I am so scared, I have always kept up tp date with my smears and they have always been clear. I have been with my husband for 13 years. I have been referred for a colposcopy. Please can anyone give me so advice about what this means. I am not sleeping, I cant face food and I cant stop crying. I have 2 children and the thought of what this could mean terrifies me. How do I get rid of HPV? I havent had any irregular bleeding and nothing has been picked up im previous smears why am I testing positive for HPV now when iv been married to the same person for 13 years. Please if anyone could help or maybe tell me your story. 

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  • Hi

    I'm not a nurse but I've had HPV and had two colposcopys and since had a normal smear and low grade changes.

    It does not mean cancer. It's simply that the cells have changed and they treat the area before the area has a chance to change to cancer - which I understand takes years.

    Please don't worry. I have smears every 6 months just to keep an eye on things.

    The body usually rids itself of HPV. I take folic acid and b12 supplements which are supposed to help.

  • Hello

     

    Thank you so much for replying to me. Did you have to have the cells removed or did they just go back to normal. Has your HPV now gone? 

    I am B12 deficient so have injections every six weeks and I have started taking ferreglobin capsules, immunace and vitimin C to try and boost my immuse system to get rid of the HPV. 

  • They only treat the cells if they are CIN 2 or CIN 3 as CIN 1 typically go away on their own. They do take most of them away when they take a biopsy though. I was the same, had a bad feeling and wouldnt listen to people when they were telling me it would be ok and it was common. My anxiety wouldnt let me believe them. They asked me if I had been under any stress as this can cause your immune system to allow HPV to become active in your body and cells to change. I had been under immense stress as I lost my dad and brother and my mum had cancer. I think all the stress just ruined my immunity. You will get through ut. I hope you manage to get an appointment soon, just to give you that piece of mind. Xx

  • Thank you,

    I am sorry to hear what you have gone through. 
    I think, me personally what I have gone through recently was the worse stress i have experienced apart from my dad having a massive heart attack.. 

    the last few months I was having migraines, cold sores and the stress of covid( I work in hospital) but I realise everyone has and does experience this..

    I have just done my blood pressure as I thought it would be sky high, actually it's complete opposite at 100/60! Least this is ok.

    you seem like such a lovely person and I can't thank you enough for this, I will be eternally thankful 

    if you watched it on the screen, was it a shock to see how bad or not it was?

    xx

     

  • The stress will have played a big part im sure. 

    The lady did show me on the screen. They put a dye inside you and basically anything that shows up white is an abnormal area. She pointed it out and said it was a very small area but I was in such a panic, nothing was really going in. I constantly expected the worse case scenario. Everytime someone said they had it and had been ok, I just thought, well mine might not be. They were right though. I am a teacher, so luckily I was kept busy during COVID, which helped to keep my mind occupied.  I am here anytime you need to talk to someone or if you have any questions. Elena xx

  • Thank you Elena

    i went to bed feeling ok after speaking with you and then got up, burst out crying thinking what if.

    I have taken a picture of your messages for me to keep reading...

    I think the waits going to actually drive me crazy...

    I have today started with multi vitamins to hopefully speed up the healing process, it's worth a shot...

    I have sent you a friends request, hope you don't mind so I can send you some private messages if required...

    Have a good day at school! X

  • Of course I dont mind. Give the hospital a call today as they will already have your results and may be able to get you in quickly.

    If there os anything I can do to support you, just say. The multi vitimins will definately help. 

    Take care and let me know how you get on. Xx 

  • So I have just been in contact with the hospital, after being diverted to every department!

    They have found my referral in the system but have not been sent it as of yet, the lady I spoke with said she was going to sort it out and the appointment would be 6/8 weeks time.  She also reiterated its not an urgent appointment due to the low grade and it just being a routine smear and not a private referral.  
     

    She asked if I wanted to be put on the cancellation  list also and I jumped at this chance, she then said I may hear from her in the next day or two with an appointment.. fingers crossed....

     

    I  am so glad I called...just a waiting game now..xx

  • Hello, I hope you don't mind me asking. I'm in the same position as you last year and awaiting my colposcopy on Sunday. I've started taking 1000mg vitamin C, Vitabiotics Immunance, 1000mg B12 and a Tumeric supplement daily. Are the vitamins something you're continuing with permanently or was it just for a while to help things to get better? I must have persistent HPV as I think caught it 11 years ago and it's not caused problems until now. x

  • Hello thank you got getting in touch. I have been taking the vitimins ever since I had my results back last year  and have continued taking them as I have really felt that they have made a difference to my immune system. I would definstely recommend taking them as I truly believed they helped my body to get rid of the virus. I also must have had persistent HPv as I have been msrried for 12 years so it must have been laying dormant all that time and then reactivated when I was under extreme stress and my immune system was too low to fight it. Fortunately my last smear has just come back clear. It sounds like you are taking all the right things. 

  • Thank you so much for your reply. I've read that B12 is very good to fight it and bought a very high dose - 1000mg but am wondering if that's a bit high. Do you mind me asking what your daily B12 dose has been? Superdrug's high dose is 100mg so the 1000mg ones I bought in Holland and Barratt do seem very high. I do want to kick start my immune system into putting this thing back to sleep x

  • I have a B12 deficiency so I have to have injections of B12 every 6 weeks. I also take ferreglobin (1 a day). 

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