HPV positive and Low grade dyskaryosis

Hello I received my smear result back this weekend and it said I have HPV positive and low grade dyskaryosis. I am so scared, I have always kept up tp date with my smears and they have always been clear. I have been with my husband for 13 years. I have been referred for a colposcopy. Please can anyone give me so advice about what this means. I am not sleeping, I cant face food and I cant stop crying. I have 2 children and the thought of what this could mean terrifies me. How do I get rid of HPV? I havent had any irregular bleeding and nothing has been picked up im previous smears why am I testing positive for HPV now when iv been married to the same person for 13 years. Please if anyone could help or maybe tell me your story. 

  • Oh my that's amazing, even reading this has made me cry as I type this mail. I am so pleased for you. I really hope I am in this situation but my gut is telling me not but maybe this is my anxiety and worry ( I am a complete worrier about everything)

    I will defo call them tomorrow, I have to. I went to bed last night but didn't sleep properly, ended up grinding my teeth all night and today actually!

    did they not treat the cells or remove them at all? 

    allof my smears have always been ok and so I don't know why all of a sudden his has raised, I have been under a bit of stress at the moment with some personal issues, I don't spose this would help..

    thank you for helping me, I have thought the bad stuff etc just like you did, I need to just get through this...

     

    xxx

     

  • They only treat the cells if they are CIN 2 or CIN 3 as CIN 1 typically go away on their own. They do take most of them away when they take a biopsy though. I was the same, had a bad feeling and wouldnt listen to people when they were telling me it would be ok and it was common. My anxiety wouldnt let me believe them. They asked me if I had been under any stress as this can cause your immune system to allow HPV to become active in your body and cells to change. I had been under immense stress as I lost my dad and brother and my mum had cancer. I think all the stress just ruined my immunity. You will get through ut. I hope you manage to get an appointment soon, just to give you that piece of mind. Xx

  • Thank you,

    I am sorry to hear what you have gone through. 
    I think, me personally what I have gone through recently was the worse stress i have experienced apart from my dad having a massive heart attack.. 

    the last few months I was having migraines, cold sores and the stress of covid( I work in hospital) but I realise everyone has and does experience this..

    I have just done my blood pressure as I thought it would be sky high, actually it's complete opposite at 100/60! Least this is ok.

    you seem like such a lovely person and I can't thank you enough for this, I will be eternally thankful 

    if you watched it on the screen, was it a shock to see how bad or not it was?

    xx

     

  • The stress will have played a big part im sure. 

    The lady did show me on the screen. They put a dye inside you and basically anything that shows up white is an abnormal area. She pointed it out and said it was a very small area but I was in such a panic, nothing was really going in. I constantly expected the worse case scenario. Everytime someone said they had it and had been ok, I just thought, well mine might not be. They were right though. I am a teacher, so luckily I was kept busy during COVID, which helped to keep my mind occupied.  I am here anytime you need to talk to someone or if you have any questions. Elena xx

  • Thank you Elena

    i went to bed feeling ok after speaking with you and then got up, burst out crying thinking what if.

    I have taken a picture of your messages for me to keep reading...

    I think the waits going to actually drive me crazy...

    I have today started with multi vitamins to hopefully speed up the healing process, it's worth a shot...

    I have sent you a friends request, hope you don't mind so I can send you some private messages if required...

    Have a good day at school! X

  • Of course I dont mind. Give the hospital a call today as they will already have your results and may be able to get you in quickly.

    If there os anything I can do to support you, just say. The multi vitimins will definately help. 

    Take care and let me know how you get on. Xx 

  • So I have just been in contact with the hospital, after being diverted to every department!

    They have found my referral in the system but have not been sent it as of yet, the lady I spoke with said she was going to sort it out and the appointment would be 6/8 weeks time.  She also reiterated its not an urgent appointment due to the low grade and it just being a routine smear and not a private referral.  
     

    She asked if I wanted to be put on the cancellation  list also and I jumped at this chance, she then said I may hear from her in the next day or two with an appointment.. fingers crossed....

     

    I  am so glad I called...just a waiting game now..xx

  • Hello, I'm so worried. I had my smear results on Friday saying I am hpv positive with low grade dyskaryosis and am awaiting a referral to the colposcopy clinic. I'm 48 and am sure I contracted HPV 11 years ago. My smear in 2017 was normal although they weren't testing for HPV then. I'm so frightened and looking online it says that most women clear HPV within 2 years of contracting it. I seem to be in the smaller percentage where the virus is persistent. I'm in the peri menopause stage - irregular periods now and worried that the virus has lay dormant all this time and is now starting to cause cell changes in the cervix. If I've had HPV for 11 years will it ever go away?

    I'm so frightened of getting ill and for my children. My own mum died of ovarian cancer at 55 and I know it's not linked but it's bringing back all the worry. I can't eat and feel so sick with worry.

  • Hi worried Sarah,

    there seems to be a lot of us in the same boat and it's so good that we have this forum, for me Elena has made me feel better and she is amazing but then I revert back, which is only normal I spose...

     

    Elena said for me to call the hospital, I had my results back the same day as you,I called them today and  she found me on the system and pulled it off herself as she hadn't received it from my gp. She explained why the wait was long but said it's because it's low grade and picked up via a smear which is kind of good... I am on the cancellation list and so can go up anytime..

     

    can you try to call the, like I did today?

  • I have just been up to the hospital following a cancellation, had some biopsies taken and have to wait 6 weeks or so for the results.

    It didn't hurt at all and was straight forward, I was just nervous, a lot!

    the dr stated she could see the issue and was low grade, so that was good....

    now just the waiting game for me

    I do think it's worth calling as I wouldn't of been in today without it and would still have to wait weeks to even be in the position I am now...