Hello Forum Members
I am new to this forum, and very new to the idea of living with cancer. I am looking for a bit of experience, and just a little bit of insight if the truth must be told.
My 52yr-old wife is in the 5th week of radiotherapy and Temozolomide. We have 6 sessions to go, and then - mercifully - she has 4 weeks off before an MRI and then a further 6 months of Temozolomide. In February, she sucessfully underwent a gross resection of the tumour, and for a brief period, she had some respite from the speech challenges that a Temporal Lobe GBM causes. Of course, that has now profoundly returned as the radiation 're-injures' her brain in the quest to eliminate the remaining malignant tentacles of the tumour.
I know that this doesn't end well, especially now that we know from gene sequencing that we do not have any 'friendly mutations' in order to expore other avenues of treatment. What I'd like to hear a little bit about is how this goes from now, some real stories. We are told that at the end of the 4 week break, she will start to feel well again, but we know that the tumour is almost certain to return despite all effort to the contrary.
I sincerely appreciate any thoughts or experience.
G
