Having endometrial cancer - coping with daily radiotherapy

Hi everyone,

I was diagnosed on 4th dec 2019, a day in my life I will never forget.  I underwent biopsies on 22nd november after having numourous scans and being told that the lining of my womb was 19mm. The biopsies revealed endometrial cancer in the early stage.  I was given the option to have a full hysterectomy within 2 weeks. This took place on 17th dec and I had keyhole surgery.  2 weeks later I was called back to the hospital to be told that biopsies from the operation showed that it was further progressed than first thought and was now graded at stage 3a. This was another massive shock that it was suspected that it was in my pelvis. I was being referred to the oncology team at a hospital in newcastle.  It was felt that a course of radiotherapy would be beneficial. I was sent for a CET scan and a PET scan which revealed that j was clear.  I began my radiotherapy on 5th march 2020 nothing prepared you mentally for any treatment, but this is where I am on my journey right now week 1of 6 with daily visits. My family are very positive and supportive but alot of the appointments I have to do myself.  It is very tiring and my anxiety makes me feel sick. I have developed a heightened sense of smell, and I smell this smell whenever I enter the hospital, I know its psychological, but at the moment it's not a good experience hopefully it will get better as I go along.  If anyone else has a similar experience and how they have overcome this please let me know. Many thanks Tracy

Parents
  • Hello Tracy53 and welcome to the forum. 

    I'm sorry that you find yourself here. Lots of our members fondly refer to it as the club that no one wants to join but I'm glad you 've found us. I know that we have lots of members here who have been through daily radiotherapy for 6 weeks and I hope that some of them will post to say Hello! and share their experiences. For this reason I've slightly edited the title of your post to help you connect with others. 

    Radiotherapy can be incredibly tiring so I'm glad to hear that you've got positive and supportive family around you. Don't be afraid to ask for help or support from them over the coming weeks. You mention that you are going to some of your appointments alone. I'm not sure if you have transport arranged or if you're making your own way to the hospital but as the weeks go on if you're struggling then speak to the hospital who will be able to help organise transport. Most units access to a volunteer car service. 

    I hope that things go smoothly over the coming weeks. Keep in touch when you feel able to and let us know how you're getting on. 

    Best wishes, 
    Jenn
    Cancer Chat moderator

Reply
  • Hello Tracy53 and welcome to the forum. 

    I'm sorry that you find yourself here. Lots of our members fondly refer to it as the club that no one wants to join but I'm glad you 've found us. I know that we have lots of members here who have been through daily radiotherapy for 6 weeks and I hope that some of them will post to say Hello! and share their experiences. For this reason I've slightly edited the title of your post to help you connect with others. 

    Radiotherapy can be incredibly tiring so I'm glad to hear that you've got positive and supportive family around you. Don't be afraid to ask for help or support from them over the coming weeks. You mention that you are going to some of your appointments alone. I'm not sure if you have transport arranged or if you're making your own way to the hospital but as the weeks go on if you're struggling then speak to the hospital who will be able to help organise transport. Most units access to a volunteer car service. 

    I hope that things go smoothly over the coming weeks. Keep in touch when you feel able to and let us know how you're getting on. 

    Best wishes, 
    Jenn
    Cancer Chat moderator

Children
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