I've had a look through the forum and I can't see that we have any other members currently posting who have been diagnosed as having a ganglioglioma.
Have you tried the support communities at The Brain Tumour charity? You may be able to connect with others who have the same diagnosis there.
I did also find some references to people who have had ganglioglioma in the stories section of the Brain Tumour Research website. Just use their website search function to look for ganglioglioma and they should come up.
I hope that this helps you to connect with others who have had the asme diagnosis.
My son has been diagnosed with gangligligoma in 2019 & would be interested to hear from you. Only come across your post today, finding it very difficult to get information on this type of cancer as it seems it's very rare.
