Cancer - diagnosed with HER2 positive breast cancer

Hi there been diagnosed with her 2 positive breast cancer had 3 rounds of decent and now on my forth one of the t had it last Friday and still struggling haven’t eaten in 4 days and still feel terrible can any one give me some advice can’t even drink water 

  • Hi Stu

    I'm so so sorry for the awful news you received today, nothing anyone can say will make you or your wife feel any better, I'm sure you are both in shock and going through lots of emotions including disbelief anger and fear. Your world has been turned upside down and although your can't think of any positives now, please don't think this is the end because it isn't and I'm living proof of that. You need time to process the situation. I hope you don't think I'm patronising you, i just want you both to know there is hope. Message me anytime and as often as you want if you have any questions. Like Moderator Jenn said there are others on this site in the same position. This is an excellent website but there are others dedicated just to people with Secondary cancer with lots of positve stories.

    Lynnx

  • Hello and I am so sorry to hear about your wife.I am living with breast cancer stage 4 since May 2019 and beeing on chemo since August 2019.I had mets in my kidney,liver,lungs.But the chemo got rid of the liver and kidney ones and now I just have it in my lungs.I am living a quiet normal life,I am working 2xweek and having weekly chemo.

    Many people here live many years with stage 4 cancer and there are many treatment options there so dont give up hope and please dont google statistics.They are just numbers and anyway they are old.

     

    Denise

  • Thanks for the replies Jenn and Lynn. 

     

    I will pass the information on to her about calling the nurse. Thanks for the info. 

     

    Yes Lynn that is exactly what we are thinking, that this is the end. 

    Its hard to think otherwise right now. 

    As we are still not sure what it means given that it has spread to her thorax and a shadow on her liver. 

    I'm not sure if there is stuff out there that can prolong the inevitable for years and years or whether we are going to get told worse when we do see the oncologist. 

     

    I do try and see some hope from people like yourself Lynn. That's part of the reason I joined this forum, to try and find hope and positive stories from people who are going through/been through a similar thing and are still here to tell the tale. 

    It may give her some strength to hear that. 

     

    I have sent you a request if  you'd like to message privately.

    What stage were you diagnosed at? And what does it mean for your future? If you don't mind me asking that is? 

     

    Regards 

     

    Stu x

  • That's nice to hear Denise. I'm glad you are doing a bit better. 

    How long do you have to have the weekly chemo for? 

     

    I'm dreading meeting with the oncologist, I'm guessing he will tell us how long she has or how long it can be prolonged for. 

    I haven't googled that as such so I'm uncertain on what the prognosis is for this type and stage of cancer is. 

     

    I think at this moment in time and given how aggressive it seems to be we are really worried incase it is short term. 

     

    As horrible as I can imagine it is I honestly can't wait for her to start chemo now on Tuesday before it gets any worse.

     

    The oncologist from the blood test results which were done about 3 week ago everything looked fine, if that was the case it has spread in the 3 weeks between having the blood test and having the scan last week. 

     

    Stu 

  • Hello I know its hard and its not funny but never give up hope.Positive attitude helps me to get out of bed everyday.I have bad days and I am on antidepressants but I have to carry on to fight for my family.

    I am still hoping I will be cured.I am having this weekly Taxol until its stops working.I am tripple negative BC so i have limited treatment options.After this chemo I will have something else possibly chemo tablets.

    When I was diagnosed I was never told the prognosis and I have never asked and never wanted to know.

    1) i dont want to live my live to countdown my days

    2)even the doctors dont know everything and they just read some old statistics from the computer.I have very young oncologist so how do they know?They dont have too much experience so I dont trust them

    3) i know many ladies online they live many years with stage 4.

     

    Please try to stay positive.

     

    Denise