Hi everyone
This is my 1st post so a bit of history.
For the last 5 years ive been supporting my 26 year old son with what we thought was depression and anxiety, he was away at uni and became quite ill with his mental health.
5 weeks ago there was a real change in him, so much so i took him to A&E, given his history they were talking about him having schizophrenia, but wanted to rule out any medical reason, I was told the mental health team had been alerted.
My son was sent for a ct scan and the doctor was shocked to tell us they found a significant mass in his brain that has been there for a long time.
Fast track to being admitted to neuro and further mri and ct scans showed leisions that were very different on the left and right hemisphere. Few days later a biopsy was preformed on both leisions.
My son became unwell very quickly, developing hydrochephilis and needing 2 EVD's putting in to save him, a few hours later they failed and emergency surgery was preformed, removing 70% of the tumour on the left of his brain.
He was in critical care at this point. We then got the histology results, which said grade 4 glioblastoma cancer and a lower grade Benin leision. The glioblastoma is significant and close to the brain stem. No treatment is possible, as in radio or chemotherapy.
My son has been discharged from hospital to our palliative care unit.
He is on a few meds but is lucid and we are having moments of happiness, he does not know what is happening, the cancer has affected his cognative ability and very sadly his sight.
He is frightened but most strangely, i was advised post surgery not to bring him home, i have younger kids too, the youngest being 6, because his life expetancy was 'days or weeks' but everh day he seems more lucid, questions the gaps in his memory, eats, drinks, walks to the bathroom etc.
My son lives at home, does not have a partner, it feels like we are alone, its against the natural order to know your child will die before you and I'm really struggling, yet i feel selfish to struggle after all its not me dying too young its my son.
Thank you in advance for anyone who reads this
X x
