• Hi,

    I'm so sorry for what you're going through, I feel in a similar way. Had blood in my pee along with other symptoms - swollen lymph glands in groin and sharp stabbing pains. I have scans tomorrow and I'm thinking the worst. 
    It's hard speaking to people who don't feel what I feel- they just keep saying it's probably nothing.

    Keep updating on how things go and try and stay positive x

  • Hello you,

                    its really good news that you have had and are having examinations to get to the cause of your current problems, and that the Doctors are doing all they can to help you.          

                                                                                                                          So it is is important that you do all you can to help yourself by staying positive,reducing your stress,and become your bodies best friend in its hour of need.

                                    In a lot of medical conditions the primary condition is often made worse by the secondary ones that come along and piigyback on the first,and stress is very ,very much one.

     Detached thinking tells you it takes the same effort to think positive as it does negative,but gives greater benefits.l realise this is easier said ,but it really is worth the try

                                                                                                      When l was diagnosed the shock was immense,but l quickly realised the importance of giving this intruder not an inch of comfort or advantage.l had the benefit of having had a career in iintensive pig keeping at the highest level and had long since witnessed and appreciated the detrimental effects of stress in animals that have a very similar physiology to ourselves.. It could trigger disease outbreaks,interfere dramatically with the effectiveness of drugs, and severely impact on the prospects of recovery. However the opposite is true, focusing upon keeping them stress free and happy meant they were able to thrive with little intervention,the Fire Engines and hypodermics were not needed,.

                  In my mindset of positivity,it was a case of thank goodness you have found it now,not later.Six months later when told of its spread,it was thank goodness it has not gone further. When my treatment took everything l had to give ,it was good news that l had enough to give. It all helped to keep me to stay calm,which in turn enabled me to focus a cold  cool considered determination to succeed. Six years on l am living a very very active normal life looking after my cow herd and sheep flock,  bringing new lives into the world, absolutely wonderful and what a positive !.

                                                                                              l cannot tell you it will be alright, l can hope it will, but l am telling you it will be a whole lot better if you can find your way to allowing your mind to  become your bodies best friend,

                                                        l really hope all goes well for you,

                                                                                                                  David

                                                                                                            

     

     

  • Hi KitKat313

    Sorry for what you are going trough too. Did you find it painful going to the toilet because everytime I went for a wee, the pain was excruciating. I'd let out a yelp it was so bad. Also, were you getting up several times during the night to have a wee? Lack of sleep has been a problem for me.

    What scans are you having? Hope someone is with you. Some people don't understand what we feel, it's hard trying to explain.

    Keep in touch x

  • Hi David,

    Can I ask what you were diagnosed with and how you felt when you were told? I'm not going to lie, I am scared. I am trying to busy myself as much as I can but as I have the week of work it's a bit hard. I am trying to stay positive, going to the gym and trying out new recipes. I think for me, the wait is making me feel worse.

    I will keep you informed x

  • Hello Again,

                         Glad to hear you are keeping busy and trying to stasy positive.l would never say it is easy, but its good to hear you are finding ways that work for your wellbeing. You are right in saying the wait in not knowing is the difficult part since once you know what you are dealing with, in a perverse way makes it better after the initial response , because you have a focus on what you have to deal with.

                                                                                                                                                     In my case l was not ill but spotted blood in my stool, and was found to have bowel cancer with a tumour that had almost breached the bowel wall, but not quite.Aftter six weeks of pre op treatment of chemo/radiotherapy l was scheduled for an op to remove the tumour after l had recovered from treatment,when a scan revealed it had decided to party in my liver.So was pretty quickly in for an op that removed 60% of my liver along with my gallbladder and a lot of lympthnodes, with a bowel resection 3 months later.Bowel was rejoined 14 months later since l had a bad non healing stoma caused by all the inflammation affecting placement from the previous op.

                       When l had the original diagnosis everything just went Black,a great black nothingness with a sound like roaring waves,which l realised was the sound of my blood being pumped around my body, everything else around me was blotted out for what seemed like ages, just me and my mortality l guess, but was probably only seconds in real time. Of course l was scared and worried for my family but instinctively knew l could not affect what had been, only what was too come.

                                                                         When l got hit with the news of spread l just thought that the gloves had really better come off now and it was going to get the fight of its life and come to regret coming my way.l allowed for it to win,but it would be beggared in doing so .l remember my mind telling my body we were in this together and that we stood and fought alongside each other with nothing spared from either. Remember thinking there were two possible outcomes,cancer would perish in both,but l could survive in one ,so it was a bigger loser from the outset. Strange,but l felt a powerful surge of force within me at that moment,and one that l revisited to remind myself of when things got tough, and how they did. l remember making my peace with myself one night in a maggies garden in the hospital grounds and after a long four cold hours,never ever looked back again, only forward. l Shared my treatment with others that said the right things but never truly believed in themselves.

                      The human body has an amazing ability to cope with the most hideous things if given a chance and helping hand.

                                            Good luck next week,experience tells me it will be suddenly upon you if you stay busy,     

                       David                                             

  • Hi David,

    You have been through a lot. Your determination to beat this disease is positive. I pray and hope for the best for you.

    I looked at the letter that was sent to me for my appointment next week. I have to go to the kidney/urology department at the hospital. I had a scan to test my kidneys but never got told the results when I went for my biopsy. My mind is now thinking could they both be linked? I just don't know any more. 

    X

  • Hello You,

                      thank you for your kind thoughts but six years on l am living to the best and looking at me you would never realise my past medical history.

                                                                           Yes l think you are right to say they are linked insomuch that they are being very thorough and running a range of tests to establish what is, and importantly discount what is not.If you are not told results of scans it usually signifies that there is nothing to tell or further tests need to be done in order to confirm.

                 You are on a hiding to nothing if you go around thinking what if, much better to be content  and not lose sight of the fact that you have professionals working on your behalf to deliver the exact facts of your condition, and more importantly what they will do precisely to fix it.

                                                                                                                       Stay calm, loose,  and be kind to yourself in the days ahead,

                                                       David