Hey, sorry to hear about your diagnosis. I was diagnosed nearly a year ago and my tumour was estimated to be the same size as yours, I couldn't feel it because of its position but it was have been there for a while, I had positive lymph nodes so had chemo first, then had a good response so had a mastectomy and immediate reconstruction and the. Finished radiotherapy a week ago. 
I am 43 and have been given tamoxifen, started taking it in November and to be honest have had very little side effects, I think it's more the thought of the unknow that makes me anxious, I've got to have zoladex for three years and zoladronic acid too which makes me apprehensive. I asked about ovary removal and they said they would only do this in people who have a high risk factor or family history of ovarian cancer. 
 

Here if you want to chat. Look after yourself.

wl

Hi

im sorry to hear your diagnosis.  
I was 48 when receiving my diagnosis and have gone through the same with 10cm lobular breast cancer, ER+ tumour.  Wasnt at the age to get regularmamograms and with no stmptoms or lump, it just seemed to have crept up on me.  Due to the size, I had a mastectomy, lymph node clearance (as 24 out of 32 nodes positive). Im a bit unusual (according to surgeon), as im high risk as have large lymph node involvement but my Oncotype (recurrence score on your tumour) is very low at 11 out of 100 which makes me low risk - confusing!  Anyway, I went through 6 cycles of chemo (3xFEC, 3xDoxetavil) which wasnt too bad and followed by 15 rounds of radiotherapy.   As far as Oncology feel, Im cancer free.  Now on daily Anastrazole tablets and have prostat injections and recently had my first Zoladronic injection (which is absolutely fine).  Im struggling with knee joint pain which is a side affect and other than hot flushes Ive been fine.

As horrendous a position were in, its good to hear from others who have had similar diagnosis. 

just want to reach outand send positivity to both of you on this link.  Love to hear how your journey goes giving any support or advice to one another.

We have this xx

Hi, just wondering how you are getting on. x

Hi, 

I was diagnosed with a 74mm invasive ductal,grade 3, ER+,HER2- 'tumour'. Had a mastectomy in January, managed to remove it all and no node involvement(surprisingly), Chemo then radiotherapy for 'belts and braces'.

I'm 44 years old and due to start having the prostap injection every 3 months and exemestane daily. I've scoured round the forums and cannot find much info about the prostap injection. How are you getting on?

Also a big hello to all the large lump ladies. How are you getting on?

Hi, Ive had a few prostap injections now and they are absolutely fine.  I initially had the monthly injections and thought changing to 3 monthly would mean a bigger injection/needle.  Dont know why but its not.  Its just a slower release - Im always amazed how medications work!

I had some slight side affects like headache and niggly tummy but nothing a paracetamol wont help.  

Hope that helps. xx

Justvwonder how you are getting on following active treatment.  Would love to catch up. 
Yv x

I was diagnosed with lobular breast cancer in the summer 2019 when I was 48. A lot smaller tumour at 3.5 cm. It didn't show up on the 2 mammograms I'd had done previously. Partial mastectomy and flap used for reconstruction. One of my lymph nodes had micro metastises so no full clear out. PR 8 ER 8 HER -. I was also told that lobular breast cancer doesn't respond very well to chemo. My Oncotype score came back as 16. I had 15 sessions of rads and am now into my second year of tamoxifen. Night sweats initially but these have either improved now or I'm just so exhausted that I sleep through them! I do have stiff joints in the mornings but no major side effects. I did have a pretty bad mental battle with the medication. I wanted to move on and put the cancer behind me but found the medication was just a reminder. I'm not brilliant at taking it daily but am better than I  was last year.  Good luck with your journey!

Hello. I hope you're all doing well. I have just joined the group because I was diagnosed today with lobular cancer which is in 2 nodes under my arm. They're doing a MRI of my breasts because the doctor said that the 13mm tumour on the ultrasound probably isn't all of it as a tumour that small wouldn't usually spread. She's also doing a whole body CT scan - that's thrown me as I thought they only did that when they had reason to believe it's spread - has anyone else had this?

thank you and love to you all xxxxx

Hi, 

So sorry you have had to join this clan but we are all warriors. Lobular cancer tends to make a type of web, not a lump which is why mammograms sometimes miss it. My tumour was thought to be 19mm on the ultrasound but was 35mm on the MRI. I should think the CT scan is probably to check if it has spread but that doesn't mean it has, it means they are being very thorough. People will say try not to worry, but that's easier said than done. But we are here for support.

Thank you so much.  All of the stuff online is so scary but seeing the posts above makes me feel more positive that people do survive and can be treated.  I'm naturally really worried as we all are / have been. So good to find some support xx