Hi Timisoara,

Welcome to our forum. I am sorry to hear that you are on your cancer journey too and hope that your tablets help in preventing it from recurring. Have you had any surgery prior to this and, what type and grade of cancer do you have?

Please keep in touch and let us know how you get on. We are always here for you.

Kind regards,

Jolamine xx

Thanks, Jolamine - kind of you. No, no surgery. I'm not expecting any.

Hope you are managing. I'm JAK2. Overproducing plaitlets in my blood. Something to do with bone marrow as well. It's called Essential Thrombocythemia.

Take care,

Best wishes,

Peter

Hi Timisoara,

This is a rare one and, as far as I can see, is usually left  untreated in the early stages. Are you on any medication to cut down the risk of clotting?

I sincerely hope that your tablets manage to keep this in check for you.

Kind regards,

Jolamine xx

Hello

I've just been told I have the same as you jak2 how you getting on I have to go to consultant to start them tablets next week now long have you had this for I'm just trying to take it all in

Regards

Barbara 

Hello

How are you getting on with meds they've given you i m starting my chemo pull next week

Regards

Barb

Hi Barbara, 

I've been taking the meds for two weeks now. To be honest, I haven't felt any side-effects as yet. I see the consultant in two weeks time. Over this month (four weeks) I'm having three blood tests. My main concern is that the meds lower your immune system - particularly chest and urinary, making them susceptible to infection - my two weakest areas. However, infections can be dealt with by antibiotics. What I certainly don't want to happen is a stroke. 

I'm now accepting I have this condition. I know this might sound ridiculous, but someone in the medical profession told be that of all the blood disorders Essential Thrombocythemia is probably the best one to get!!! 

Take care - stay strong,

Peter

hello 

thank you so much for replying it's like going into the unknown and hard to get your head round 

yes the chest will be my weakest point too but you have put my mind at ease 

yes and it's better than strokes and heart attacks will let you know how I get on and thank you again 

regards

barb