Waiting for kidney mass diagnosis

Hi there,

I've been reading the forums for a few weeks now but joined today because of some news I had on monday. 

Just before christmas, I had terrible pain in my right side which I went to to doctors for. He thought it could be appendicitis so I was sent to A and E. Long story short it was a kidney stone but theyd also found a mass in/on my kidney (I cant remember what they said) 

They sent me a letter to return 2 weeks later for another ct scan with dye. 2 jan I had this (really weird feeling, it honestly feels like you've wet yourself!) Results by telephone on monday were that they still dont know what it is but it's definitely not a normal cyst so now I need an ultrasound.

I was bright and cheery to the nurse on the phone, thanked her for looking after me and cheered that the kidney stone had gone. Managed to ask how long would it take to get an ultrasound apt. She said no longer than 2 weeks. So this is the stage we are at now.

I went back to the doctors last friday (few days before phone results) and said I'm in so much pain in my right side still. He said to take buscopan, ibuprofen and paracetamol (have instructions blah blah) and it's not helping me with the pain.

I just wanted to join the forum to reply to someone on one of their concerns to reassure them but I'd like to tell you my story as I sit and wait for the next steps too.

Nice to meet you all,

Clou 

  • We do! I hope work takes your mind somewhere for a few. Would love to hear any updates! 

    Thinking of you, 

    Clou xx

  • Just off the phone to the urologist

    Urgent biopsy next Tuesday at 8.30.

    Im glad the wheels are in motion....

    thank you for everything and I'll keep you posted xxx

  • Oh bless, wishing you well. Remind husband to answer his phone if hes still away. You might need moral support on the way x

    Maybe I should ring...I might ring on monday, that's a week. That way I'll be persistent but still have time to check the post on Saturday lol.

    Will be thinking of you and I hope you can have some sort of normal weekend xxx

  • Same to you! 
     

    Try and look at the positives - they are on the case

    Much love and keep me posted xxxxxx

  • Hello Clou!

     

    ah you definitely have yourself a handful then! My boyfriend also likes to waited on so I get what you mean!

     

    from my experince mine was a blood mass, so it's good yours doesn't look like that! That's why mine caused urinary blood clots which resulted in a kidney infection.

    i feel for you with the stones as I had 2 7mm ones in August 2018.

    im sure you're also good at other things! Like being an amazing mother! And loving wife!

     

    its weird you've had kidney problems since 17 because I've had bladder problems since I was 17! But yes everything of mine is crossed for you!

    Yes I have to go to hospital for genetic testing on Feb 20th.

    then every 6 months I am having a Ct scan and ultrasound to make sure it doesn't return.

    I hope you are well xxx

  • Hi Sarah,

    Just a quick message to let you know I've been thinking about you this morning. I hope it went ok and it wasnt too painful/scary.

    Lots of love,

    Clou xx

  • Hi Clou

    Thank you

    Thats me home - long day but feeling ok.

    Nurses and doctors have been fantastic! 
     

    Specialist nurse also put my mind at rest

     

    2 weeks for results!

     

    How are you? Xxx

  • Hey Sarah,

     

    I'm good thank you. Well, had a few tears because I'm so frustrated with the hospital. No appointment through yet. It's been a week now. I dont know what to do or even if I should call them. I dont want them to pooh pooh how urgent I feel about this scan. I've had terrible experiences with reception staff before. They're so mean :/

    I'm so glad you're home. I hope you're comfortable now and you can rest up. You'll have to plan to keep busy these next few weeks. 

    I'm booked into the doctors for friday this week, try and sort this pain out once and for all. You never know, it could be something else entirely! 

    Sick of soldiering on but this is what we must do I guess :)

    Thanks for listening to my rant lol.

    I have my fingers and toes crossed for 2 weeks time my lovely!

    Much love,

    Clou xx

  • Hi Clou

    I would phone them and explain how anxious you are. Don't be afraid. See if they can check the system and see if there's an appt yet.

    Good that you've got an appt, you'll be fine!

    I am going to keep busy! Here for you xxx