Hi having the  same problem but my fc calprotectin is 869 and i am v.worried any advice suspected IBD as well

Hi Anna

im in roughly the same area as you, I've been having bowel issues for around 3 years and had a sigmoidoscopy and ct colonoscopy in that time with normal results. Originally I had a calprotectin test which was within normal range at 48 but just after Christmas had a terrible bout of watery diarrhea that even loperamide didn't treat. Had another calprotectin test and the result has really shocked me at 860 so I've been referred for an urgent colonoscopy next week. I feel like I'm in turmoil and never been so scared. I'm 50 but I'm terrified of the results. 
 

David 

Hi LunaKC 

I genuinely appreciate you taking the time out of your day to tell us about your experience with raised Calprotectin. I'm still panicking over an urgent referral on Saturday for a colonoscopy. I've struggled with bowel issues for around 3 years and my GP and gastro consultant had both insisted it was IBS but I've never been totally convinced. A sigmoidoscopy and ct colonoscopy both showed nothing and my first calprotectin test weighed in at 48. Utterly frustrating having terrible bowel issues and nothing of note showing ...... that was until a couple of weeks ago after a bout of uncontrollable watery diarrhea that even medication didn't stop. The calprotectin was then raised to 860 which was an almighty shock and terror set in !!!! Even though my gp thinks it's IBD I can only think negatively so to read a post like that from yourself certainly helps and gives a bit of hope !!! Thank you once again. 
 

David 

Hi sorry to hear about your son hope is gose all well for you and you be a le to find out somthing i had my endoscopy  done today which very funny showed nothing to be inflamed  but have been told that there is something wrong but not known where they took 14 biopsies and said they will send it to be tested i am under the care of surgeons  which worries me a bit but still have no idea what is happening which i find this fustrating but hope it went better for you and hope you found out whatbis happening to your son i also hope i will all work out for you

Hi David  hope your well as promised here i am letting you know what happen today sorry for not letting you know earlier i was so tierd due to the sedation but the endoscopy have not shown anything inflamed which is wierd because the calprotectin is high they thought that is strange but they said that something is wrong but not known where the problem is they took 14 biopsies and now i am waiting for the results haven't found out much still in the same place they still have not ruled out cancer which worries me the most but hopefully  they will call back i  2 week time with the results 

Hi Anna,

Really pleased that it's not shown anything obvious also good to know you got through the endoscopy too !!! Fingers crossed that the biopsies taken don't show anything sinister too. Have a well deserved rest now after your ordeal today. 
 

Best Wishes 

David 

Hi David, I hope you have now had your referral and got some answers.
 

My faecal calprotectin level is 1800.  I have had Crohn's disease for 20 years. (I am now 57) I had been in remission with meds (Pentasa) for quite a few years but despite increasing these recently am now in full flare and back on prednisolone. The steroids aren't fully controlling my symptoms and having to shield because of COVID-19 as classed as high on the vulnerable list due to the meds. Hoping for the vaccine soon and that I can get off the steroids.

If you or anyone else has any questions relating to IBD please feel to ask me.

Anyone know what a 3305 calprotectin may mean, it kinda shocked me how high it was today. I hope everyone has got answers and the Colonoscopies are not as bad as they sound. 

All the best. 

Jem 

Good Afternoon, 

I had a second Calprotection test done recently and it was over 3000 but it seems odd as I really don't have any pain or if any symptoms of IBD. I am wondering if the test result is wrong because the first result was only borderline at 173.  I have a Colonoscopy booked in March and I am really anxious, I feel like they aren't going to find anything to be honest it's all been a bit strange!.

Any words of comfort or advice would be appreciated :) 

Jem 

Hello everyone. 
 

I am slightly worried my calprotectin levels are about 650 and I  am booked in for a colonoscopy, but i am only 19. I'm scared as the doctors think it's a form of IBD, and also I'm scared for the colonoscopy. 
please feel free to drop any advice. Thank you 

Hi

im going through the same thing , have you had your colonoscopy? Thank you 

Hello

no not yet i rang the hospital after i got my referral from the doctors and they said the waiting list is quite long and that they would contact me as to when i can get booked it. It's such a long wait not knowing. 

Hello

no not yet i rang the hospital after i got my referral from the doctors and they said the waiting list is quite long and that they would contact me as to when i can get booked it. It's such a long wait not knowing.