Hi having the  same problem but my fc calprotectin is 869 and i am v.worried any advice suspected IBD as well

Hi Anna

im in roughly the same area as you, I've been having bowel issues for around 3 years and had a sigmoidoscopy and ct colonoscopy in that time with normal results. Originally I had a calprotectin test which was within normal range at 48 but just after Christmas had a terrible bout of watery diarrhea that even loperamide didn't treat. Had another calprotectin test and the result has really shocked me at 860 so I've been referred for an urgent colonoscopy next week. I feel like I'm in turmoil and never been so scared. I'm 50 but I'm terrified of the results. 
 

David 

Hi Anna

im in roughly the same area as you, I've been having bowel issues for around 3 years and had a sigmoidoscopy and ct colonoscopy in that time with normal results. Originally I had a calprotectin test which was within normal range at 48 but just after Christmas had a terrible bout of watery diarrhea that even loperamide didn't treat. Had another calprotectin test and the result has really shocked me at 860 so I've been referred for an urgent colonoscopy next week. I feel like I'm in turmoil and never been so scared. I'm 50 but I'm terrified of the results. 
 

David 

Hi david

Sorry to you going through those problems i been having the same i have this problem for about 6 years and had endoscopy  before which the results was fine but couple weeks ago I've been doing with serve diarrhoea and blood which worried me the doctor put me through a 2 week endoscopy to check what is going on gonna go for that on the 1st feb v.worried but hope is gonna be fine they suspect ulcerative colitis??  Hope everything will work out for you

Thank you for your reply it's really appreciated, it's so frustrating at not knowing but equally as frightening at what lies ahead. The doctor I spoke with seems to think it's IBD related but I'm really not so sure. I had a rectal examination yesterday which showed no inflammation so it must lie higher up the GI tract. I don't know how I'll cope awaiting the colonoscopy next week even though I've had similar tests done previously. 
 

I'd like to wish you luck ahead of your test this week. Sending prayers. 
 

David 

Good luck for tomorrow Anna, hope it goes ok and isn't too bad. Keep us updated. 
 

David 

Thank you will let you know

Hi all my son his 4 his results came back march 2020 with raised calprotectin over 600 refer urgently nothing done so kept chasing it had more stool samples in aug came bk just over 500 refer urgently iv had to chase and chase them finally we have appointments 1st Feb 2021 tomorrow with gastroenterologist hopefully  we r finally getting  somewhere 

Hope you get some reassurance today, if it's going ahead. 

Best wishes A 

Hi everyone. Just wanted to drop in quickly - I had a faecal calprotectin value of over 3000 when I was diagnosed with Crohn's disease in 2017. It was an urgent referral to gastroenterology as it was the highest my GP had ever seen and she was worried it might be cancer, but it turned out to be Crohn's. I was diagnosed after a colonoscopy with internal biopsies - it was mostly all upper colon. Three years later after steroids and then azathioprine & biologics, my Crohn's is comfortably in remission. Please try not to panic too much (easier said than done, I know)!

Hi LunaKC 

I genuinely appreciate you taking the time out of your day to tell us about your experience with raised Calprotectin. I'm still panicking over an urgent referral on Saturday for a colonoscopy. I've struggled with bowel issues for around 3 years and my GP and gastro consultant had both insisted it was IBS but I've never been totally convinced. A sigmoidoscopy and ct colonoscopy both showed nothing and my first calprotectin test weighed in at 48. Utterly frustrating having terrible bowel issues and nothing of note showing ...... that was until a couple of weeks ago after a bout of uncontrollable watery diarrhea that even medication didn't stop. The calprotectin was then raised to 860 which was an almighty shock and terror set in !!!! Even though my gp thinks it's IBD I can only think negatively so to read a post like that from yourself certainly helps and gives a bit of hope !!! Thank you once again. 
 

David 

Hi sorry to hear about your son hope is gose all well for you and you be a le to find out somthing i had my endoscopy  done today which very funny showed nothing to be inflamed  but have been told that there is something wrong but not known where they took 14 biopsies and said they will send it to be tested i am under the care of surgeons  which worries me a bit but still have no idea what is happening which i find this fustrating but hope it went better for you and hope you found out whatbis happening to your son i also hope i will all work out for you

Hi David  hope your well as promised here i am letting you know what happen today sorry for not letting you know earlier i was so tierd due to the sedation but the endoscopy have not shown anything inflamed which is wierd because the calprotectin is high they thought that is strange but they said that something is wrong but not known where the problem is they took 14 biopsies and now i am waiting for the results haven't found out much still in the same place they still have not ruled out cancer which worries me the most but hopefully  they will call back i  2 week time with the results