Hello, I feel silly even posting on here, so I hope it's alright! I will start of by saying that I'm a 26 years old woman, and I live with a condition which no one can seem to pinpoint. But I've been in excruciating pain for the past 5 years or so! Mainly in my arms and legs! I also get pain in my hands, fingers and butt! it feels like a bone crushing pain like my bones are basically crushing in on themselves. some days I can move my arms and some days I cant, most days I can barely walk and if I dare walk up stairs or do anything with my legs even having intercourse with my partner I'm basically crippled for about a week with the pain in my legs and butt area. I'm in chronic daily pain and it's so bad in my legs its riddiculas!
I use a wheelchair and a stair lift. Over the past few months or so the pains gone into my feet and most days it feels like I'm walking on smashed up feet! the doctors are baffled the only hope I had was last year they found i had vgk antibodies which where sky high but that was it they didn't know what that could be.. anyway the bone pain makes me think possible arthritis or something?!
In all these years I've never had any scans of my legs or arms or anything other than numerous neurological tests like a spinal tap, nerve tests ect..
Anyway, I also have two swellings.. one under my right knee which has been there a year or maybe a little longer now and another pocket of swelling under my left thigh which came a few months ago maybe nine months ago or something? I literally just assumed water retention because of the pain I go through..
Anyway I was in the bath a day or two ago and I was shaving my legs and I literally felt a hard small pea like lump underneath my skin on my left calf, it's not noticeable to look at and you have to press down to feel it but its rock solid and feels quite deep pressing around it.. as I found this I checked my legs in general and just at the end of this swelling under my left thigh I can feel another one of these rock hard lumps again pea size like the other one! Over the past two weeks I've also been extremely tired, which I normally am.. but this has been over the top can't keep my eyes open type tired no energy whatsoever all I want to do is sleep! heck I'f I could sleep for a week I could gladly do so!
So I'm just asking should I possibly be worried? I feel daft but I do have a young baby.. it might be arthritis or something else, but I just wanted to see if anyone else had any similar symptoms? thank you!