New to ET

Hello,
I am a 67 year old female and was diagnosed with ET 3 weeks ago and have been prescribed hydrea and asprin. Like previous posts I have suffered "send one insane" itching for years, and have been attending a dermatology clinic for 2 years where eventually blood tests revealed ET. However, just as I was diagnosed I started a light therapy course to alleviate the itching. My haematologist told me this is OK but I am worried about it. I also didn't realise that I shouldn't drink alcohol and have continued to do so, so am worried about that. In fact I have been trying to carry on my normal life which includes running 3 times a week, but is becoming more and more difficult. Also I am having trouble sleeping and so am frequently tired. I have now caught a cold and wondering whether I should contact the 24 hour advice line. Am finding it all a little bit overwhelming and scary.

  • Hello Jrunner,

    I'm sorry you're finding things a lot to cope with. I think you should contact your haematologist about whether any changes to your lifestyle could be made to improve your energy levels and sleep patterns. It might be best to reduce your alcohol intake, but the haematologist would be the best person to speak to.

    All the best,

    Moderator Anastasia