Lung cancer

Hello everyone,

I have a large mass in my left lung which, from the CT scan, my consultant suspects to be a carcinoid tumour. This time two weeks ago I was getting fed up with my “flu” which had been gong on for 6 weeks,  so I went back to my GP the next day and was sent for a chest X-ray..after that, as for many of you, I have gone from one world to another rather quickly and totally unexpectedly. 

I am 51, a mother and wife. I mention this because the effect on those I love is so far the hardest bit of this for me.

I have had a bronchoscopy, a PET scan a head and neck CT scan and a lung function test and now I am bracing myself for the results and the treatment plan which will be delivered in the next few days once the doctor has looked at it all.

I am “ lucky” because this is all happening quickly for me, but the waiting and not knowing is very very hard. I have headaches and jaw and toothache from involuntary clenching of my teeth and jaw. All these symptoms are worrying me because of the head and neck scan.. and so it goes on! 

I have actually had cancer before. 10 years ago I had a stage 2 melanoma removed and on the subsequent CT scan, lesions in my liver were detected. After a similar bunch of tests and scans the liver lesions turned out to be benign hemangiomas so I was back from suspected stage 4 and obviously hugely relieved. For a few years after that I suffered from health anxiety but I managed to conquer it and all was well ... until this. If anyone is struggling with health anxiety,  I know how real and debilitating it is.

I am looking for support and to offer support to anyone in a similar situation.

My best wishes to all of you 

  • Welcome to Cancer Chat Anotherspring although I'm sorry for the reason you're joining us.

    I'm sure our members will agree that the waiting really is the hardest part of this process. I hope this information I've found online about waiting for news will keep your anxiety at bay for a bit but hopefully some support and kind words from our community will help as well.

    Wishing you all the best with your results and treatment plan Anotherspring.

    Kind regards, 

    Steph, Cancer Chat Moderator

  • Thank you, Steph

    I watched the video and later managed to focus a bit on a crossword in the waiting room with my husband while we were waiting to go in for the appointment. Very tough.

    The outcome was a bit mixed but mostly good as the surgery is still on the table. They will need to do a biopsy and rule out it being a secondary cancer though,  when I’m under the general, as they haven’t been able too diagnose the type of cancer it is from the bronchoscopy. They will only proceed with the operation if it’s the right type of cancer.

    Fun times!

    Joy

  • I have secondary stage 4 liver cancer and to compound it the primary is of unknown source (CUP) Things for me are not looking good. Far and away the thing the troubles me is having to involve my daughters and husband. I would honestly go away and deal with this alone. Im so very lucky to have such a kind loving family. Nothing is too much for husband and my two grown up daughters. It's just sooo hard to see all this breaking them, so I totally understand how you feel. I feel it has changed us all and they didn't ask for all of this. And the anxiety issue I can recognise and I totally get. I normally have low blood pressure but just now it's really very high.

    Good luck I don't know how you lessen the impact if you find out please let me know x

  • Thank you for your good wishes and sharing your situation.

    My heart goes out to you.

    I suppose there are never any guarantees in life and our loved ones are learning that. 

    If I think of any way of bearing it better I will definitely share it and in the meantime I am wishing you as many calm and peaceful moments you can get. I am thinking of you. Stay in touch.

     

    Joy 

  • Just wanted to say hello Joy. I am 49 and on a 2 week wait for suspected LC. Going to pieces a bit.

    Sorry to hear if your diagnosis. You seem quite calm and I am in awe of that

    Andrea

  • Hi Andrea,

    I'm sorry to see you here but it's a good thing that you are reaching out for the support you need. I will do all I can to help you get through. I feel like it's a new way of life which I didn't choose and have have neither the skills nor equipment for this. If I seem calm,  it's probably because half the timeI can't believe it's all true and I'm not just going to wake up!
    The waiting is the worst bit by far. The anxiety during that period created some of the worst symptoms for me. As bad as the tumour at the end and almost as bad as the treatment...so far! So just hang on in there, because even if you don't get the result you want, this time of not knowing might well be the worst time and it's going to pass. That's something I do know! 

    Andrea, what stage are you at with this? Have you had any diagnostic tests done yet and what are your symptoms? When are you due to be taken off the hook and find out where you are?

    I understand of course if you don't want to share the details. I will be thinking of you anyway and please get in touch any time.

    everything crossed for you

    Joy x

  • Hi 747,

    Im wondering how you are? No need to reply but I'm thinking of you and your family. My boys seem to be coping well and I think my husband is alright. We can still all smile even if there are bad bits. Hope it's the same for you.

    wishing you all the best

    Joy x

  • Hi Joy

    Thanks very much for replying.

    I coughed up some blood 4 weeks ago. As I am over 40 and a smoker this should have prompted a 2ww referral but GP didn't do it. Sent me for x-ray which I had last week and was clear. Also sent me for bloods. Because I knew the NICE pathway (I Googled it) for this symptom, I went back to see a different GP on Monday and he did the 2ww referral. Bloods were in then and all fine. 

    Got a call in last 30 minutes from hospital offering ct scan this Thursday at 12.40. Didn't expect it that fast so that's good. They said they'd then book me in to see the consultant if anything showed up. My Dad aged 73 is going to take his little girl to her scan bless him. Don't know where I'd be without them at times.

    Was struggling and in tears earlier as had to talk to headteacher where I work about not going in and she has no empathy whatsoever. Really upset me. Agreed with her I'd try to go in on Thurs as she basically bullied me into it. Kind of enjoyed calling just now to say I can't because that's when scan is!!

    You are very kind to reach out to offer me support through this especially with your own diagnosis to deal with. It is very much appreciated. 

    The waiting IS a kind of limbo so at least I know we are progressing 

    Thank you again. May I send you a friend request? I think you can do that on here.

    Best wishes

    Andrea

  • Hi Andrea,

    I have accepted your friend request and will message you

    Joy x

  • Andrea

    I've read your posts and my hubby finds out tomorrow the exact diagnosis. 

    We've been told it's stage 4 lung cancer that has gone to liver, but tomorrow is the oncologist to discuss treatment.

    He went to GP on 9th Jan for breathless and cough and we've been back and forwards with CT and liver biopsy as well as lung drain and xray. Seems to have been forever but nearly there

    Hope you are getting there and getting answers

    Jo