Newly diagnosed with Triple Negative breast cancer

Hi

I'm Linda and I've been recently diagnosed with Invasive ductal carcinoma Triple Negative breast cancer. I went to my GP with what felt like a thickening in my right breast, she like me said its probably hormonal as I am 48 and in the peri menopause stage. She referred me to the 1 stop breast clinic where they did an untrasound, mammogram and then a core biopsy. The 10 days I had to wait for the results were 10 of the longest days ever.  

Mine is just in my breast with no node involvement, my consultant said its curable but because of the size of the lump which is around 4cm he would like to do chemo 1st, followed by a lumpectomy then radiotherapy.

I met my oncologist yesterday for the 1st time which i was dreading, as soon as i walked in I burst into tears. She was lovely,she gave me time to tell her all my worries and anxieties then answered them all allowing me to ask questions in between, I left there a different person than when I went in but today I am a tad anxious again, I know this is normal as it is the unknown and this whole thing has happened so quickly in the space of 5 weeks I have been diagnosed and have a treatment plan, thank god for our brilliant NHS.

I'm going to be starting my treatment in around 3 weeks (just in time for xmas) i'll be having 3 of FEC then 3 of Docetaxel every 3 weeks, I know I will probably have another mini melt down before I have my 1st as I am worried about possible side effects. 

We as a family have just been through exactly the same with my mum who was diagnosed with Triple Negative in Feb this year though hers had spread to one node so she has surgery 1st then had chemo / radiotherapy. Thankfully she has now finished treatment and is doing really well. I just feel guilty that my family now have to go through this with me.

I know from reading posts on here that everyone is so friendly and supportive which is great for us that are just starting our journey.

Linda x

  • Hi Linda  I am thinking about you. I hope you get lots of help and advice from others on here who have been diagnosed and gone through treatment. I am age 47 and perimenopausal as well got the breast clinic on Tuesday. So thank full to the nhs that we are blessed with. Hope you get all the support and help you need and your treatment goes well.

  • Hi Linda, 

    I'm sorry you've found yourself here but it's great that your mum is well and that you're curable although I'm sure it's still scary.

    It sounds like the staff were really supportive which is great and allowing you to talk through your worries. 

    I'm very early in all this and have my appointment at the breast clinic on tuesday morning after discovering a lump about 7 weeks ago now. My anxiety is quite bad at times, I can't get it all out of my head but also feel that whatever happens I just need to deal with it as best as I can. 

    Hope your day is easier tomorrow xx

  •  

    Hi Lindyluu,

    I am so sorry to hear that you are experiencing breast cancer for yourself, so soon after your mum has finished her treatment.  I did the same with my mum, who also had breast cancer. That was 10 years ago. I have had 2 bouts of it since, but am thankful to still be here.

    Diagnosis, treatment and aftercare are improving all the time. There is just no comparison in the care that my mum had and that which I have experienced. In fact, throughout the 10 years since I was first diagnosed, things have moved forward again. Many people are now living with breast cancer rather than dying with it.

    It is reassuring that your consultant says that it is curable in your case. As you rightly say, we are so fortunate to have the NHS in this country. I know that treatment is not something that was on your Santa list for Christmas, but you are fortunate to be starting treatment quickly and, I sincerely hope that this turns out to be the best Christmas present ever!

    You will know the score from your mum, but it doesn't make it easier when it is you who is going through it all this time. You have a hard road ahead of you, but it is doable and, we are always here for you.

    Please keep in touch as you travel your cancer journey.

    Kind regards,

    Jolamine xx

  • Hi Scottishwifie

    Thanks for replying, I hope all goes well for you at your appointment on Tue. 

    Let me know how you get on x

  • Hi Oddsockmum (great name)

    I'm sorry you have found yourself here too, I haved to say in my few days here I have seen people offering so much support to others. 

    I totally get the anxiety bit, I did nothing but over think for the 10 days I was waiting for results from my biopsy but like you i also knew whatever the outcome was that I had to face it head on and deal with it.

    I hope everything goes well at your appointment on Tue, its such a relief once you get there knowing things are going to be sorted. Try not to worry, I have taken to doing my xmas shopping and wrapping just in case I feel awful once chemo starts, never been so organised in my life! lol

    Let me know how Tue goes.

    L x 

  • Hi Jolamine,

    Thank you so much for your kind words, I love that you beat this awful disease and are here to give people like me support through our journey. 

    I know I am very fortunate to be starting treatment so quickly, and you're right it wasnt on my xmas list but there would never be a perfect time to have it.

    Supporting mum through her journey has helped me but I find myself remembering her bad days after chemo, I have to shake myself and say yes she was suffering from nausea and fatigue but look at her now :)

    L x

     

     

  •  

    Hi Lindyluu,

    I agree that chemo is hard. Having seen the effects in your mum, you know how true this is. Fortunately, your mum is still here and now doing well, so you have also seen the good side of this treatment.

    Here's hoping that this time next year you will be looking forward to a much brighter Christmas along with your mum.

    Kind regards,

    Jolamine xx

  • Good luck today, hope all goes well at your appointment x
  • good luck, hope your appointment goes well today x