difficult situation mum with stage 4 cancer

Hi all, my name is Elina

My mum was diagnosed with stage 4 adenocarcinoma of unknown primary 3 months ago.

We haven't been given a prognosis as the doctors never located the primary source of the tumor but it has now spread to her lungs and lymph nodes.

Over the last weeks she has been rapidly deteriorating and can barely walk now. She has also developed pains in joins in addition and have been prescribed Oramorph, but hasn't started taking it yet.

She is renting a tiny room in South West London from a landlady who is retired and is always in the house so when I do visit my mum I can't stay there overnight as there is simply no room for me to stay.

I am her only relative in the UK and I live on the opposite side of London so it takes me around 2 hours to get to hers.

When she was first diagnosed I thought about renting a place for both so it would be more convenient for carers and guests to visit but I couldn't find anything I could afford and it seems like it might be too late now..

My aunt wants to visit her while we still have time but I can't see how it might work.

On top of that I am getting a conflicting information regarding hospice care. When mum was first diagnosed she was told that she will be cared for and move into a hospital when she feels like it's time to do so but she is already very weak and can't do most things by herself but she is still being told that it' too early.

She currently doesn't have anyone else helping her, she has no friends in London and I can only visit her once a week as I work full time and study.

It's all very confusing and frustrating and I am starting to worry about my own mental health..

I would appreciate any help and thank you in advice

 

 

  • Hi there, welcome to our friendly forum, you shouldn't be dealing with this on your own.  Mum should have a dedicated cancer nurse, in her information pack there will be numbers to contact them.  Let them know what's happening and get some help.  Also get Mum to write a letter agreeing to you being able to speak for her and lodge it at her GP practice.. Just write, I would like my daughter (name) to deal with medical matters on my behalf.  Then her signature.  Post again if you're still struggling.  Hugs your way,  Carol