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hi everyone , my name is joy and my husband has been diagnosed a  3/4 grade aggressive tumour of the brain back in may this year ,up until then he was walking talking and quite fit , but a sudden fit took us to hospital , thinking it was tia ? but then after a scan he was said he haad a mass in his mobikty side (left) of his brain , after 2 weeks and abiopsy he was diagnosed with the aggressive tumour ,. we were told that if radiotherapy does not work hel have about 6 months to live , if it does he could have 2 years ,hes had 30 rounds of radiotherapy since , but , slowly he is disapearing from me , hes lost all his strength from top half of his body and he cant even walk or stand without me holding up,were due to haave a scan to see if the therapy has worked on 15th nov .I dont know what to think anymore , hes sleeping most of the day , only waking to have his tablets and the smallest of bites to eat , i sit and watch him struggle with a chest infection now aswell , which hes had for about 6 weeks , along with diabetic ulcers on his feet , im at my wits end worrying if hes even going to get to have his scan .

  • Hello Joy

    I'm so sorry to hear about your husband's diagnosis and how things have deteriorated over the past few months. 

    Given his diagnosis, the treatment he's been through and his other health problems it sounds understandable that he's so sleepy and struggling with his mobility. 

    You mention that he's had the chest infection for a few weeks along with the ulcers. Are you receiving any support at home to monitor your husband and/or help care for him? It's worth talking to his GP if you're not. There will be things that they can do to help you both. For example if he's struggling to eat the GP may be able to prescribe high nutritional value supplements to boost his energy. If he's struggling with his breathing from the chest infection the GP may be able to provide additional medication, equipment or arrange for a specialist to visit at home. 

    If you want to talk things through with one of our team of nurses for some advice and support then please do give them a call. They're available Monday to Friday 9am to 5pm on 0808 800 4040. 

    Best wishes, 
    Jenn
    Cancer Chat moderator

  • thank you Jenn for your reply , we do have some great district nurses and other help which is a god end cos i can talk to them abut anything concerning my hubby . The worse thing is i think im losing him by the day , hes sleeping mst of the day now and when he is aawake hes not always "with us " ? he hardly eats anything and to me that is one of my worse fears , hes drinking fluids tho , but now hes got a reccuring thrush infections in hid throat which is debilitating him taking his tablets now is getting an ordeal , yesterday i felt as tho i hit a wall , i just couldnt control my emotions but he didnt see me tho , but slowly i see him disapearing b4 my eyes , i really dont know how im going to cope with this , we have been by each othrs side for 42 yrs hardly a cross word and done everything together , where there was one of us the other would be close by. ive done all my growing up with him by my side , i really do feel alone at the moment .