It's all new to me

Hi all, 

I had a 'well man' test earlier this year (July) Whoops what's PSA? Oh.. prostate cancer then! Biopsy, bone scan MRI. 
Upshot cancer had spread out of the prostate and due to me having suffered from crohn's disease, no radiotherapy. So it's 6 sessions of chemo over 18 weeks. Starting tomorrow (looks at the time..TODAY) :| Scared: No! Apprehensive: A little! Attitude: Positive! Main concern: Apart from my wife worrying about me; a negative reaction to the chemo :/ But time will tell eh :) 
What has surprised me the most, is the speed it has taken from being first diagnosed to treatment. If I remember correctly it took about 18 moths for my crohn's disease to be fully diagnosed and in the end the treatment was only tablets. But that was in the early 1980's. Fortunately for me, my crohn's has not hindered me as much as it does other people. From the first flair-up to the next took 20 years!
So there you go.. just a little about me... Hopefully when I have finished the treatment, I will also be able to put new patients mind at rest with my experiences of treatment, as reading some of the posts here have eased my mind. 
I wish you ALL good luck with your conditions and a speedy recovery

  • Hi sonofjoe, welcome to the forum the club nobody wants to join, as well as joining the prostate club, I'm afraid you'll have to bring your own food and drink but don't worry talking is free as well,, WELCOME.. Billy 

  • Hi Sonofjoe, I have only just joined today, as yesterday my partner was told he had Single Cell Lung Cancer, like you he had an MOT at the Doc's about 5 weeks ago, since then been a whirl of tests culminating in being told yesterday he will need Chemo. Straight away he stated he didn't want treatment with Chemo as his only experience of it was watching his mum die years ago after having several cycles. I have told him Chemo has advanced so much over the years, so I will be following your progress if thats ok. I really want to be able to give him the realities of taking the Chemo, because without it he will die very quickly. So fingers crossed for you.

  • Hi, so sorry to hear about your husbands condition.
    I too watched my mother die of cancer in 2002, she collapsed on the roadside, rushed to hospital, diagnosed with stomach cancer, she was aged 82 and was not offered chemo, all she got was tablets and morphine patches, 6 months later she died. I don't know why she wasn't offered chemo? Maybe the cancer was too far advanced! 
    In my case after the biopsy I was told the best option would be to have the prostate removed. But then we got the results from the MRI scan and I was told it would be a waste of time removing the prostrate as the cancer was already outside and spreading. The specialist told me I had two options; radiotherapy or chemotherapy. He told that because I am a suffer of crohn's it would be very dangerous to have radiotherapy, so I have been left with the one option. Which, I am happy to undertake. I have a friend who has had breast cancer and she has told me chemo was a doddle.
    My wife too has joined all the forums to get facts.

    I hope you can persuade your husband to have chemo as I’m sure it has been vastly improved over the years, and you also get some good useful advice from people who have experienced your husband’s condition.
    I wish you and your husband luck <3

  • Thanks for the welcome Billygoat :) 

  • Don't know if you've found my details, my psa was 1581 gleason 8 stage 4 it went from the prostate to the lymph nodes, spine, ribs, pelvis and a lung that was Feb 2016, no operation possible with it spreading to much, if you want more info please ask,...... Billy 

  • Well we arrived on time a good 15 minutes before the appointment, but that’s me I hate being late for anything. We were told at my assessment that there could be a back log and we might have to wait, which there was, and we had to wait an hour before it was my turn. Everything went smoothly from start to finish, No pain, no bad feelings, no nothing! Half-way through a pharmacist came with a truck load of tablets. To be honest I’m glad my wife was with me however, as we were there for almost 3 hours for what (I would guess should have only been 1 ½ hours) I suggested maybe it would be better if she stayed at home for the next session. Don’t get me wrong its because it seemed a waste of time for her. (she didn’t think so ) But understood the practicalities.
    It's now past 10:30pm and I feel fine, except I was a little tired earlier on and had an hour lay down. I also had a good meal and my appetite was normal.
     
    If anyone wants to ask me any questions please feel free to do so.

  • Two days on from my first session and feeling good. Had the best nights sleep last night since the start of the week. Woke up this morning with a slight back ache, but nothing to what I've had before. I have been having some problem with thermometers! From the one I got given at hospital I could not get the temp over 35.5? I mentioned it to the nurse when I went for my chemo and she went away and tested it and said she got a temp of 37! I tested it again later that night and got a temp of temp 35.2. Yesterday I spent £11.99 at Boots on a new one but still only got 35.4. I posted the problem to the 'Ask A Nurse' as I was a wondering if I should be worried. Anyways, this morning I took my temp and it was 36.4 which I'm happy about and relieved.
    I have noticed that I am getting 'Chemo Brain' though, which I find comical…at the moment, but that might change!!!
    Onwards and upwards :) 

  • Mabey it's because yesterday I did too much or, it's the drugs! It's now been three days since my first Chemo. Yesterday, between 10am and 12 noon, I went for a woodland walk in my local area to take some photographs, walking around quite muddy and hilly ground, although I didn't find it tough going. I got home, edited my photographs. By about 4pm my whole body was aching. Not all at once, first my shoulders and then my back then my legs and so-on. This persisted all night. I woke up this morning with some slight aches, but they have now dispersed. 
    Went to my doctors to have my newly prescribed repeat prescription drugs from my Oncologist, to have them re-directed to my local pharmacist. 'What drugs?' 'You have nothing on repeat!'
    Don’t you just hate this when it happens!

     

  • Thursday 07 November

    Had to ring hospital as my temperature was on the increase all day. My temperature increased throughout the day and went over 37.5. I rang the Queens Centre. At 20:30 they told me to attend. Where I was hospitalised. Apparently, I had chemo associated colitis and febrile neutropenia.  (an abnormally low number of neutrophil granulocytes, a type of white blood cells in the blood.)

    Friday 08 through to Monday 11 November

    I was in the Queens Centre; I don’t remember much except that I was on an IV 24/7. But Saturday I was beginning to feel a little better and by Sunday night they removed my IV. On Monday I was discharged

  • Been feeling ok this past week except for the diarrhea usually at 5am!! Hahah half my hair on my head has gone and the other half has turned a nice shade of silver grey. I'm hoping that when it comes back it's that colour...makes me look quite distinguished :) 
    Today is my second cycle for chemo...providing my bloods are ok.