HI looking for some support.
My brother was diagnosed with a grade 4 brain stem tumour in November. He hasnt giot out of bed since August, sleeps alot, gets very anxious and needs help with toilet needs and feeding. We ate worried we will not know the end stage as we have limited.awareness or support. He started palative Radiotherapy in December and due to the decrease in size he started Chemo in June but was only able to do one round due to his fatigue, he was then discharged for Palative care in August. We as a family have been dealing with all.his care needs and have just recently asked for a Care Package. We have been waiting for 4 weeks on this being put into place and have been offered 15 minutes 3 times a day Monday-Wednesday. We feel.my brother has been failed dreadfully the only support in place is the District Nurse visits once a week, Marie Curie sit for 2 hours per week for rest bite to give the family a rest, the Hospice Nurse hasn't been seen in 3 weeks and the Social Worker has not been.very helpful. If anyone can give us advice on what to look.for when he is nearing the end of life. Thankyou
