Expecting the worst, trying to be prepared

Hi, I’m 50, had a routine mammogram 2 years ago with a call back & ultrasound scan where I was told I did not have breast cancer (no mention of calcifications). I was called back 3 weeks ago for another mammogram and called back this last Tuesday told that calcifications had been found again in the same area as before just more of them in a cluster so I had magnified mammograms & a gun biopsy. I’m now waiting for the results appointment & getting increasingly anxious. One moment I’m in control & thinking ‘ok, if I get bad news, I can handle this, I’m strong etc.’ & then I flip to ‘I’m going to be one of the unlucky ones that get the worst diagnosis, the most aggressive, metastatic malignancy etc.’ I can’t help dwelling on the consultant saying ‘I wish you the very best’ with a grim tone & expression to match. She drew a sketch of what she found suspicious & it seems like she was showing me the type of calcification that is most often malignant. Also, I have an uncomfy armpit lymph that was sore before the biopsy but I can’t remember if it was before the first mammogram. She had a look at it on the ultrasound but didn’t say anything. I have a sensation of fullness in my breast very similar to when milk comes in. Does that sound like anything sinister? I know I’m wasting my energy speculating & stressing out won’t change anything. I’m lucky that, although I am a single mum, I do have a very supportive partner (we don’t live together). I’d like to fast-forward to my appointment on Tuesday - can anyone tell me what is likely to happen next & treatment types/timescales if it is malignant? Thank you. 

  • Hiya! I can’t help with it the calcification situation unfortunately. I went to the doctor with a lump I had found and she told me to keep the whole day free when I got my hospital appointment (the first sign I thought ok she doesn’t like what she’s feeling). I had similar with my scan a and biopsy, like I was getting the sympathy look without actually being told anything.

     

    i drive myself crazy waiting for my results. The best thing I did was tell myself ok it is cancer, well take it from there and deal with it. When my appointment finally came and the consultant indeed told me it was cancer - I wasn’t hit with shock. I had a massive wave of calm wash over me and it has continued ever since. I’m 5 days after surgery and waiting for my next appointment to see what further treatment I need.

    i think if you prepare yourself for the worst then if it’s good news it’s brilliant and if not you’re prepared.

    try not to be scared of it. If it is cancer then you’ll have answers, treatment and a whole world of support. If it isn’t then well fantastic!

    My personal experience was while I had my results I was booked in for surgery and fully informed of what to expect next. I’ve a 2 week wait between surgery and my next appointment for the pathology results and treatment steps.

    The best of luck to you and I hope it’s good news! Please don’t drive yourself crazy overthinking in the meantime xx

  • Thanks Lesleys - your positive attitude is what I’m trying to get to = a level of acceptance & then I can avoid anything dramatic & just get on with treatment. How long was it between your diagnosis & surgery? How are you feeling now (emotionally?) Have you don’t anything like changed your diet? 

  • I had 3 weeks between diagnosis and surgery but I’m only stage 1/2 double hormone positive breast cancer.

    I honestly am completely fine emotionally. If I start to worry again I remind myself I already know what I’m dealing with. I feel like people are waiting for me to crack because I’ve been a bit too calm. I think because I had the week of driving myself crazy I came out the other end calm.

     I haven’t done anything to change my diet etc, I like to think I have a nice varied diet and im happy with that. 

    Just think of it is anything then it’s been found and can be treated xxx

  • I completely understand about the people expecting you to crack , I’m even like that with myself  - I even told my boss because I was down to go to a very contentious meeting & I thought if it gets shouty then, the mood I’m in, I might go full roary lioness on them & it won’t end well, he agreed it was best to re-schedule haha. 

    You’re an inspiration to me Lesleys - I’m sure your positive, calm mental state can only help you, I’ll keep that in mind, thank you X

  • Hi, it’s so reassuring to read your post as it echoes lots of my own thoughts/family situation - I’m just keeping as busy as possible until my appointment on Thursday.

    Expecting the worst is exactly where I’m at too - that said  I’m sending you all my positive vibes for Tuesday xxx

     

  • Thanks so much Flou! Right back at you too! I’m realising that there is a sort of Dunkirk spirit here - there’s a host of strangers rooting for each other.  I’ve only ever been on the remote edge of cancer or any serious illness, my family have been extremely lucky. That’s another reason I’m expecting the worst because, statistics & it’s probably our turn in the maelstrom. 

  • Hi, how did you get on on Tuesday? xxx

  • Hi Flou, thanks for asking - likely DCIS, very early catch so the consultant thinks all contained. I have to have a larger area of biopsy to determine Grade & then which treatment pathway. Whilst it wasn’t the best news, it was far from the worst and I felt relief that it is early especially because my armpit lymph is sore. I asked him about the let-down reflux & he hadn’t got a clue what I meant which I found bizarre. 

    Fingers crossed for you! X

  • Early is good! Hopefully it's eased your worry a bit xxx