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Cancer of the bile duct

gordonC
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Hello all, this week I was diagnosed with cancer of the bile duct. I'd been having pains in the right side for a while and ultrasound and CT scans narrowed it down to the bile ducts in the liver. I've been told it is inoperable and chemotherapy is the most likely treatment, depending on the outcome of a biopsy that I'm awaiting. I'm a bit apprehensive about it all and at the moment am keeping going with painkillers and a loving and supportive wife! I hope someone reading this has had a similar experience, and are perhaps further down the line than I am, so I can get some idea as to what to expect in the coming months.

  • Offline in reply to Clocopop

    32 that's so young and rare for his age most people are over 65 I'm heart broken for you espeically with a little one involved. How cruel life can be. This fatigue seems to be common with the cancer my father in law is permanently exhausted hes 10 months down the line that we know of.  X

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    Hello GordonC,

    Im sorry to hear of your diagnosis. My mum was diagnosed with inoperable bile duct cancer in May 2018. She had 6 rounds of chemo (2 wks on, 1  week off) and in scans last Nov the cancer hadn't spread. She seemed to suffer more symptoms after finishing chemo and has started to gain a little weight. All in all she has been well, her oncologist has said she looks great, and mum says she feels fine. So all seemed well, but today she had been admitted to hospital for tests as for the last 5 days she has had blood in her stools. Black blood. She says her stools are totally different to usual. So now we wait to see what will happen next. We are concerned for colon cancer as she has been doing well.

    Good luck for your next steps, I hope this reflects what could be a more positive experience than expected. We are totally lost as to what to expect next.

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    Hello All.

    I'm Alex - one of Gordon's twin sons. I just wanted to provide an update on my dad. He sadly passed away in the very early hours of this morning from complications with his cancer. On 7th October he was experiencing increased pain and had further CT scans which confirmed the tumour had grown and additional scans found fluid build up in the area which was identified as Blood. The planned biopsy was undertaken on the 10th. Sadly he suffered a serious stroke in the very early hours of Sunday 13th Oct and was taken to hospital where the medical team were too concerned about additional bleed out from the cancer to treat the stroke in the normal way so limited treatment was permitted. He did have some improvement but around 16th it was confirmed that the cancer had spread and he was terminal. The plan was to get him home to live out his final 3-6 months in the most caring place possible which we, as a family, were all geared up and keen to ensure. On Thursday 24th Oct it was advised that the cancer was aggressive and he was put on fast track to get him home asap. Sadly, he deteriorated on Friday morning. We, the people who loved him the most, were there with him. 

    I would like to thank all of you who responded to his post and offered him your words of experience to ensure he was as prepared as a person could be to face the fight that ultimately, though fought hard, he wasn't able to beat.

    I wanted to let you know all this because you were a community that he had become part of and communites are a great thing.

    I wish all of you the very best and hope that you all remain positive regardless of what obstacles are put in front you...... just like my father.

    Kind Regards

    Alex Watson

     

  • Offline in reply to alexanderC

    Hi Alex,

    Thank you for sharing. There are never the right words to provide comfort in these times but I'm very sorry for your loss. This community is so very important, even more so for the rarer cancer so we don't feel alone. Thank you for highlighting that. I hope it brought your Dad the insight he wanted. 
     

    Take care,

    Chloe

  • Offline in reply to alexanderC

    I’m so very sorry to learn of the loss of your Dad.

    I really have no words, there aren’t any, sending much love to you & your family xxx

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