Wait to hear if I have lung cancer

Hi there

I’m a 41 year old man, who was referred to a respiratory specialist due to a persistent cough and other symptoms associated with pneumonia. I’ve had multiple x-rays, CT scans and they’ve taken enough blood from me to float a ship! Nothing has come back conclusively, nor has a bronchoscopy nor lung function tests.

Because of this, my specialist has told me that my lung shadow could be cancerous, as my symptoms are typical for lung cancer (amongst other things). I had a PET/CT scan yesterday and am having a lung biopsy on Monday. I’ve also been given a  cancer nurse as a point of contact.

This has all left me very worried and scared. I have two young children that I’m petrified will grow up without a father, just like I did. Has anyone been through this, or can give me any advice on what to do? I’m trying to be optimistic, but this is mainly just a front to stop my wife from crumbling as if I wasn’t, she would not be able to cope. In reality I can barely sleep, or think about anything else. My day-to-day health is deteriorating, which I think is due to all the stress and worry. 

  • Hi there, I'm the wife of a lung cancer husband.  So he's 73, a lot older but after treatment he's holding his own.  So I've been through everything you're experiencing at the moment, worrying gets you precisely nowhere and as you're beginning to realise affects your health.  Men always want to be stoical and this doesn't help, discuss your feelings with your wife and she'll support you, us women are a lot stronger than you think!  You've also got a cancer nurse, talk to her about your concerns, that's why you have been given one, they talk about anything, money worries, work, what will happen because they're trained in this field of cancer.  Take each day at a time, get through them one at a time and don't think ahead until you have a full diagnosis.  Don't Google, on this forum there are nurses to call, moderators who will point you in the right direction regarding health issues, Google is a general site which covers everything so you don't get a true idea of what will happen.  Good luck with your appointments and keep in touch with us.  Best wishes, Carol 

  • Thank you for replying.

    I told my wife how I was feeling and she did, to some extent, fall apart. But she pulled hard on her circle of friends and is now in a much better place.

    I am very thankful for that as I’ve had the results of my PET/CT scan today and I have what looks like what they think could well be a cancerous growth in my lung and the adjacent lymph-node. They are also worried about behind my nose, which has shown similar characteristics on the scan. They have cancelled my lung biopsy, as they need to check the lymph node first, so I’m having some other procedure, followed by something else and then so on and so on.

    I wasn’t really paying attention, as I am devastated. I know the survival rate for lung cancer is low, and even if I do, the living 10 years rate is about 5%, so it is likely that my kids will not have me around for much longer. I just don’t know what to do. Do I give up and enjoy the time I have left, or fight and have a horrible time for quite possibly no benefit?

  • Thank you for letting me know what has happened.  I can give you some good statistics, firstly we were guven a 7% chance of survival, stage 4 and in lymph nodes so no operation.  Our oncologist looked us directly in the eyes and said if we were prepared to fight she would do everything in her power, the tumour was shrunk by half, has stayed dormant and we went up to 70% survival rate.  So fight this as much as you can, it's not going to be easy but everyone  will be in your corner and doing everything they can.  You're a lot younger than my husband but we have young grandchilden who he wants to see grow up.  Use your McMillan nurse, she will help with finances, emotional traumas and your wife can call them for help and information at any time.  Don't despair, a positive attitude goes a long way, we take it one day at a time and that has served us well, thinking ahead into the unknown will not help, live in the moment and keep your head up.  Good luck for getting back on the right track.  I'm on here nearly everyday so I'll help if I can.  Carol