Hi, my dad has been diagnosed with stomach, liver and lymph node cancer. I’ve joined because I feel so alone, dads in a small hosp at the moment, im fighting for Palliative Care at home, I had lived with him for a month before he was taken Into hosp because calcium was leaking from bones and he was in so much pain but I don’t want to be his carer, I want to be his daughter, I’ve had to do things i never thought I would
for my dad!!!! what he deserves is 4 carers per day and 2 spot checks!! Us as a family are staying
over at night as he’s scared to be alone ..... He’s told me he doesn’t want to die in hosp, wants home. We are now waiting for a social worker to get in contact and see what is suggested, if there are carers available or shall we pay for them!! The changes in him are just incredible. He now would rather lie down and not sit in chair, every bump he feels in wheelchair or car, hardly eating or drinking. He’s not sleeping well either now and looks exhausted!
Im petrified of when he comes home, as to what to expect when things turn bad, will a nurse stay or am I on my own, I don’t think I will be able to cope with it,
how do you cope with it all, when there’s not long left ?
Thank you