We have had a new diagnosis for my 20 year old son, after a long 5 months back and forth to doctors and hospitals, 3 months ago following a biopsy we were told its not a cancer. Therefore a little frustrated but I have faith in the NHS for the best treatment. 

He has an unusual and rare form called rhabdomyosarcoma, which is more common in young children, 

We are now waiting for a appointment ASAP (I hope)

He is a little innocent to what this MEANS for him, which is good and until we have been to London I don't know what to tell him.

This is our story so far, anyone else had similar