Just been diagnosed, BC - triple negative

Hi there,

I joined the group a couple of weeks ago after my scan and biopsy and found it useful and supportive reading what everyone is going through and their advice whilst we all face the C word!

I've now received my diagnosis and plucked up the courage to say 'HI!' :)  I'm still reading up on all the booklets i've received. A strange feeling really counting the days down to your appointment like a holiday without the excited feeling and now coming home with loads of booklets and not holiday brochures.  i feel strange that i have a sense of relief but a strange relief as I do have cancer and not the all clear.  Does anyone else have these mixed feelings?

I've been diagnosed with stage 2, grade 3 and triple negative.  Well from my understanding, i'm waiting for the confirmations to all come in the post.  I remember them saying 18 weeks chemo, 5cm tumour, lymph nodes, masectomy, radiotherapy....

I still feel very detached and like they are talking about someone else as i dont feel ill.  I was hoping to be pregnant :( so feel very sad tonight that is unlikely to happen now with my diagnosis and that i'm 42.

So mixed feelings all around tonight. 

Mich x

 

 

  • Hi Ladies, 

    Good to read your all doing well, even if your a bit weaker than you were, that's normal, chemo is very stront toxin and it's effe Ted your whole body so give your bodies time to recoup ️

    I've not been so good, my skin mets have spread quite badly and my bad arm is swollen because of the mets under my arm ristricting flow and pressing on nerves.  I'm booked in for a nerve block to the arm, can't wait to get that done  

    First chemo treatment, a trial, didn't work, so once I've had block done my oncologist is going to try Cape, I hope it doesn't give to many side effects, its tablets again so no hair loss,

    But it is what it is,  I'm so angry with my crap body, every diagnosis is, "unusual" I feel my body has let me down big time, but it's the only one I have, 

    I hope all you lovely ladies keep well, try and live in the now, don't let your brain steal today with worry about tomorrow.

    Love and hugs to you all. 

    Davia..... Aka  Christine. ️ ️ ️ ️ ️

  • Hi Davia,

    It's really great to hear from you, you are always in all our thoughts and prayers. I'm glad the hospital are throwing everything at their disposal at the nasty unwanted guests in your body. You are a fighter and this fight is taking longer than usual so they may have won this battle but you will win the war. Stay stong, this has been a path that no one wants to cross, but cross it you will. I'm on team Davia for sure and this disease doesn't realise who it's dealing with!!

     

    Karyn, I'm sorry you have had to cancel your holiday to France, I feel guilty telling you about mine. You certainly find out who your friends are when you get cancer. People you thought you were close to don't want to know and people you didn't think care turn out to be amazing. That's my experience anyway. You are a lot stonger that you realise and you have come so far. I've always said that friends are family just without the birth certificate so don't take to heart the negative things your dad says and listen to your friends.

     

    Mich,

    How is everything with you? I hope you are recovering well and enjoying your sea walks. We all have these dark thoughts and cope some days better than others but it's all part and parcel of what we have been through.

     

    I saw the Surgeon yesterday and she didn't find anything worrying. She said I had what she called nodula breastes ( not a medical term) so they are lumpy which makes it harder to find any sinister lump. Having said that, it was me that found the cancer!!! 

     

    Say safe and well Ladies, be kind to yourselves and listen to your bodies.

    Sending love to everyone,

    Sue xxx

  • Hi ladies,

     

    Ah what a lovely message Sue, couldn't say it any better.  Take no Sh** from anyone :)  I'm also affected by people and emotions around me and sometimes hard to switch off.  But I'm doing better at it now after the big C.  We are all warriors and put ourselves first :)

     

    Lovely to hear from you Davia, you are always in my thoughts.  Sorry to hear about the swelling, i'm guessing its quite painful.  Yeah fingers crossed for no side effects.  Ah I like that, Dont let your brain steal today with worry about tomorrow :)

     

    I've down loaded the couch to 5k app, well step one for getting fitter lol!  My aches and pains are getting better so getting there.  

     

    Sending big hugs and I look forward to our catch up.  I made a smartie cake today for my cousins husband, they were well chuffed.  Sugar overload!  Davia, you do know when we meet up I'm still going to call you Davia lol! Its a cool name.  All fingers and toes crossed for Cape.

     

    xxx

  • Ha ha ha, thanks Mich, when I joined every time I put Christine in with whatever it kept throwing it out, this user name is being used I got so frustrated I chose, Davia, my hubby is David, take D off last letter and replace with a  DAVIA LOL

    Glad your keeping well, keep on walking, couch to 5k sounds great. 

     

    Love to all you lovely ladies Davia xxxxxxxxxx

  • Hi Davia,

    It's really good to hear from you and I am so sorry you are having such a rough time at the moment.

    Your arm sounds very painful and I hope the nerve block brings you some relief from all this pain.

     

    It sounds like your oncologist is doing everything they can for you right now and I pray that Cape works to shrink those tumours.

    Please dont let this first chemo trial get you down as Sue says the war is not over yet.

    You will come through this Davia and its important that you stay strong and focused to win this fight and win it you will!

     

    Take care Davia & I'm keeping everything crossed for the Cape.

    Always thinking of you xxxx

    Big hugs xxxx

     

    Karyn

     

     

  • Hi Sue,

    Please don't feel guilty about mentioning your trip to Portugal. I'm happy for you and really hope you get the chance to get away because a break is what you need right now, and you so deserve it.

     

    I'm currently away in the Isle of Wight for a short last minute break.

    It was very much a last minute deal with very little time to pack and get organised really.

    I left on Friday and come back on 1st September just a few days before the schools return.

    After everything  that's happened though over the past 18 months I just felt I needed the break and it's done me the world of good, trouble is it's so nice on the island that neither myself or the kids want to go home tomorrow.

     

    I'm trying to avoid all negative contacts from now on and just surround myself with people that make me feel good about myself rather than vice versa.

    It always makes me feel bad when I have to do all the running like when I was going through treatment none of my family picked up the phone to ask how I was expected me to be the one doing all the running!

    I found that very hard.

     

    I'm so pleased your surgeon appointment went well and you felt reassured about things.

    You will get stronger over time I know Sue and this holiday is what you deserve so please go and enjoy and have a wonderful time.

     

    Stay safe & big hugs xxxx

     

    Karyn xxxx

     

     

  • Hi karyn

     

    Thank you so much for your encouraging words, means a lot. 

    I hope your recovering from your op. And that you get a date soon for your boob job, it's cruel how they keep you dangling  you need this done so you can start to put it all brhind you.

    Love and hugs xxxxx

  • Hello Mich, Sue, Davia, Karyn, Carla & Claire. (sorry if i missed anyone)

     

    I thought i'd pop in and say hi and hope you're all keeping well. Since finishing radiotherapy in June I have tried to forget all things cancer related and enjoy the nice weather we were having while working on the garden (in between the rads fatigue) I have a head of silver curls which seem to have a mind of their own so i just wash it and leave it to style itself lol

    I still havent returned to work as I feel I need time for me and its lovely spending time with my family after this crazy year.

    Love & hugs

    Linda xx

  • Hi Davia,

     

    I hope you are  feeling better and that your swelling in your arm has gone down now with the nerve block.

     

    Have you started on Cape yet?

    If so I hope it's not giving you too many side effects and is being kind to you.

     

    I'm having trouble trying to get an appointment to see my plastics team but have finally got one for 1st October although it could change to a telephone appointment which I dont wants I haven't been seen personally since March and kind of feel like I'm left dangling as you say!

     

    Sending hugs and positive vibes your way Davia.

    Stay strong and look after yourself xxxxxxxxxxx

     

    Karyn

  • Hi Ladies,

     

    How you all doing? :)

     

    Nice to hear from you Linda, glad to hear you have been keeping ok and spending quality time with your family.  It really does put everything into perspective eh!

     

    Hey Karen, glad to hear you  have an appointment now. I hope you can see someone face to face.  Same as me, i saw someone last when i had my drain out in April.  I have my port flushed every 8 weeks at the unit but no face to face catch ups.  My call last week was with a consultant radiologist, as my oncologist is on long term leave.  it was a follow up call after my treatment finished in June. I still have a bit of swelling in my arm and pain in my hand so he suggested speaking to the BC nurse, which i still need to do.  He has booked me in for another follow up in December, i hope this one will be with oncologist and not a phone call.

     

    [@Davia]‍ How you doing.  We all send our love and hope your arm isn't giving you too much uphill.  Hope you are managing ok on the cape. 

     

    I'm on leave next week, using up the last of my leave otherwise we loose it.  A lot of changes going on at work with talk of redundancies and reduced hours to save money.  We'll hear more next month.  I'm still waiting for occupational health before i'm officially back.  My phone call is next week so hopefully then I'll know whats going on.  Before you know it christmas will be here!

     

    It was a year ago yesterday, i started treatment with my first chemo.  So strange to think a year has gone by, at times it dragged and now it feels like it has flown by!

     

    I've been busy baking, as usual and getting out walking.  I'm doing the couch to 5k, ive downloaded the app.  slow progress but getting there.  i dont have achey knees or hips anymore so moving in the right direction.

     

    Claire, hope your move went all ok and you have settled in ;)

     

    Sue, we look forward to hearing about Portual! :)

     

    Ladies, hope you are all well otherwise,  big hugs.

     

    xxx