Just been diagnosed, BC - triple negative

Hi there,

I joined the group a couple of weeks ago after my scan and biopsy and found it useful and supportive reading what everyone is going through and their advice whilst we all face the C word!

I've now received my diagnosis and plucked up the courage to say 'HI!' :)  I'm still reading up on all the booklets i've received. A strange feeling really counting the days down to your appointment like a holiday without the excited feeling and now coming home with loads of booklets and not holiday brochures.  i feel strange that i have a sense of relief but a strange relief as I do have cancer and not the all clear.  Does anyone else have these mixed feelings?

I've been diagnosed with stage 2, grade 3 and triple negative.  Well from my understanding, i'm waiting for the confirmations to all come in the post.  I remember them saying 18 weeks chemo, 5cm tumour, lymph nodes, masectomy, radiotherapy....

I still feel very detached and like they are talking about someone else as i dont feel ill.  I was hoping to be pregnant :( so feel very sad tonight that is unlikely to happen now with my diagnosis and that i'm 42.

So mixed feelings all around tonight. 

Mich x

 

 

  • Thanks Davia, stayed in bed today and rested. I'm now camped out in the coach. I can feel I have a temperature now, it's 37.2 so keeping a eye in it. They say if it's 37. 5 or 38 you have to call the emergency line. I won't take paracetamol this  eve yet until it goes down a bit.

    Ah fingers crossed for your last one Do u ring the bell when you have last chemo or only when u finish treatment? 

    I love lemon squash I drink so much of it. At the moment I'm on tropical fruit squash. 

    No none if the neuropathy I just had the pains in my arms and chest from when I was on the ec. My body is aching quite a bit now but think it's the cold and now steriods wearing off. 

    I have chesty cough mixture now to swig! 

    Thank you xx

  • Hi Mich how you feeling?

    The bell is rung at end of chemo, but I've decided not to ring it, me a bell ringer to lol I just feel bad for those who won't be able to ring it :(

    I don't know if they will give me my last paxo on Monday, my bowel us quite bad, I've kept my diet bland but today it's still bad, I read its a rare side effect of the carbo.

    Well really hope your managing the cold and your temperature didn't or won't peak, healing hugs xxx

  • Thanks Mich, Fec went ok but I did feel a bit nauseous 1st time ever but i think its because I had a period appear on Monday after not having 1 for 5 months so god knows whats going on there lol but Iam now officially half way through woohoo! Spent most of today resting in bed with this muzzy head from the Dex and aching bones from the delightful injections.

    Hope you're feeling better now you have rested 

    Linda x

  • Hi Sue

    All went ok am so glad I have hit the halfway mark! but I have the bone aches today from the Jabs!

    Thats great you have a date for your lumpectomy, how long ago did you finish chemo? I cant remember if my surgeon said he likes to operate 5 weeks after the last round.

    Linda x

  • Hi Linda,

    My op will be 2 days short of 6 weeks since finishing chemo. They usually like to operate 4-6 weeks after chemo if all the vital statistics are ok. 

    My side effects from chemo are slowly wearing off. I Still feel very tired and I do still feel very emotional at times but our bodies have been put through a lot.

    I know it seems never ending but you're at the half way mark of chemo and then onto the next stage.

    Have a lovely lazy Sunday and be kind to yourself 

    Love Sue xx

  • Hi Ladies, 

    Linda great you have hit the half way mark, I felt tge second half seemed to go quicker, hope the bone ache has gone, I took antihistamines as someone said it helps with the injections. 

    Sue, glad you've started feeling better after finishing chemo, next chapter surgery  

    Mich, I hope your getting over your cold and it hasn't knocked you back, thinking of you

    I didn't have my last paxol today, oncologist was happy to miss it as its caused my rear end loads of trouble and I have red rash each side of my face that is apparently a side effect, so that's it, I have finished with Chemo and had my picc line out , it was very straight forward and I didn't feel a thing next step, scan and surgery, we're (my hubby and me) are looking at it as a transfer from our temporary full time job, that's what we decided to call this journey.

    It does feel odd that I won't be going in every week for bloods, I thought they would still do bloods next week to see if body is recovering. 

    But I'm happy to be picc free and chemo free. 

    Keep well ladies, we can do this warriors xxxxxx

  • Hi Davia,

    Onto the next stage of the journey, that's great. It does feel strange not going to the hospital regularly. Are you having a mastectomy or lumpectomy? My surgery is next Wednesday 5th. I'll let you know how I get on, I'm sure it won't be as bad as I fear. I'm really nervous which is funny as I really want the surgery to get rid of the lump.

    How's the cold Mich? I hope you're over the worst.

    Claire and Linda, how are you both getting on?

    Love Sue xx

  • Hi Sue 

    Oh I think we will all be very nervous before surgery, I know I will be popping it lol 

    I am having full clearence of lymphs in left arm, I am a weired one, I didn't have a lump, the oncologist said its not unheard of, sometimes the body clears it. I cant say It didn't freak me out,  I had routine mamo and they found three lymph glands effected.

    They have bought my scan forward as I couldn't have last paxol, that really is freaking me out, to be honest since being diagnosed I'm far more nurvouse about anything, hopefully that will pass. Oh and emotional, I could have filled a lake last week,seemed anything set me off, and again before being diagnosed I think I could count on one hand how many times I had cried in five years. This journey has definitely changed me as a person. 

    Please do let us know how you get on with operation, oh and if they give you pree med wishing you all the very best, xxxx

     

     

     

  • Hey ladies, 

    I still have my snotty nose and chesty cough. I called the unit today and they said to see my doc as could have chest infection so may need anti antibiotics. Of course I couldn't get to see them today so have to call at 8am tomorrow morning to see if I can get an appointment. I feel better in myself tho. Have given it to my hubby he has been in bed all day shivering with a temp! Must be going around. 

    Glad to hear your opp is around the corner Sue, you must be relieved. Do you have a pre assessment or just go to hospital on Wednesday? We'll all be thinking of you. 

     

    Aww Davia that's good your chemo is all finished, it did play havoc with your body. Hope the rash will clear up soon. The rash on my hands is now gone. I'm due a full node clearance in the left side too as 3 swollen lymph nodes tested positive. All I know about the opp is lots or drains! Not sure if I should read up about it yet or wait until chemo finished. When is your scan now then? This is the per scan?

    Glad to hear you past the half way mark Linda. Don't forget the a antihistamines for bone ache

    It has been very grey and dreary lately which makes me emotional too esp as I have been indoors for almost a week. Funny thing is I'm never ill, I hardly get anything that comes around, well apart from migraines and here I sit poorly with cancer too lol!

    We'll get there warriors! Need to make my boob cake remember

    Xxx

  • Hi Mich

    Great to hear your on mend from cold, hope you get app for tomorrow, they should really fit you in as a priority when on chemo. Your bound to feel emotional, having a cold on top of chemo is heavy  

    I've only read up on recovering from full lumph clearence, I don't want to know how the op is done, it would freak me out, well freak me out more than I am already lol oh I have three infected lymphs to, so were very similar

    My scan should be bought forward a week, so I'm thinking 31st Jan, they need oncologist conformation, before changing appointment. 

    My surgeon app is on the 7th Feb. But I have to get through this scan, I know it's normal to have scan fobia when your were we are, my oncologist said everyone feels apprehensive it's normal. Made me feel a bit better. 

    Keep strong, love and hugs xxx