Hi Sue, the reason I ask is I've seen some info online saying that there are a studies showing that carboplatin is very successful in treating tnbc. Alongside all the other types of chemo.

I've finished the chemo, my scans show the tumour has gone which is amazing although of course they'll still need to test tissue taken during surgery to see if any microscopic bits are lingering.

At least you know surgery will get rid of it, I'm due a lumpectomy but part of me still feels a mastectomy would be "safer".

x

Hi ladies,

Caire, I will ask the Oncologist about Carboplatin. It was never suggested and that may well be why the tumor hasn't shrunk by much. Any idea when your surgery will be?

Davia, good luck with your chemo tomorrow, I hope it goes smoothly. I hope your hair shedding isn't too drastic, it really is an unwanted side effect.

Enjoy the rest of the weekend Ladies,

Love to you all,

Sue xx

Thanks Sue, Im hoping my hair is just normal hair drop, my eyelashes are near enough gone, they were the last things to fall out after the eyebrows lol but I'm getting good at pencilling them in. 

I do forget that the combo hits me harder than the weekly paxol, takes longer to recover.

Mich I hope your enjoying this lovely weather by the harbour, I've just got back from having a small walk, sunshine is so lovely.

Claire great news about your scans showing tumour has gone x

Keep well ladies xxx

Hi sue, I had doctetaxol and carboplatin last year when I was having treatment for tnbc, the first chemo session I had made me really ill and inflamed my bowel. I had a bad reaction to docetaxol, so they took me off that then done surgery, and found out that my Cancer had shrunk by 90%. it was 3 cm to begin with. I then went on to continue chemotherapy weekly paclitaxel and carboplatin every 3 weeks. I was a lot better. I would definitely ask for carboplatin as it is known to work in shrinking tnbc. Xx

Sue, my surgery is 7 Feb.

Ladies that are going out without headscarf or wig, definitely brave :) I've been out a couple of times by mistake, fortunately only to places that were within 5 mins of the flat, but I felt so self conscious. Someone mentioned height, I'm also tall, 5 ft 11. And slightly overweight so I feel like a man when I don't have my headscarf on!

Davia, I can't believe they lost your samples, how annoying!

Ellie, thanks for sharing, are you clear now?

x

I finished my treatment in October, suffering from neuropathy (numbness in hands, feet, and pains in legs) from the chemo, and extreme fatigue. but other than that I got the all clear from mammogram last month. I am having a ct scan Friday though, as been getting bad bone pain and side pain, so the oncologist is looking into it just incase it's back and metastasised. Fingers crossed it's not And it's just side effects still from the chemo Xx

Hi Ellie,

Thanks for replying to my post. I'm so pleased you got the all clear, when were you diagnosed? Hopefully your pains are just a side effect from chemo, it's one powerful drug!! I will definitely talk to my oncologist about the other chemo as most ladies with TNBC seem to be on it. 

Xxx

I got diagnosed 2nd January 2019

it is definitely a hard long journey, but we can all do it! let's not let this horrific disease beat us. 

sending big hugs xx

Hi Ellie,

You've given us all hope

XXX

Hi ladies, 

Been feeing a bit bleugh this weekend so no seaside walks for me, just stayed indoors. I did walk quite a bit on Friday and as u said Davia these must be my down days. I woke up early this morn with a migraine so slept again for a while and then woke up again all teary! I feel OK now just a bit zonked. 

How was your catch up with your friend Sue, hope a lovely day out

Yeah no eyelashes for me now, had a lookntbhsi morn if worth putting mascara on and err no. Think my hair has grown though, seems fluffy and spiker lol! 

That's annoying Davia about your tests, hope they can get it sorted tomorrow morn. I'll be up early for my pre assessment at 0820 zzzzz

Hey Ellie, thanks for the update and glad to hear you have the all clear. Sorry to hear about the pain. I had it a lot when on AC and only get it a little when on the carbo. Have you had it throughout or did it start when u finished?

Ah thanks Claire, another tall gal! I said to my husband the other day, don't I look like a man now? His response was, don't be daft! But as I look like my dad I do feel like a bloke. Now i  make sure I wear earrings now every time I go out and try to wear a pretty scarf around my neck My husband has long hair too, which doesn't help!

Hope u ladies are having a good eve xx