Hello ladies, hope you don't mind me gatecrashing your thread, but I've just read through it all and it's made me feel so much better, your all so nice and posative

I was diagnosed with triple negative BC in June, I am on my 5 of 8 cycles of chemo, these last four being Carpoplatin and paxataxil, there breaking down the paxataxil to every week, i have my last chemo on 6th January and although we shouldn't wish our lives away, I can't wait, after that it will be surgery and radiotherapy, I have three lymph nodes under my arm and two lymphs under breast, but on last scan the two under breast have cleared, I'd like to ask if any of you on paxataxil oy carboplatin have had fuzzy head, I can't explain it but fuzzy slight dizzy head, I'm at day 10, my other cycle I felt so much better by day 10, it's not really bad but just annoying as I can't drive while feeling like this. Again lovely to read all your posts and really hoping your all feeling well, xxx

Hey Davia

Of course not, welcome to our group that no ones want to join haha!  I was diagnosed in August so just had my 3rd course on Tuesday.  Not feeling too bad at the moment, fingers crossed it stays that way.  I have 1 more of EC then i go onto the carbo / paxo and paxo weekly.  Hope there are no major side affects of these.  How you doing on these drugs, just the dizzyness.  

I have in my lymph nodes too so will have to have all of them out, little worried about the opp but one day at a time eh.  I'm also waiting on my brca test, guess they will send a letter confirming yay or nay.

Yeah i could drive for a few days after my second one, felt like i was on drugs all week!

I managed the cold cap on Tuesday, but hair is thinning quite a bit so not sure if I'll carry on .

Hugs

xx

Hey Sue, 

Ah sorry to hear it's not the result you wanted boo. Think it will be like mine still there after the treatment so mascetomy on the cards. Although personally I'm feeling I would prefer mascetomy as I feel it would reduce the risk of more lumps, I know it can't totally but just how I feel about it now. 

Try not to worry too much about it, this is just the first stage of our treatment run, as you lovely ladies have reminded me, one step at a time

Ha ha well done in opening to the postman. Ours has mostly seen me in my dressing gown, esp over Xmas! 

Do you have anything fun planned for the weekend? 

Xx

Hi ladies,

Claire, I only had EC And Taxol. I don't know if that makes any difference to the tumor not shrinking. How far along your treatment plan are you?

Mich, haha it took me a lot of courage to open the door head naked. I think we all have our wobbles and this one setback won't win.

I'm off to Sudbury in Suffolk today to see my best friend, we've been friends since we were 4 years old. It takes about 1 1/4 hours to get there from where I am in Essex. 

I hope you all have a wonderful weekend

Love to you all,

Sue xx

Hi Sue, really sorry to hear the tumor hasn't shrunk, but they will do what's best for you x have aovely day visiting your best friend, hope the sun is shining there like it is here xx

I went in for my line flush and bloods yesterday only for them to ring to say the lab has lost my sample so I have to go in at 9am Monday and wait for results before they make up the chemo,  think we'll be in the cafe lol 

I'm going to venture out today, I ended up in bed yesterday feeling fatigued, all I did was walk half a mile from unit to car park and I was pooped, but I keep saying, last one of combo woop. I have noticed my hair is shedding, I don't know if it's natural she'd or its started coming out again, I keep eye on it.

Hope you ladies enjoy the weekend and some lovely sunshine, keep well xxxx

Hi Sue, the reason I ask is I've seen some info online saying that there are a studies showing that carboplatin is very successful in treating tnbc. Alongside all the other types of chemo.

I've finished the chemo, my scans show the tumour has gone which is amazing although of course they'll still need to test tissue taken during surgery to see if any microscopic bits are lingering.

At least you know surgery will get rid of it, I'm due a lumpectomy but part of me still feels a mastectomy would be "safer".

x

Hi ladies,

Caire, I will ask the Oncologist about Carboplatin. It was never suggested and that may well be why the tumor hasn't shrunk by much. Any idea when your surgery will be?

Davia, good luck with your chemo tomorrow, I hope it goes smoothly. I hope your hair shedding isn't too drastic, it really is an unwanted side effect.

Enjoy the rest of the weekend Ladies,

Love to you all,

Sue xx

Thanks Sue, Im hoping my hair is just normal hair drop, my eyelashes are near enough gone, they were the last things to fall out after the eyebrows lol but I'm getting good at pencilling them in. 

I do forget that the combo hits me harder than the weekly paxol, takes longer to recover.

Mich I hope your enjoying this lovely weather by the harbour, I've just got back from having a small walk, sunshine is so lovely.

Claire great news about your scans showing tumour has gone x

Keep well ladies xxx

Hi sue, I had doctetaxol and carboplatin last year when I was having treatment for tnbc, the first chemo session I had made me really ill and inflamed my bowel. I had a bad reaction to docetaxol, so they took me off that then done surgery, and found out that my Cancer had shrunk by 90%. it was 3 cm to begin with. I then went on to continue chemotherapy weekly paclitaxel and carboplatin every 3 weeks. I was a lot better. I would definitely ask for carboplatin as it is known to work in shrinking tnbc. Xx

Sue, my surgery is 7 Feb.

Ladies that are going out without headscarf or wig, definitely brave :) I've been out a couple of times by mistake, fortunately only to places that were within 5 mins of the flat, but I felt so self conscious. Someone mentioned height, I'm also tall, 5 ft 11. And slightly overweight so I feel like a man when I don't have my headscarf on!

Davia, I can't believe they lost your samples, how annoying!

Ellie, thanks for sharing, are you clear now?

x

I finished my treatment in October, suffering from neuropathy (numbness in hands, feet, and pains in legs) from the chemo, and extreme fatigue. but other than that I got the all clear from mammogram last month. I am having a ct scan Friday though, as been getting bad bone pain and side pain, so the oncologist is looking into it just incase it's back and metastasised. Fingers crossed it's not And it's just side effects still from the chemo Xx

Hi Ellie,

Thanks for replying to my post. I'm so pleased you got the all clear, when were you diagnosed? Hopefully your pains are just a side effect from chemo, it's one powerful drug!! I will definitely talk to my oncologist about the other chemo as most ladies with TNBC seem to be on it. 

Xxx

Hi Ellie,

Thanks for replying to my post. I'm so pleased you got the all clear, when were you diagnosed? Hopefully your pains are just a side effect from chemo, it's one powerful drug!! I will definitely talk to my oncologist about the other chemo as most ladies with TNBC seem to be on it. 

Xxx

I got diagnosed 2nd January 2019

it is definitely a hard long journey, but we can all do it! let's not let this horrific disease beat us. 

sending big hugs xx

Hi Ellie,

You've given us all hope

XXX