Hi Mitch,

Sorry to hear you are feeling sad with mixed emotions. I too was diagnosed earlier this year with triple negative grade 3 and I’m 35 so fertility was a potential issue also as I have no children yet. I felt very mixed because I was feeling in peak physical fitness at the time of diagnosis and like nothing was wrong with me, yet every time I had to tell someone my news, or someone found out I got really deep messages of concern and it just felt like they were talking about someone else! Even though I’m TN I’ve been taking the zoladex injection every month which shuts your ovaries down. Essentially it’s meant to minimise the impact of damage to your ovaries. I now have 2 weeks of chemo left. The first one was the worst and after 8 weeks it got a lot easier and side effects lessened. Wishing you all the best for your op and treatment ahead x

Ah thanks Sue Scan went alright, a lot of sitting around in the lovely dressing gown lol! I'm at hospital now waiting for my bone scan. I've had the radioactive injection now just a couple of hours wait for me to light up ️ I'm definitely going to be reading more! 

How you feeling now? It sure is warm eh, I don't usually struggle with the heat but finding I have no energy and tired all the time. I haven't started a treatment yet...

I don't have my oncology appointment, so hopefully hear this week. Been 2 weeks today since I was diagnosed. Strange how these 2 weeks have flown and the 2 before really dragged whilst waiting for results. 

Is your chemo for 18 weeks?

Xx

Hey Rozza 

Ah thank you for your advice, yeah sure is a mixed bag of emotions. I said to my husband I feel like a bearer of bad news, as had to tell my great aunt so could find out about family history and she was very sad as she had just lost her friend of 30 years. I know it's better to tell people so they can support you, just feels odd as like you I don't  feel ill just tired.

I'm working still as want to keep going until I know my treatment dates and they have been very good and flexible which helps. 

Ah thanks, I'll ask about that as I was seeing the fertility clinic, so maybe one of the recommendations. 

Glad to hear your chemo is almost over bet you can't wait! Did you also have the bone and ct scans?

Feels strange I'm going to have this long Road ahead of me, but them you hear about so many people like on here that are going through the same then you realise you are not alone

Hope you are well today and enjoying the lovely weather  

Xx

Hi Mich,

I'm having 4 sessions of EC 3 weeks apart and then 4 Paclitaxel sessions 2 weeks apart. I feel a lot better mentally now that the chemo has started. The first week after the tratment I was feeling very sick and had headaches but the second week, I feel loads better. 

My chemo started 5 weeks after being diagnosed and the wait seemed never ending!

Let me know how you get on today, hopefully you won't be kept waiting too long.

Drink loads of water, I was advised to, and it really helps.

We've been dealt a crap hand but we will beat it.

Take care,

Sue xx

Hi Sue, 

Ah glad you are feeling better now the treatment has started. It's all the unknown eh and waiting for those appointments to come through. I've got a call with the nurse tomorrow to ask some questions as I have no more appointments or scans lined up.

Today went OK, the room was freezing cold! So hard to keep still when you shivering. I only realised once it started how cold it was, doh! And now I'm sweating buckets outside, no happy medium eh. 

Thanks, in drinking as much water as I can. Also been put off coffee not that I drank much but drinking my peppermint teas now

Hope you having a relaxing eve and no doubt I'll be asking more questions before you know it

Mich x

Hi Mich8,

I didn’t have the bone scans or CT scans, probably as mine was classed as stage 1 even though I had one in each breast so they just operated and then chemo. I did get the nuclear medicine injection the day before the op so my lymph nodes would ‘light up’ for the surgeon! I worked right up until the last minute also.

I find that most of my new friends at the chemo unit are over 60 and have been quite a hoot! The nurses were funny and sweet also so I felt really at ease. It kind of humbles you as you realise how many lovely people there are in the world trying to help you. 

Lots of people recommended the younger women together group to me as support, and also Trekstock, which is a charity for younger people and they have some interesting interviews / discussion topics on their website. 

Today has been baking in the park! I’m located on the sofa now for the rest of the night! Have a good evening xx

Hi Mich,

Feel free to ask away. I found the fear of the unknown is the worse part.

Take care,

Sue

Hi Mich,

How's it going? Have you got any dates for Chemo? I hope you are feeling OK and don't have to wait too long.

Have a great weekend.

Take care,

Sue

Hey Sue

I'm doing OK thanks, just struggling a bit with my migraines. Good news tho my CT and bone scans are all clear! V relieved about that. 

I have a start date of 17 sep and pre assessment on the 12th sep. Still waiting on a mri which is now the 11 sep. So not moving too badly I guess, prob the same as you. 

When is your next session? I hope to see my oncology doctor this week. I had to see another one at a different hospital on Friday. Wasn't too impressed with him, he didn't answer my questions on fertility and clinical trials. Ive heard my oncologist is lovely so hope to meet her soon.

I'm also feeling a bit like you were, where I just want it to start now. Especially as I've had most my scans so just around the corner. 

Have you got the picc line in? 

Hope you are well otherwise and had a good weekend. 

Mich x

Hey Rozza, 

How's it going on your side? 

Ah that's lovely you have a joke and laugh with fellow patients. I live by the sea side with lot of retired folk so think I'll be making some friends too

Hope u keeping well. 

X