HI, yes I have all the same feelings and mixed emotions. I am having my first chemo session today and am terrified. I was supposed to be going in at 8.30am but I got a call yesterday putting my appointment back to 11.30am as they haven't got approval yet even though I have already signed the consent form. I am praying that my chemo doesn't get delayed. 

It is really hard to stay positive but I am really trying. Good luck with everything, have you got a start date for your treatment? I found that the hardest bit, waiting for my appointment and praying nothing gets any worse whilst waiting. 

Hi SueBea

Urgh I'm not very clever I've just typed a message to you and did something wrong when sending and lost it, doh! I'll blame movement of the train! 

Thanks for your reply a d good to know we all have these mixed emotions. At the moment it feels like it's not me a d was someone else they were talking about. As I don't feel ill and haven't had any letters etc. I was diagnosed on Tuesday so early days still. Think they said chemo in about 4 weeks. 

Aww sorry your appointment has been moved, I hope they don't keep you waiting too long. Good luck for today, I'll be there soon needing some encouragement.

Mich x

Hi  Mich,

I am hoping the worsed is over as I am feeling a bit better today. The neasea and headaches have thankfully eased. 

I wansn't offered any clinical trials, first I've heard of it.

Let me know about your CT scan and oncology appointment. I felt much better once the Chemo started as I felt I was in limbo before not knowing if the cancer was growing. It's not easy but it is doable.   

Look after youeself and just take each day as it comes.

Sue x     

Hi Sue, 

How's it going? Are your headaches better? I'm a migraine sufferer and on preventative medication each day to help, so little worried they may get worse with treatment.

My oncology appointment hasn't come through yet but have the scan on Saturday and now I have a bone density scan on Tuesday. Guess I'll hear after these. 

I've heard about clinical trials, so I'll ask. Are you TN too?

Hope u enjoying some of the sunshine  

Mich x

Hi Mich,

Yep, I am TN too. Over the shock and ready to fight now! You are in the best hands, it's not easy but it is doable. Let me know how you get on at the scan and Oncology appointment.

The headaches have gone, just slight nausea now and I feel drunk all the time even though I haven't had a drink since treatment started.

Sue xx

Hi Mich,

Good luck today xx

Hi Mitch,

Sorry to hear you are feeling sad with mixed emotions. I too was diagnosed earlier this year with triple negative grade 3 and I’m 35 so fertility was a potential issue also as I have no children yet. I felt very mixed because I was feeling in peak physical fitness at the time of diagnosis and like nothing was wrong with me, yet every time I had to tell someone my news, or someone found out I got really deep messages of concern and it just felt like they were talking about someone else! Even though I’m TN I’ve been taking the zoladex injection every month which shuts your ovaries down. Essentially it’s meant to minimise the impact of damage to your ovaries. I now have 2 weeks of chemo left. The first one was the worst and after 8 weeks it got a lot easier and side effects lessened. Wishing you all the best for your op and treatment ahead x

Ah thanks Sue Scan went alright, a lot of sitting around in the lovely dressing gown lol! I'm at hospital now waiting for my bone scan. I've had the radioactive injection now just a couple of hours wait for me to light up ️ I'm definitely going to be reading more! 

How you feeling now? It sure is warm eh, I don't usually struggle with the heat but finding I have no energy and tired all the time. I haven't started a treatment yet...

I don't have my oncology appointment, so hopefully hear this week. Been 2 weeks today since I was diagnosed. Strange how these 2 weeks have flown and the 2 before really dragged whilst waiting for results. 

Is your chemo for 18 weeks?

Xx

Hey Rozza 

Ah thank you for your advice, yeah sure is a mixed bag of emotions. I said to my husband I feel like a bearer of bad news, as had to tell my great aunt so could find out about family history and she was very sad as she had just lost her friend of 30 years. I know it's better to tell people so they can support you, just feels odd as like you I don't  feel ill just tired.

I'm working still as want to keep going until I know my treatment dates and they have been very good and flexible which helps. 

Ah thanks, I'll ask about that as I was seeing the fertility clinic, so maybe one of the recommendations. 

Glad to hear your chemo is almost over bet you can't wait! Did you also have the bone and ct scans?

Feels strange I'm going to have this long Road ahead of me, but them you hear about so many people like on here that are going through the same then you realise you are not alone

Hope you are well today and enjoying the lovely weather  

Xx

Hi Mich,

I'm having 4 sessions of EC 3 weeks apart and then 4 Paclitaxel sessions 2 weeks apart. I feel a lot better mentally now that the chemo has started. The first week after the tratment I was feeling very sick and had headaches but the second week, I feel loads better. 

My chemo started 5 weeks after being diagnosed and the wait seemed never ending!

Let me know how you get on today, hopefully you won't be kept waiting too long.

Drink loads of water, I was advised to, and it really helps.

We've been dealt a crap hand but we will beat it.

Take care,

Sue xx

Hi Sue, 

Ah glad you are feeling better now the treatment has started. It's all the unknown eh and waiting for those appointments to come through. I've got a call with the nurse tomorrow to ask some questions as I have no more appointments or scans lined up.

Today went OK, the room was freezing cold! So hard to keep still when you shivering. I only realised once it started how cold it was, doh! And now I'm sweating buckets outside, no happy medium eh. 

Thanks, in drinking as much water as I can. Also been put off coffee not that I drank much but drinking my peppermint teas now

Hope you having a relaxing eve and no doubt I'll be asking more questions before you know it

Mich x

Hi Mich8,

I didn’t have the bone scans or CT scans, probably as mine was classed as stage 1 even though I had one in each breast so they just operated and then chemo. I did get the nuclear medicine injection the day before the op so my lymph nodes would ‘light up’ for the surgeon! I worked right up until the last minute also.

I find that most of my new friends at the chemo unit are over 60 and have been quite a hoot! The nurses were funny and sweet also so I felt really at ease. It kind of humbles you as you realise how many lovely people there are in the world trying to help you. 

Lots of people recommended the younger women together group to me as support, and also Trekstock, which is a charity for younger people and they have some interesting interviews / discussion topics on their website. 

Today has been baking in the park! I’m located on the sofa now for the rest of the night! Have a good evening xx

Hi Mich8,

I didn’t have the bone scans or CT scans, probably as mine was classed as stage 1 even though I had one in each breast so they just operated and then chemo. I did get the nuclear medicine injection the day before the op so my lymph nodes would ‘light up’ for the surgeon! I worked right up until the last minute also.

I find that most of my new friends at the chemo unit are over 60 and have been quite a hoot! The nurses were funny and sweet also so I felt really at ease. It kind of humbles you as you realise how many lovely people there are in the world trying to help you. 

Lots of people recommended the younger women together group to me as support, and also Trekstock, which is a charity for younger people and they have some interesting interviews / discussion topics on their website. 

Today has been baking in the park! I’m located on the sofa now for the rest of the night! Have a good evening xx

Hey Rozza, 

How's it going on your side? 

Ah that's lovely you have a joke and laugh with fellow patients. I live by the sea side with lot of retired folk so think I'll be making some friends too

Hope u keeping well. 

X

Hi Mich

I’m really pleased to hear your bone scan and CT scan results! I had an MRI too and I also didn’t like the fertility specialist I was referred to, which was also at a different hospital to my oncologist. So much so that they offered me IVF to freeze eggs and I turned them down (but also because it delayed chemo and that freaked me out).

I had a port a cath put in as I was having EC bi weekly and taxol weekly so less time for the veins to recover. It’s not the nicest looking thing but I’m told PICC and port lines are good if you’re having more frequent doses.

I’m doing well thank you! I’m looking forward to life after my final chemo next week. Now I’m at this strange reflective stage where I’ve gained perspective and feel like being a nicer person so that’s a positive from it all at least! Next appointment with my oncologist is now not until early December, feels so strange! 

Wishing you & sue a lovely week ahead xx

ps I grew up on the coast. I think the sea breeze will do wonders for you :)