Just been diagnosed, BC - triple negative

Hi there,

I joined the group a couple of weeks ago after my scan and biopsy and found it useful and supportive reading what everyone is going through and their advice whilst we all face the C word!

I've now received my diagnosis and plucked up the courage to say 'HI!' :)  I'm still reading up on all the booklets i've received. A strange feeling really counting the days down to your appointment like a holiday without the excited feeling and now coming home with loads of booklets and not holiday brochures.  i feel strange that i have a sense of relief but a strange relief as I do have cancer and not the all clear.  Does anyone else have these mixed feelings?

I've been diagnosed with stage 2, grade 3 and triple negative.  Well from my understanding, i'm waiting for the confirmations to all come in the post.  I remember them saying 18 weeks chemo, 5cm tumour, lymph nodes, masectomy, radiotherapy....

I still feel very detached and like they are talking about someone else as i dont feel ill.  I was hoping to be pregnant :( so feel very sad tonight that is unlikely to happen now with my diagnosis and that i'm 42.

So mixed feelings all around tonight. 

Mich x

 

 

  • Hi ladies,

    Linda, the effects of chemo is cumulatve, but not everyone gets side effects so you might be one of the lucky ones. The aching bones and dizzyness are pretty standard but unpleasant. I'm the same as Mich, we were both on EC which is the same as FEC but without the F. 

    Mich, I haven't slept since starting chemo unless I take a knock out pill.

    I am serious about starting a TN survivors thread. People mainly post when they are going through treatment and forget to post once they get the all clear. I think we will all stay in touch for many years with positive, upbeat stories. 

    I have my last chemo on 27th and am actually looking forward to it for once!! 

    Have a wonderful weekend Ladies, stay dry!!!

    Love all round,

    Sue xxx

  • Sue it's a great idea. I know it's not the same thing but I was on a lot of infertility groups particularly for my ivf clinic and now there are groups for those women who have been successful and everyone is so supportive of one bother. There is something special about people that have been through the same thing you have even if you haven't met them.

     

    Less than a week til your last chemo, that is fantastic!

     

    Mich I'm having trouble with sleeping too despite being exhausted :( I have been given some mild sleeping pills but I'm reluctant to take them as I want to hear my son when he wakes.

     

    Lindy, really glad you're not feeling too bad.

     

    x

  • Merry Christmas my fellow Warriors! hope you are all well and enjoying the festivities!  

     

    I'm not too bad after taxol yesterday. Woke up with a nose bleed and a bit tired but otherwise all ok. Even went for a nice long walk in the afternoon sun. 

    Big festive hugs

    Xx

  • Happy Christmas, I had my Taxol and Carbo on Monday so only just managed today, lots of visitors that was lovely but I'm so tired and no energy, glad you managed a nice walk, it was lovely to see the sun again after all that rain, 

    Hope santa bought you lots of nice things, take it easy,  BIG festive hugs back

  • Merry Christmas Ladies, I hope you all had a fab day. 

    Im having my last Taxol tomorrow if all goes to plan whoo hoo. I saw the oncologist on 24th and he said he wouldn't know if the cancer had responded to the chemo until after the op so I left feeling really deflated. He said he can still feel the lump as I can. Now I'm more worried than ever. 

    I put on a good act yesterday though, I deserve an Oscar. No one would have guessed how worried I am.

    Oh well, onwards and upwards. Positive thinking from now on. Next year we will all be out the other end, finished treatment and enjoying life.

    ️ ️ ️

  • Happy Christmas all!

    Sue that's a real pain, why can't they just scan you to check the size of the tumour? I wouldn't worry too much about still being able to feel it, the chemo doesn't always get rid of it completely, mine is still there but smaller. I guess that's why we have surgery, to remove what's left. Remind me when your op is?

     

    Davia, glad they managed to go ahead on Monday.

     

    Mich, great that you were feeling ok after your taxol. Hope that has continued.

     

    ik on my way for my penultimate ec now. It would have been due Christmas Day so a couple of days late, I felt almost completely normal yesterday which was nice! I'm so done with the chemo now...

     

    Love to you all.

     

    x

  • Hi Claire, I've no Idea why they don't just scan me. No date for my op yet, I'm waiting for a date to see the surgeon.

    Not long till you finish your chemo now.

    Stay well

    Sue XXX

  • Hey ladies, 

    Good luck Claire and Sue for chemo today strange to think my next one is only on the 08th Jan, feels far away!

    Ah that is annoying about the scan but as Claire said the opp is the final way to get rid of all the cells. I've got 5 so doubt they would all disappear either. I've got a scan on the 3 Jan, so will see what they say. Last time they just said yeah they shrinking but not much else. 

    How you doing today Davia? I'm OK still buzzing like the duracell bunny ha ha! I'll prob crash and burn this weekend. Still have the constipation grr so smoothie and laxido for breakfast foe me. 

    What else are you ladies up to, hopefully some nice chilling. 

    Hugs xx

  • Hi Ladies, 

    Good luck to Claire and Sue for chemo today, hope it all goes well, I'm just back from having bloods and picc flushed fingers crossed those pesky white cells are behaving. 

    Clair hope you get a date for opp, it's scary when they talk so genrally, but as the others have said, the opp will clear it all out then radio will make sure. 

    I don't have a lump! Wierd but I have three lymphs and two very small lymphy that are non detectable on CT, apparently this can happen, your body clears the lump, it's a bit wierd for me though and I do worry, I have a PET scan after my chemo, they say that shows activity then I'm having all lymphs out under arm, I think the worst thing in all of this journey is the unknown, but we are all getting there, my last chemo is on the 27th Jan, would have been today but I had to have it postponed a few times.

    Clair only one more to go, I get where your coming from on this chemo journey, I can't wait to be finished with it. 

     

    Mich I'm feeling OK today, I over did it on Christmas day so yesterday was a bad day, down, low, tired, so I must remember to take it easy, the steroids don't help, they make me buzz. Have you got your bracca results back yet from guy yet? And when is your last chemo Mich?

    Keep well all, hugs all round xxxx

  • Hey ladies, 

    How u feeling Claire & Sue, hopefully not too groggy! Final one done Sue  

    My last one should be the 20th Feb, fingers crossed. My steroids have now worn off and I feel like an old woman! I did manage a spot of shopping yesterday with some wee breaks. Today my body is so tired and shoulders so stiff prob from carrying bags, oops. 

    Davia glad to hear all is on track, less than a month now for you. My BRCA hasn't come back yet as the didn't get my consent form for some reason. So have sent it off again, should get results in 5 weeks. I'm glad I chased it now with oncologist. 

    Hugs xx