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Just been diagnosed, BC - triple negative

Mich8
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Hi there,

I joined the group a couple of weeks ago after my scan and biopsy and found it useful and supportive reading what everyone is going through and their advice whilst we all face the C word!

I've now received my diagnosis and plucked up the courage to say 'HI!' :)  I'm still reading up on all the booklets i've received. A strange feeling really counting the days down to your appointment like a holiday without the excited feeling and now coming home with loads of booklets and not holiday brochures.  i feel strange that i have a sense of relief but a strange relief as I do have cancer and not the all clear.  Does anyone else have these mixed feelings?

I've been diagnosed with stage 2, grade 3 and triple negative.  Well from my understanding, i'm waiting for the confirmations to all come in the post.  I remember them saying 18 weeks chemo, 5cm tumour, lymph nodes, masectomy, radiotherapy....

I still feel very detached and like they are talking about someone else as i dont feel ill.  I was hoping to be pregnant :( so feel very sad tonight that is unlikely to happen now with my diagnosis and that i'm 42.

So mixed feelings all around tonight. 

Mich x

 

 

  • Offline in reply to mumof3angels

    Hi Ladies,

    Karyn, your anxiety is understandable but let's put this in perspective. If you had of taken the BRCA test years ago but was totally healthy then, would you seriously of had both opps? It would have been a hard decision to make. Im so glad you oppted to have the surgery this year if possible, so January can be a new year, new start. No one knows what the future holds and there are thousands of people walking around with undiagnosed cancer, at least you are being looked after and treated.Forward 6 months when you are fully recovered, you will have a totally different mindset.

     

    Hi Mich,

    Any news on your Mum? It must be such a worrying time for you all. 

    Good luck tomorrow at work, the days will fly by. I might be starting a new job on Monday doing admin. I'm going round later today to sort out the terms and condition and find out exactly what the job entails. I'm feeling really nervous as I haven't worked for 14 months and I hope I'm up to it. It will be working 3 days a week 9-5, I'll be exhausted but less time to think dark thoughts.

     

    Love to everyone,

    Sue xxx

     

  • Offline in reply to SueBea

    Hi ladies,

     

    Hows everyone doing?  Did you start your new position Sue?  Carla, I'm glad to hear you are working from home too.  I think we still need to be careful, i see London & essex is going into tier 2.  Does that affect you Sue?

     

    Ive had bit of a tough time with my mum, its not easy being here when its just my mum and sister in South africa, no other family for support.  So hasn't been easy for her. My mum was transferred from ICU on Monday to a rehab hospital where they will work on physical and mental rehab.  They are not 100% sure why she didn't come around properly, it could be due to her having mini strokes, called TIA over the years and not realising she had them. She knew of 2 she had that lasted a few minutes.  So build up of these episodes and having the opp is trauma on the brain and body.   So now we are looking at her rehab.  She has a social worker now looking after her interest so I'll call him to find about progress.  Shes on soo much drugs, no wonder she is hallucinating!

     

    Work is going ok, time does fly by! They have been very supportive too.

     

    I had my port out yesterday!  After a year. All went fine and was done under local.  Which was rather weird being in a theatre and awake.  I found myself looking at the walls and how much they need a paint job and why there is random stickers and blue tack and why no one has taken it off lol!  Luckily it wasn't painful just uncomfortable with pulling and tugging.  So now I have dissolvable stitches so dont need to go back.

     

    I also had a catch up with my surgeon and BC nurse on Tuesday. I had called about a bit of swelling and pain in my hand.  he looked and said it was nothing to worry about, the swelling is minimal and barely there and the pain could be from nerve damage.  I felt a bit silly going, but hubby said at least you have peace of mind and they always say look out for small changes.  He is going to request a bone scan for pain in my ribs on my left side but does't think its anything to worry about .  So just wait for that to come through.

     

    How you doing Karyn?  do you have an appointment now in November? 

     

    Hope you all doing ok this week and big hugs

    xxx

  • Offline in reply to Mich8

    Hiya Everyone

     

    How are you all? the weather is rubbish and so is this covid thing....seems like it is never going away...

     

    I've had problems logging in here, first i couldnt get in from my phone, and was having difficulty from my work computer, but i'm in now lol...

     

    I've had a few continuing problems with my arm and shoulder... so weekly physio and swimming 3 times a week to try to sort it now, alone with loads of painkillers lol...

     

    Karyn - i've tried to message you but for some reason i can't read or send anything...how did you get on with breast plastics? My salpingo/oopherectomy wont be being done anytime soon....they said sometime next year now...so i hope you've had more luck :-)

     

    Mich, Sue, Claire, Linda and everyone else....sending love to you all xxx

  • Offline in reply to Saftmom

    Hope everyone is well and getting ready for Christmas ️
    I was recently approached by Cancer Research and I've been involved in the West Midlands fundraising campaign...

    you can read and watch here and put an ugly mug to the name lol lol

    www.blackcountryradio.co.uk/.../

    Merry Christmas to you all, sending love and prayers xxxxx

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