Just been diagnosed, BC - triple negative

Hi there,

I joined the group a couple of weeks ago after my scan and biopsy and found it useful and supportive reading what everyone is going through and their advice whilst we all face the C word!

I've now received my diagnosis and plucked up the courage to say 'HI!' :)  I'm still reading up on all the booklets i've received. A strange feeling really counting the days down to your appointment like a holiday without the excited feeling and now coming home with loads of booklets and not holiday brochures.  i feel strange that i have a sense of relief but a strange relief as I do have cancer and not the all clear.  Does anyone else have these mixed feelings?

I've been diagnosed with stage 2, grade 3 and triple negative.  Well from my understanding, i'm waiting for the confirmations to all come in the post.  I remember them saying 18 weeks chemo, 5cm tumour, lymph nodes, masectomy, radiotherapy....

I still feel very detached and like they are talking about someone else as i dont feel ill.  I was hoping to be pregnant :( so feel very sad tonight that is unlikely to happen now with my diagnosis and that i'm 42.

So mixed feelings all around tonight. 

Mich x

 

 

  • Hi Linda 

    It's great to hear from you and I'm glad your giving yourself more time before going back to work.

    After all you've been through you definitely need time  and its lovely that your using it to spend time with your family and I'm sure they feel your doing the right thing too by delaying your return.

    We have been blessed with the weather recently so let's hope we get some more sunny days before the dreaded dark winter days descend upon us.

     

    I have an appointment face to face on 1st October with plastics for a review regarding my double masectomy and reconstruction,  and so am praying it doesn't change to a telephone appointment with the way Covid is changing everything at the moment.

     

    Take care Linda & keep in touch

     

    Karyn xx

  • Hi Sue

    Sorry I have not replied to your post sooner but have had a nasty cold for almost a week now but thankfully it has almost cleared but it has left me feeling very lethargic and low on energy which is the last thing I need with having the 3 children to look after.

     

    I'm so pleased you managed to fit the trip to Portugal in and that it gave you a break at least after the year of hell you've had.

    Have you had to quarantine at all since being home?

    Its unbelievable your experience at Stansted with all those people not wearing masks and also being allowed in the shops without wearing one too!

    It's no wonder we are seeing such a rise in infections with this sort of behaviour going on.

     

    My anxiety is still not too good and my doctor has prescribed tablets to help with sleeping but I still think tablets are not the answer and they leave me with a very drowsy feeling in the morning.

    I just need the surgery done and dusted followed by the reconstruction asap.

    It's still a big weight on my mind and that doesn't seem to ever go that fear.

     

    I have my appointment on 1st October at 2.40pm face to face and have been sent a letter to confirm this and a list of instructions to follow on the day.

    Temperature on arrival and mask to be worn plus they arent allowing anyone in with you when you come and you have to arrive exactly on time, not too early and not late because of social distancing.

     

    I'm just hoping it doesn't get cancelled or changed to a telephone appointment and that I get a date but my gp thinks it will be a long time waiting due to Covid backlogs.

     

    Take care Sue and enjoy the last few days of summer if you can.

     

    I'm trying to build up my fitness and do more walking when I can.

     

    Big hugs xxxx

     

    Karyn xxxx

     

    My

  • Hi Claire,

    How are you coping with being back at work?

    I hope your son is better and been allowing you more time to get things done.

    I know what its like as with having 3 I dont get a minute to myself at weekends and when they are at school time goes nowhere with so many things always to be done.

    The Isle of Wight was wonderful thank you.

    We had fab weather and it was good to have a change of scenery amongst such idyllic surroundings.

    I would love to live there one day, it's just so peaceful and relaxing.

     

    My appointment is 1st October so have everything crossed it will still be going ahead.

     

    Big hugs

     

    Karyn xxxx

     

  • Hi Davia

     

    How are you doing?

    I'm always thinking of you and wondering how you are doing.

    Have you started Cape yet?

    If so I hope you are finding it bearable and have not experienced any undesirable effects.

     

    I pray you get stronger each day with the strength you need to fight this disease Davia and want you to win the battle.

    You're stronger than you think you know and keep trying to think positively even when times get tough.

     

    Please keep posting as we are all here for you ok and Sue is right in saying that's it's the times when you feel low that you most need the support so please dont stop.

     

    Take care Davia and keep on fighting xxxx

     

    Big hugs xxxx

     

    Karyn

  • Hi Mich

    How are you doing?

    How is your swelling now?

    Did you get to speak  to your breast nurse at all?

     

    I hope you enjoyed your weeks leave and did lots of enjoyable things.

    I bet you have been doing lots of baking and working hard on your couch to 5k app.

     

    Have you had clearance from occupational health yet regarding your return to work?

    Just listen to your body and how you feel and dont be pressurised into going back before your ready or see if they can let you work from home is another option.

     

    I'm glad you arent suffering so many aches and pains anymore and that is certainly a big move in the right direction.

     

    I have had a nasty cold which I am just getting over but it really did leave me feeling very drained.

    I'm building myself up for my appointment on Thursday face to face and keeping everything crossed that it still goes ahead.

     

    Big hugs xxxx

     

    Karyn   xxxx

     

  • Hi Karyn,

    I hope your cold is now better and you start to feel stronger. Yes, I'm having to self isolate for 14 days and I'm going stir crazy. The Government took the travel corridoor away whilst I was in Portugal so it doesn't seem fair but hey ho!

    Good luck with your appointment on 1st October, let me know how you get on. 

    I totally understand about your anxiety, it can be really crippling and debilitating. We all worry about a recurrance but you have the added worry of a sugery date on top. Once it is all done and dusted you can start enjoying life again and get back to some sort of normality. 

    I'm glad you got a break in the Isle of Wight, I have been but not for years.

    Look after yourself and take the sleeping tablets of you need to, you can wean yourself off them when you feel able to. I was prescribed sleeping tablets whilst I was having active treatment but my doctor won't prescribe them anymore. Once treatment finishes, then that's that! If only!!!

    Sending lots of love

    Sue xxx

  • Hey ladies,

     

    Hows things?  Sorry to hear about your cold Karen, how you feeling now?  Was it your appointment yesterday?

     

    Sue, hows the self isoation going?  Weather today is pants, so deff stay indoors weather!

     

    I've been keeping busy since been back from the Isle of wight, no idea what i've been doing but time just flies by.  Have baked and catch up with few friends.  i am back to work next week Wednesday, which will be weird as most my team are on furlough for the month. Think i'll mostly be keeping an eye on email account and responding to clients.   I still need to work from home and according to ocupational health avoid public transport if possible. 

     

    My mum had heart bypass surgery this week on Tuesday and we have been very worried about her as she is still sedated.  We are hoping they can bring her around later this eve.  She had to go back into surgery on tuesday eve and has fluid on her lungs so they have been doing quite a few tests to make sure she is all ok.  Such a worry as she is in South africa and cant even visit at the mo :(

     

    Ladies, hows everyone else doing?  

     

    xx

  • Davia,  How are you getting on?  Have you started the cape yet?  I hope you have had the nerve blocker in your arm and are in less pain.  Sending lots of love and hugs xx

  • Hi Ladies,

    Last day of isolation today whoop, Whoop.

    Mich, your Mum's in good hands. I know it's worse not being there with her and with her being so far away. Is your family from South Africa or did they move there ? It's on my wish list not my bucket list as I don't want to temp fate. How are you doing? At least once you're back at work, you'll have less time to think and can get back to normality.

    Karyn, how did your appointment go? How are you coping with your anxiety? I'm sure you will feel better once all you surgery is done. It's the fear of the unknown together with the endless waiting. Have you got a good support network of friends? 

    Sending love to all

    Xxx

  • Hey Sue,

     

    Yay, party!  Err or maybe not lol!  Ah thank you, yeah its hard not being there.  My younger sister is there so visits every day, poor thing is finding it hard.  As my mum is in icu they are doing loads of tests to rule everything out before they wake her up.  so we should know more later this eve.  Feels weird know the shoe is on the other foot, and how much they must of worried about me through my treatment but remaining strong.  My family is english we moved out there in 1981 and my mum has lived there ever since.  If it wasn't for covid i could of taken time out after treatment and spent time with them.  Oh well sure things will get better next year some time eh.

     

    Yeah actually looking forward to doing a bit of work, dont know how useful i'll be in the beginning lol!  I have downloaded the moving forward course, haven't started yet, must start it soon.

     

    xx