Just been diagnosed, BC - triple negative

Hi there,

I joined the group a couple of weeks ago after my scan and biopsy and found it useful and supportive reading what everyone is going through and their advice whilst we all face the C word!

I've now received my diagnosis and plucked up the courage to say 'HI!' :)  I'm still reading up on all the booklets i've received. A strange feeling really counting the days down to your appointment like a holiday without the excited feeling and now coming home with loads of booklets and not holiday brochures.  i feel strange that i have a sense of relief but a strange relief as I do have cancer and not the all clear.  Does anyone else have these mixed feelings?

I've been diagnosed with stage 2, grade 3 and triple negative.  Well from my understanding, i'm waiting for the confirmations to all come in the post.  I remember them saying 18 weeks chemo, 5cm tumour, lymph nodes, masectomy, radiotherapy....

I still feel very detached and like they are talking about someone else as i dont feel ill.  I was hoping to be pregnant :( so feel very sad tonight that is unlikely to happen now with my diagnosis and that i'm 42.

So mixed feelings all around tonight. 

Mich x

 

 

  • Hi Ladies,

     

    Davia, I hope you are feeling OK on Cape. I did message you on 29th August but I'm not sure if you read my post.

     

    Well Ladies, I arrived back from Portugal yesterday after an 11 night break. I can honestly say that I felt a lot safer over there than back in Blighty. The wearing of face masks is compulsory and you will be fined for not complying. At the buffet, you had to wear plastic gloves and a mask to get your food. In fact, you rarely saw anyone ever without a face mask even though you didn't have to wear one outside. There were only 25 passengers on the flight home and the airport was empty. Portugal has a lot less cases of the virus that us and their cases are mainly in Lisbon which is no where near The Algarve. Stanstead Airport is a different kettle of fish! So many people didn't wear masks and no one bothered to enforce it. They even got served in the airport shops and restaurants.

     

    Karyn, how is your anxiety? You have had a really rough ride and hopefully you will get a date for surgery soon. I think that hospitals are using Covid to justify their policy for phone consultations. Personally, I would rather take my chances and have a face to face meeting everytime.

     

    Mich, I hope your job is safe, after the year from hell youv'e had more worry is the last thing you need. I'm glad you are over the worst with aches and pains and you live in a lovely part of the country to enjoy beautiful walks.

     

    Linda, it was lovely to hear from you. You have the right idea, get on with enjoying life.

     

    Claire, you must be settled in you home now. I hope you are now feeling strong and ready to enjoy life with your little one.

     

    Sending big sloppy but virus free kisses to you all xxx

     

  • Hi ladies

    Hope your all keeping well. Sorry I've not been in chat for a while, I've been having a crap time of it unfortunately. 

    I was due to have nerve block to my arm last week and then start Cape but I ended up in A&E with what turned out to be a bad infection in my breast, stayed in 4 days on iv antibiotics and send home last Friday with tablet antibiotics, took my last lot today so hoping they have done the trick. I am due to start Cape on Monday and I'm aprihensive about that but I know once I'm on it and dose is tweaked if need be I will feel better. I just hope it works in shrinking the cancer or just stop it spreading. I have lymphodema in my arm now as well, I've been in a right miserable place, it's hard to come to terms with stage 4 without having the added pain of arm.

    Hence why I haven't wanted to post, you ladies need positivity not my negativity. 

    Before BC I was such a positive person, never was one to mope, but this is sapping me of everything.

    My head is not in a good place as hard as I try to put it there, I can't believe how quickly things change. 

    I want you ladies to be positive, this group was great at building positivity and I don't want to come in and change that. 

    You've all been so lovely and caring, thank you for that, but I think it's best I don't dampen anyone's spirits. 

    I wish you all the very best, keep well love to you all  

  • Davia, I obviously can't speak for anyone else but suspect everyone will feel the same. Please don't stop posting here. We're all in this together, to support each other. It doesn't have to be all roses and positivity all the time, we're here for you.

     

    sending so much love x

  • Hi Davia, I echo what Claire has said. We are here for you and are sorry to hear you have been so ill. I know at times when u feel down u don't always want to post. I know I've done that, but ease don't think you'll get us down. It's really tough what you are going through and I think of you often.

     

    Big hugs xxx

  • Hi Davia,

     

    Yep, exactly what Claire and Mich have said. We are all so sorry to hear you are struggling and we all want to support you. The low times are when you need support most, so please feel free to vent your feelings. We all understand more than most so please post whenever you want to good or bad.

     

    We are all here for you.

     

    Sending love and strength to you,

    Sue xxx

  • Sue, Portugal sounds wonderful. We were due to go there in May but of course had to cancel.

     

    I'm good thanks. My son is catching every bug going at nursery which is standard but means I'm not getting much done at home. I'm still so tired all the time! Had another biopsy recently but it's just scar tissue. Having all my scans again November.

     

    x

  • Thanks Mich, I'm doing well. I start back at work next week, not really looking forward to it. Hope your call goes well. I know exactly what you mean about time dragging and also going really fast! Well done on the running!

     

    xx

  • Lovely to hear from you Linda. My hair is crazy curly :) Good for you for taking some time off, I did the same. I start back next week phases return, I'll have been off 13 months by then xx

  • Hi Karyn did you enjoy the IoW? One of my favourite places :) So irritating having trouble getting appointments and really crazy that they're not automatically face to face!

     

    xx

  • Hello you lovely ladies, 

    I really felt emotional reading your replies, your such a great bunch. 

    I will come in and post, and I do keep up with all your news. 

    I'm sure once I start Cape and its tweaked to my level I will feel better. 

    I pray you all keep well 

     

    Sending big hugs ️ ️ ️ ️