My younger sister who is now 34 got this in nov think hers was stage 2 I no was grade 3 and triple negative she had a mastectomy and chemo and finished radiotherapy last month or konty before she is now in remission and be checked on again in think she did 5 years cos could come back fingers crossed she also had her lymph nodes removed 

Thanks Sue. Yes, back in the UK permanently and loving it! How are you? X

Hi ladies, 

Thank you, had a nice break and good to switch off for a while and explore the countryside. I was up at the crack of dawn today as on our way to the Isle of Wight for Janets funeral. Going to be tough and a long day but will be lovely to catch up with family. 

Sorry to hear about your sister in laws passing. I'll be thinking of you on Friday. How you doing? Are you quite busy with arrangements. 

Karyn, so glad to hear that finally one of your opps it out of the way. Aww doesn't sound like you oncologist has much of a personality or empathy. Sorry to hear that. Can you speak to anyone else? I have my telephone review next month. I have only spoke to my oncologist once, as she is so busy so her associates often deal with us.

I have a new chicken fillet so do feel better now, at least it fits in my bra! Just need to get some more now that are comfy. 

How you doing Claire? Bet you can't wait to get back to your own place. I think of you in the morning when I'm going down the stairs like a duck as knees and hips are adjusting to walking and every joint is going click click click and no toddler on my hip! 

BTW ladies, how are u managing with your hair? Mine has grown quite a bit now but all different lengths as it grew patchy so I have curls and bits sticking out everywhere, was driving me mad. Borrowed my friends clippers last night and put in the largest attachment and went for it! Err oops OK shorter than I expected, probably shaved off 2 months of growth! But at least its all one length and actually looks thick. As 2 months ago it was still patchy. I'm hoping by shaving off most of the grey more colour will come through now

Hope u all well, hugs xxx 

Hi LM84

Your sisters diagnosis sounds similar to mine. I had my mastectomy in April with all nodes out and finished radiotherapy the end of June. I have an appointment with consultant next May to talk about reconstruction and then yearly mammogram in the summer. I've already had the mammogram for my right breast as I was diagnosed last August. So your sister should still have yearly checks. 

How is she doing, is she recovering well? 

Xx

Thanks she is doing well she just constantly tired think it was june she finished her radiotherapy she has other illnesses aswell I'm so proud of her she younger than me by 2 years 

Hi Ladies,

Karen, the soreness will ease in time, you have had a painful op and will take time to heal. Your Breast Oncologist is in the wrong profession and needs to work on his/her bedside manor. Try and push for your breast surgery, it should be a priority as you are still at risk.

Claire, I'm glad you are back in good old blighty. Hows your little one settling?

Mich, 

I'm glad you had a nice holiday, a break is always good. The funeral you are attending will be tough but it is also closure. I am not helping with my sister in law's funeral arrangements as she was one of 6 and her family are over from Ireland to help my brother with the plans. Due to Covid, the numbers who can attend are limited. She has a huge family and tons of friends who will be watching via video link. My hair has grown quite a bit but it's thick rather than long. I hate having short hair but am glad to still be here. I wouldn't have the guts to shave it off so well done you. I have the same aches and pains and feel like an old woman. I have started to excercise again but I don't have much energy.

Enjoy the sunshine Ladies and stay safe and well.

love and hugs to you all,

Sue

Hi Sue,

Thank you, it all went well yesterday.  We left home at 0630 and got back at 9pm. Was so glad my husband was driving.  It was worth it and like you said it was closure for me, espcially as she was supportive and didn't let on how tough things were for her.  It is only her and her brother, they lost their parents in their 20's so my cousin did a lot of arrangements as she was like a sister to her. It was a beautiful service and send off.  The numbers were resticted to 30 so probably quite similar throughout the country.  Will be thinking of you on Friday.

Ive weirdly got used to having short hair, which is odd as i always had long hair.  I think its the heat, lovin the wash and go!  Have to see what I do when my hair gets to the awkward curly / messy stage again, hmm.

I dont have any energy either, the heat is zapping all of mine.  I still get very hot all the time, i guess that should ease off when the winter comes.  My ankles are swollen big time from being on my feet yesterday in the heat.  I'll have to put them up for the rest of the day....;)

Hugs all around

xx

Hi Mich,

Thank you for thinking of me on Friday. As you said, only 30 people could attend and it was a really hard day. I cried all throughout the service, I think it was all just too much. Nothing has gone gone right for me since I got diagnosed last year and I'm just waiting for my luck to change. Having said that, it makes you humble and glad to still be here so I really shouldn't complain. How are your aches and pains? I am finding I feel better now that I have started to exercise again, more stamina and healthier.

Karyn, Any news on a date for your op? Keep making a pest of yourself until they pull their finger out. How are you feeling in yourself? I know what anxiety feels like, I was dosed up on Diazepam on Friday otherwise I wouldn't have survived the day. I have an appointment with my Surgeon Friday next week but I've been told that they are doing all consultations by phone. I would feel happier face to face so I can be checked for lumps and I would like to show off my uneven boobs. Not a pretty sight !!

Claire, Are you settled in your house yet? How are you feeling now after your recent health scare? I was so please that it wasn't anything sinister. I keep thinking I find lumps all the time which is why I hope my appointment next week is in person.

Keep well Ladies and try to stay dry. It's torrential rain here and my kitchen lean to is leaking. Happy days !!!

Love to you all

Sue xxx

Hi Sue

Was thinking of you last Friday at your sister in laws funeral and can imagine how horrific the pain must have been for you.

Dont worry about the diazepam, I would have been exactly the same myself in your case.

I'm glad your trying to improve on fitness as I know that all helps with mental health etc as does nutrition and making sure you are eating properly.

No word on my breast surgery yet but hoping to hear something by September about a review and if not I will follow up.

It's a shame your follow up is by phone next week as you would really prefer face to face I know for peace of mind but just make any notes before the call of things you want to ask and you will feel better doing that.

If any consolation my boobs since lumpectomy are uneven and it's very frustrating because the left one points to the side and often gets caught under my arm.

I'm no use today I had a call from admin at the hospital where the ovarian surgery was done and they have booked me a telephone appointment for the gynae consultant to call me as they said they would before I was discharged to discuss results.

I'm crying my eyes out unable to function and fearing bad things.

I don't think I can take anymore and feel so bad for saying this when there are people out there far worse than me!

Would I be told bad news over ths phone? I ask myself.

I'm just a mess now and so much to do as well.

Phone call booked 10 45am tomorrow. 

Mich I hope your ok and managing your walks still.

Claire have you moved yet?

Anyone else I have forgotten I hope all ok with you all.

Big hugs xxxx

Karyn xxxx