Hi Ladies,

Ah that is strange about the beam, but makes sense.  Yup i have that patch on my shoulder too, luckily it just looks like i have a dodgy tan and not pink like my chest.  I was worried they missed my neck so called and left message for the radiologist.  Well she did say if i have any concerns to call her lol!

Sue are you still doing your walking?  I want to start the couch to 5k, the nhs website has a podcast. it will help keep me motivated. 

Davia, good to hear from you.  Ah thats lovely you saw your sons and brother, its so hard not having that human contact and seeing family.  Hugs do the world of good ;)

Ok, hope you hear back soon about the treatment.  Let us know how you get on with the tests.  I'm glad to hear you have connected with other ladies on the FB group and supporting each other ;)

Big hugs

xx

Hi Mich,

I am trying to walk but I'm very slow at the moment. I breezed through rads with no side effects but now I'm exhausted the whole time and have no energy. Walking always used to make me feel better but at the moment it's a chore.

How do you feel now you've finished treatment? I still can't get my head around the lack of aftercare.

Love and hugs,

Sue xxx

Thank you Sue & Mich x

My bloods came back negative for immuno/ chemo so looks like I will be on the plasma trial, I see my oncologist in the morning.

I must say, she is amazing, sent message to nurse at 10:45 last night, to ring me this morning to inform me and ask me to go in and see her. NHS is amazing, I think us ladies see that x

Take getting fit easy, your body needs rest to recover from the war its been through. I never thought radiation treatment had a after effects, but your healing from inside out. 

Love and hugs xxxx

Hi Davia,

I'm so glad to hear your oncologist is on the ball and looking after you well.  How did your appointment go? Will you be treated at the same hospital?

Yeah taking it easy and being kind to my body.  Although today I had an eccles cake lol! I've only been out walking once this week need to get out again for shorter walks.  I tend to get a bit carried away and then wonder why my joints dont want to work the next day. 

Have you been out again Sue?  We've had loads of rain out our way.

Does feel strange now its a week after my last treatment.  I have a call next week from radiologist to see how I'm getting on.  I see in my letter i'll be getting a call from oncologist in 6 weeks from when i started radiotherapy.  

Did you all get a follow up call?  Is that when they finally sign you off.  I still want to ask about taking vitamins etc.  My knees feel a tad dodgy and hips too which i guess is natural.  Still in menopause, boo.

I had a catch up with my boss today about when to return to work, feels strange to be talking about work and whats going on then.  I have loads of annual leave to take, which I'll loose if i dont take it.  All this time off and cant go anywhere.

Ladies, are any of you back to work?  How are you coping?

Big hugs

xx

Hi Mich 

App. Went well, going on plasma trial, 2.gemo drugs in tablet form apparently. Good news is I won't loose my hair on it :happy: I will go to Maidstone for my future treatments, I was somewhere else before, but my oncholigist works at both. 

I had the 2 week call from radiologist, the radiation effects last 3-4 weeks after treatment she said they peak at 2 weeks after. I was OK, tired, had the cough she said you sometimes get, bit like asthma but mild, 

Bones ache from chemo to, but walking is good, keep em supple and strong. 

Oh yes I had app with oncologist 6 weeks after, I think you will need to be monitored 6 monthly then once a year, that's what I was originally told, 

Keep well ladies, love and hugs xxxxxxx

Ladies I'm so sorry I've been silent for a while. I'm so flipping exhausted with running round after a VERY active 18 mo th old all day that by the time he settles I collapse in the sofa for a couple of hours then go to bed. His sleep is still terrible so I only get about 4 hours a night.

Davia, you sound great. 
 

Love to all of you ladies, I will try and catch up a bit this weekend.

x

Hi Davia

I'm glad to hear that :) No hair loss whoop whoop silver lining!  So no intravenous for you, only the tablets?  Be good if you do have to go to hospital very often. 

Yeah i remember you had that bad cough that hang around for a while.  I dont have a cough just achy body and joints.  My wrists ached tonight just pouring a full kettle!

Thanks I'll give the breast care nurse a call tomorrow to find out more.

I meant to ask earlier you mentioned about the pattern for the drain bag.  I want to see if I can make these as i didn't get one from our hospital.  No idea if they will allow with covid but want to see if i can give something back, as will help as part of my recovery.  If you do have it can you email it to me, no rush though. 

Thank you :)

Hey Claire,

Ah bless you.  If only we could tap into some of their energy!  Hope you are ok otherwise and taking it easy, well as much as you can. 

Hugs

xx

Hi Davia,

So glad that your new treatment regime is starting soon and the tablets may be a little kinder than intravenous chemo? i do hope so. You are so brave and positive. Good news about not losing your hair too - mine is growing back like an afro....a grey afro at that...

Sending you much love and prayers :-) xxxxx

Hiya Mich,

How are you now the rads are done? I've been very lucky - chest wall got very red and angry looking but it didnt hurt at all, was just very itchy for a few days...has settled now...

My left shoulder has gone very stiff (the full axillary clearance side) so i rang my breast care nurse and they've done a physio referral for me...i think that's possibly a side effect of the rads but not sure...they saw me last week and had a feel of everything before physio starts...

Anyhow...the breast care nurses at my hospital are fantastic...i told my friend about them and she said they're.... 'simply the breast'...it really made me laugh so i thought i'd share with you all...

All you fellow warriors, I hope that you're all well and staying safe xxxx

Hugs to all xxx