Hi Mich,

So glad you've nearly finished rads, it's all good from now.

Davia, we are all thinking of you, please let us know how you get on. I have everything crossed as i know we all have.

Karyn, have you had any results yet? You are also in my thoughts constantly.

Love to everyone, enjoy the sunshine

XxxxX

Hi Sue,

As I think I mentioned before both my mammogram and MRI were clear, however my appointment with the plastic surgeon last week didn't happen and they did a telephone appointment instead during which they said August surgery wouldn't be happening because of the Coronavirus pandemic all surgery has taken a backseat.

They are having to deal with a huge workload and it has meant that I will have a 6 month minimum wait for the double masectomy and reconstruction but they cant exactly tell me when.

I will be reviewed again in 3 months.

As regards the ovarian surgery again no definite date but provisionally it may be August I was told but they never got back to confirm anything as it's all changing on a daily basis I was told.

My gp just said I should focus on the fact that I'm clear for now and move on but she doesn't seem to understand the daily fear that's always in my mind especially so with having the Brca gene.

If only it were that easy Sue!

I'm just focusing my mind on one day soon feeling my old self again and trying to slowly enjoy life again before all of this.

I hope you have been keeping well Sue and enjoying the sunshine, we are in for a hot few days I think.

Davia been thinking of you today and hope everything went ok at your appointment.

We are all here for you xxxx

Mich I'm so glad your radiotherapy us is almost done.

Is it just your reconstruction left now? next year?

Linda, Carla, Claire hope you are all ok xxxx

Big hugs to all

Karyn xxxx

Hi   Karyn,

So sorry, I was aware that your mamogram and MRI were clear, I knew you were waiting for something which I now realize is surgery. The anguish you are going through can only be understood by people in your position so my heart goes out to you. I hope you don't have to wait too long for surgery as the fear must be excruciating. I don't see why you aren't considered a priority.

As your GP said, try and focus on the fact that you're all clear now and hopefully always will be.

Love and hugs,

Xxx

Hell-o :devil:

I'm here because of my wife. She was diagnosed with Stage 3 Triple Negative BC last September 2018. 

She had chemotherapy first then a double mastectomy and radiation afterwards. Unfortunately, some cancer stayed and she is currently on a trial drug called Lynparza. The cancer has broken out of her skin, she is in constant pain. Two weeks ago, her doc stopped Lynparza as the scan shows it is not working after 4 months and it's spreading to her lungs.

From 21 April this year, my wife is not on any treatment for her cancer, only pain medication to treat the symptoms and prolong her life. 

Hi Ladies,

Hows things? How was everyones weekend?  I'm finally finished my rads, yay!  I'm relieved but like you have all said it does feel weird that i have no appointments lined up for this week. Something I'll have to get my head around.  I have burnt, nice big pink square.  It hasn't started peeling, hope it doesnt so still slapping on loads of cream.  Weird its only my chest thats pink and not my neck and they were doing the lymph nodes above my collar bone too. They also told me about the side effects peaking in about 10 days so to take it easy. So more pottering in the garden and going for walks.

I got a letter from the govnerment about sheilding changing in July and then being lifted in August. Did you ladies receive it too?

Davia, you are constantly in my thoughts and prayers.  Have you been for more tests this week?  I had an email from cancer research about the immunotherapy trial which is now confirmed for treatment, so have my fingers crossed.  We are still here for you and send big hugs :)

Hope we can still meet up once lockdown is lifted, cant remember how vunerable we are meant to be for?!

Big hugs to you all.

xxx

Hi there,

I'm sorry to hear about your wife' and that the trial didn't work.  Its not easy and makes us realise how precious our lives are and live in the moment.  It hit home for me and I would imagine the other ladies too as we have all just gone through treatment for triple negative.

My thoughts are with you at this difficult time.

Hugs

Hi Mich,

I had been thinking this thread has been quite for a while. Im glad you've finished your rads, I was lucky not to have suffered any effects.

I also got the letter about shielding, I'm worried about there being another spike in the virus but I suppose it's a waiting game. We will definitely all meet up as we all understand what each other have been through.

Davia, you are in all our thoughts. How are you getting on? You've beat this once and you'll do it again, you are so much stronger than you realize.

Karyn, have you got any dates for you op yet? 

Love to everyone

Xxx

Hi Aussiemate,

Sorry, I missed your post, I only saw it after Mich replied. I'm so sorry your wife is in so much pain, it must be hard for you to see and feel so helpless. It is a hard journey and we all know what you're both going through.

Sending love and strength to you both.

Xx

Hi Sue

Thank you xx 

I will give it all I have, not looking forward to more chemo, but at least I know what to expect, 

I haven't had a letter yet, but to be honest, on Monday I hugged my sons for the first time since end Feb, and my Brother, it felt so good. I have really missed them all so much, what with being carful through chemo last year then Covid,

Keep well Sue, stay safe, love and hugs xxx