Just been diagnosed, BC - triple negative

Hi there,

I joined the group a couple of weeks ago after my scan and biopsy and found it useful and supportive reading what everyone is going through and their advice whilst we all face the C word!

I've now received my diagnosis and plucked up the courage to say 'HI!' :)  I'm still reading up on all the booklets i've received. A strange feeling really counting the days down to your appointment like a holiday without the excited feeling and now coming home with loads of booklets and not holiday brochures.  i feel strange that i have a sense of relief but a strange relief as I do have cancer and not the all clear.  Does anyone else have these mixed feelings?

I've been diagnosed with stage 2, grade 3 and triple negative.  Well from my understanding, i'm waiting for the confirmations to all come in the post.  I remember them saying 18 weeks chemo, 5cm tumour, lymph nodes, masectomy, radiotherapy....

I still feel very detached and like they are talking about someone else as i dont feel ill.  I was hoping to be pregnant :( so feel very sad tonight that is unlikely to happen now with my diagnosis and that i'm 42.

So mixed feelings all around tonight. 

Mich x

 

 

  • Hi Karyn

    Thank you for lovely post. I'm pleased your appointment is going ahead hopefully you get a date for the operation, or have they already given you the date? Sorry my head is mashed lol but your on the path, once you have had this operation done and you have recovered keep pestering for the oompectomy,

    The sun is shining today, so I'm in the garden, just pottering around dead heading some roses, my hubby dead head the climbing roses yesterday, there were loads bless him.

    Have a good day Karyn, stay safe love and hugs xxx

  • Hi Davia 

    No date as yet but they have been saying August at the earliest for a while now but Covid has put back everything and so at present no date has been confirmed and it's another waiting game.

    I'm just trying to distract myself from it all and keep myself busy as usual.

    I'm going to spend some time out in the garden like you enjoying the sunshine once I have finished all my chores.

     

    Take care Davia

    Big hugs xxxx

    Karyn  

  • Hiya Sue,

    I've never been to Leigh On Sea....but Cake, Cockle Sheds and the Seaside sounds blooming brilliant - and of course we can all see each other too...it will a nice drive down from the midlands and i may drop my daughter and her boyfriend off at southend first (that's close isnt it?) they can get fish and chips and walk along the pier.

    Mich hope your rads are going ok - i had my last one today and so far side effects are minimal, bit hot, bit itchy..but that's all

    Davia, your garden sounds lovely - roses are so beautiful...gardening is good, keeps you busy and something nice to see at the end...keep staying positive, you're a warrior.

    Claire, Karyn, Linda, Kebb, Jan and Sacha - love to all, stay safe and stay strong xxxx

    Carla xx

  • Hi Carla,

    Southend is about 5 miles away from Leigh so yes pretty close. I'm a bit embarrassed for Davia to see my garden as i  know she's a keen gardener and I'm more of a just do what needs doing type of gardener lol. It will be so fantastic to meet up with you all as I feel I know you all already.

    I hope everyone is coping well, I'm glad Carla coped well with rads, I hope you're managing too Mich. Davia you are always in my thoughts, I know you'll beat this it's just one more set back but you've done it before and you're do it again.

    Karyn, fingers crossed your surgery doesn't get delayed. It's the waiting that's worst thing as your mind goes into overdrive but hopefully it will go ahead soon.

    Linda, you must be finished radio by now? I hope you didn't suffer too much, I was really lucky with no side effects at all.

    Claire, how are you getting on? Hopefully you're enjoying life and putting all this behind you. Easier said than done I know.

    I'm sorry if I've missed anyone,

    Love to you all,

    Sue XX

  • Hi ladies,

    Well done in finishing rads today Carla :)  I've got 7 more to go! Today was a lot easier no waiting time, so hope it lasts for the week.  Thanks for the info on moisturising, my skin looked better this weekend after the break just a little pink, fingers crossed i dont burn. 

    How was everyones weekend?  I faffed in the garden a bit and feeling it today, my knees ache .  Something i'll have to get used to for a few months.

    Davia, will be thinking of you tomorrow and sending big hugs.  Karyn lovely message :)

    Hope you all doing ok ladies.

    xxx

  • Hi Ladies, 

    Carla, rads all done, great news, keep plastering on the moisturiser. 

    Sue thank you for thinking of me x my garden looks after itself now, I just dead head and water and trim plants down that have finished lol I will look forward to seeing you and your garden xx

    Mitch, glad rads are going well, fingers crossed you don't burn, think you will be fine, I did feel tired after rads, about a week after I had finished so don't push yourself to much, xx thanks for thoughts xxx

    Karyn, I'm doing the same, distract the mind away from negative thoughts, works most of the time lol but my mantra is, what will be will be, no amount of worry is going to change it, think Mitch put that one out there, :happy:

    Keep well ladies, love and hugs to you all  xxxxxx

  • Hi Sue,

    Hope you're well and been enjoying the sunshine!

    Unfortunately my appointment today was cancelled and I got a phone call this morning telling me that because of Coronavirus it wouldn't go ahead, and I would be getting a telephone call instead from the plastic surgery department to discuss.

    Anyway I had the call this afternoon from the plastic surgery department and was told it's very unlikely that my breast surgery will take place before the next 6 months and that they will review me again in 3 months!

    I felt really deflated afterwards and turned to chocolate to console myself.

    As you know with the waiting Sue it just eats away at you and the thought of being in this situation next year with it all still hanging over me makes me feel very low.

     

    It's all out of my hands now and I just have to hope I dont get put back any future.

    Cancer patients really are being left to sit and suffer because of Covid and I was told if theres a second wave to expect an even longer delay while they clear the backlog of patients.

     

    Davia I hope you got on ok on Tuesday, when is your next appointment? keep your chin up and stay strong ok,

    Mich glad the rads are going well, hows your skin been?

    Linda, Claire, Carla hope you're all good and have some nice plans for the weekend, let's hope it's a sunny one.

     

    Take care ladies & stay safe 

     

    Karyn xxxx

     

  • Oh Karyn

    That's just so dissapointing, I get so annoyed when all these things are delayed because of Covid, and people out there acting like nothings wrong and it's all back to normal, makes my blood boil. It is as you say, soul destroying, I'm so sorry your having to wait.

    My scan went OK, was a bit of a hitch, as its been less than 3 months since my rads they nearly didn't do the scan, but aventually got clearance to go ahead, I was there 3 hours, but all done. I have an app on Monday with oncologist, I know I'm going to have chemo again as she already said this, but I'm dreading what the scan may have found, I am not thinking of it, it's not Monday yet, I am quite calm weirdly. 

    Oh the only posative I can take from your news is that if they thought you were in any danger they would have you in ASAP. But I'm gutted for you as know how it must make you feel xx

    Try have a good weekend, eat chocolate and anything else your heart desires, why not x 

    Sending love and hugs xxxxx

     

  • Hi Davia

    Thanks for the lovely post and I'm glad you got the scan out of the way, you're right just put it out of your mind for now and Monday will soon be here and you can discuss any concerns with the oncologist.

    I so wish you weren't having to go through chemo again but you will get through it and I hope that treatment gets under way as soon as possible for you.

     

    Distract yourself as much as you can between now and Monday Davia with everything you enjoy.

    I hope hubby is allowed to come with you on Monday for the support and will be thinking of you xxxx

     

    I cant do anything about the wait my end other than just pray that things get back to normality sooner rather than later to speed everything up.

     

    Sending big hugs xxxx

    Karyn xxxx

     

     

  • Hi ladies, 

     

    How's everyone doing? Good weekend? It sure was warm here, I know shouldn't complain. 

     

    Davia I see you get your results today. We all thinking about you and sending big hugs  

     

    I have 3 more rads left, last week was better hardly any delays. My skin is very pink like I've been burnt by a square iron! Moisturising loads, so I look like a greasy chip.

    . Hugs all around xx