Just been diagnosed, BC - triple negative

Hi there,

I joined the group a couple of weeks ago after my scan and biopsy and found it useful and supportive reading what everyone is going through and their advice whilst we all face the C word!

I've now received my diagnosis and plucked up the courage to say 'HI!' :)  I'm still reading up on all the booklets i've received. A strange feeling really counting the days down to your appointment like a holiday without the excited feeling and now coming home with loads of booklets and not holiday brochures.  i feel strange that i have a sense of relief but a strange relief as I do have cancer and not the all clear.  Does anyone else have these mixed feelings?

I've been diagnosed with stage 2, grade 3 and triple negative.  Well from my understanding, i'm waiting for the confirmations to all come in the post.  I remember them saying 18 weeks chemo, 5cm tumour, lymph nodes, masectomy, radiotherapy....

I still feel very detached and like they are talking about someone else as i dont feel ill.  I was hoping to be pregnant :( so feel very sad tonight that is unlikely to happen now with my diagnosis and that i'm 42.

So mixed feelings all around tonight. 

Mich x

 

 

  • That's great news Karyn, I had a lovely family meal washed down with prosecco.

    Linda xx

  • Karyn, 

    Always post good news, it's what we want to hear, I was thinking of you today so really please your scans were clear x like others have said, your clear today, enjoy life don't dwell on the statistics xxx

    Linda thank you, I will fight it again, like you all know, it takes time to get your head round it,  but que sera, sera as the song says xx 

    Sending big hugs to you all xxxxx

  • Hi Sue

    Thank you so much, it came as a huge relief after all of the waiting over the last few weeks which as you know feels like forever!

    I know I have to try and change my mindset somehow and focus on the now and not on the what ifs but it's never easy but I pray that once the preventative surgery is all done that it will not always be st the forefront of my mind.

    We all have to try and focus on the positives and sharing my news with you all ladies will  I hope give you all hope for the future as hearing positive stories gives us strength to fight this battle.

    Take care Sue

    Big hugs

    Karyn  xxxx

  • Wonderful news Linda, you deserve it.

    I bet your family are very proud of you.

    All the best 

    Karyn  xx

     

  • You're so right Davia and hopefully through time I will be able to do that and start enjoying all the things I used to enjoy before cancer.

    Day by day taking little steps to move forward.

    Getting the surgeries will be a major step in all of this.

    Take care Davia 

    Stay strong 

    Karyn  xx

  • Karyn, 

    what a relief that the mammo and scans were clear, that's fantastic and another worry dealt with. I am completely the same as you with regard to the BRCA1 concerns...but all I can say is that I did feel much better after the double mastectomy was done so hopefully you will feel that way too.

    i don't know why Oncologists get into stats, it's almost like they want to give you the good news and then put a dampener on it. At the end of the day we're all different and don't always fit into 'tick' boxes...every day I try to do something that's a bit daft and have a laugh, a good distraction

    I wish we all lived closer together as we could actually meet up, it would be so good to put names to faces and have real hugs instead of virtual ones...you have all been such a great support to me and to each other...

    Davia, I hope your treatment will be starting very soon, get it done and move forward, you are so strong xx

    Claire, Mich, Linda, Suebea, kebb, jan and Sacha, hope you're all keeping well

    take care everyone, sending much love xxx

     

  • Davia, I think my earlier message to you may have gotten lost in all the others. I just want you to know I'm gutted for you. I know you can beat it again, you've done it before, I just wish you didn't have to xx

     

    Karyn, great news.

     

    Saftmom, it would be lovely to meet. I think some of us are in Kent, perhaps when lockdown eases we could get together?  
     

    Love to everyone else. I will catch up properly soon!

     

    Claire xx

  • Thanks Carla,

    It was a huge relief because since finding out about the Brca it felt like a real kick in the teeth and the overwhelming fear hasn't gone away.

    I couldn't cope with having to go through yearly MRI and mammogram every year and will feel this way until the surgeries are all done but right now they're just not happening so it's a case of feeling like a ticking timebomb.

    Lots of ladies have told me its these feelings lessen after the surgery

    I'm just taking comfort in the fact that for the moment all is ok and to focus on that.

    I'm hoping my plastic surgery appointment will still be going ahead next Thursday as I haven't heard anything  yet to say it's been cancelled.

    I'm constantly distracted with so many things as that's how I cope but it's always there if you know what I mean!

    Davia hope you are ok and will be thinking of you when you have your mammogram and ultrasound in Friday. I hope treatment starts for you asap. Be strong xxxx

    Sue, Mich, Linda, Claire hope your all ok ladies xxxx

    Take care 

    Karyn xxxxx

  • Hi Ladies,

    Hows everyone's week going?

    Glad to hear your results are clear Karyn, a relief for you.  Sorry to hear about the usual waiting game, hopefully things will improve in the hospitals in the next few months.

    Davia, how are you doing?  Are you due scans tomorrow?  We'll be thinking of you :)

    Linda, how does it feel rads are all done.  Bet it was weird you couldn't celebrate properly but glad your family were with you.  THink we'll all due big celebrations once lockdown is over!

    I got a call yesterday to go for my yearly mammogram today.  Quite odd feeling that almost a year ago i was diagnosed.  it was in Aug so they were quite early!  Very organised at my local hospital and  in & out in 5 mins.  They will post the results to me in 4 to 5 weeks.

    Carla, how are your rads going?  Is your skin ok?  Mine are a big of a drag as the hospital only have 2 machines running that are over worked and breakdown,  So i have quite a bit of waiting around, last night was 2 hour wait!  Tonight luckily i was in and out in an hour. My appointments all seem to be evening now, so i make sure i eat before i go, dinner at 9pm isn't great.  Otherwise its ok, they struggle to line me up at times but then they do its quick and i'm managing with the breath hold.

    Last night i also got chatting to two ladies who were diagnosed with BC recently and having rads after their opp. They were quite surprised i was diagnosed last aug and still going through treatment as one of the ladies was diagnosed this march.  They wanted to hear a bit about chemo and how tough it is and about my opp.  I kept it all quite light hearted but afterwards they did look at me as if i ran a marathon haha!  Made me realise, how brave we all are and how we keep on fighting through.  I dont feel brave as we just do what the doctors advised with treatment opps etc but after explaining to others I realise we are all true warriors!! I'm also grateful i carried on with the exercises as one lady had an opp in February and only did exercises for 2 weeks  and now struggles to get her arm up and is very painful and she has cording!  I know all this as my appointment is after hers.

    Sue, Clair, Jan, hope you ladies are doing ok.

    It would be lovely to meet up when lock down is over.  Maybe some social distancing picnic or something similar near Davia :)

    Big hugs ladies

    Waffle over lol!

    xxx

  • Hi mitch

    Glad rads are going well, not good only having 2 machines, hate hanging round the hospital, keep on with excersize, I think I have developed.cording and think fluid to, my arm aches so much and it feels tight under my arm, km going go speak to them go morrow about it, I did phone my BCN couple of weeks ago but she said, keep doing excersize! I think this Covid has a lot go answer for!! I have pet scan on Tuesday but that's in sidcup,  it of a trek but will be a change..

    I was diagnosed a year ago today, feels very surreal, like  in a bad dream and I'm going to wake up, I'm trying to live in the moment as much as I can

    I'm loving the sound of a get together, how fab would that be x

    Hope your all doing well, Stay safe love and hugs xxxxxxx