Hi Ladies, 

Glad rads are going well,. Mitch my first one was the same, took as long as the mapping app. But the rest should be quicker hopefully, you made me laugh about radiologist trying to cover other breast, I had same situation and the gown just kept slipping off, it made me smile as my other breast was bear so why worry,lol 

Sue, glad you have made the decision, it was the right one for you, x

Kebb, your post is spot on, after my last radiotherapy everyone was like, wow your finished great you can get on with your life now, I felt flat and scared not elated at all. The heavy feeling in your breast could be fluid maybe mention it to BCN. 

Karyn 

Gutted your surgery has been postponed again, you must feel so frustrated, its just not fair. Your results are on the 9th, I pray there all good.

I've been in a black place again, I found three pip like things on my breast at top so called BCN on Thursday last and my oncholigist got me in to see me Friday, she wanted biopsies so asked surgion if he could do them Monday, I had three biopsies and was going to have telephone consultation this Monday but got phone call from Secetery saying he wants me to go in!! Well I'm just telling myself it's back, my oncologist said they would treat with Chemo, I'm gutted, I'm trying to hold it together but it's hard. I'm convinced that's it, I'm fed up with false hope, build yourself up just to be knocked down, I am telling myself it is what it is. Some of you who are on TNBC Facebook site may have seen my post, under Christine, that's my real name, Davis is mixture of me and hubby name.

Linda and Saftmom I hope rads are going well, hoping you don't get any bad effects, a lot of ladies don't, they sail through it

 hope I haven't missed anyone out, if I have sorry, keep well ladies, love and hugs xxxxxx

Thanks Sue. 

I hope your hair improves as you go along. I have alopecia totalis so no hair to worry about!!! It’s no big deal as it happened 12 years ago now so I am completely used to it and very happy with the wigs I buy. In all honesty I truly forget I am bald most of the time!!  

Weirdly I don’t get pain in my breast just stiffness. The oncologist said pain and stiffness would happen but I thought I would check it out with someone who really knows!!! Many thanks. 

Take good care and stay safe.

Kebbs x x 

Hi Kebbs,

I feel really bad worrying about my hair when you have alopecia, I'm glad you've come to terms with it.

Re: the side effects, I still suffer with bad back and joint pain.

Sending love,

Sue xx

Sue DON’T feel bad about it!!!! Honestly I am happy in my baldness but I DO get how diminishing hair is awful and a worry. In all honesty I am very lucky not to have that on my plate now like most people do. It’s a blessing!!!

Big love to you 

Kebbs x x 

Hi Davia,

I'm so sorry you are going through this. You are a tough cookie and you will come through the other side although I know it doesn't feel like it at the moment. The Oncologist, Surgeon and chemo staff are experts in their field and you won't be the first case they've come across. I'm feel so gutted for you needing more chemo but it's the end result that makes it worth while.

Sending loads of love and virtual hugs your way 

Sue xxx

Davia,

Re: my last message to you, are you having more chemo or are you worried that you might have to?

Sorry if I misunderstood your post xxx

Kebbs,

I love your positive attitude

XXX

Hi Kebbs

I dont think we've spoken before but my radiotherapy finished 8 months ago and I still have that firm hardening feeling you describe and think its entirely normal.

I had 5 boosters with my radiotherapy which I think makes it more likely.

I mentioned it to my oncologist and it's perfectly fine,its called fibrosis and it's very common even a year or more after radiotherapy to the breast and armpit.

So just wanted to reassure you. x

Karyn 

Hi Karyn 

THANK YOU so much for bothering to contact me. So appreciated! 

Yes I was getting ‘concerned’ about it still feeling heavy etc. and hadn’t realised it could go on for a lengthy period. I notice it most when I get up in the mornings. 

Why did you have boosters? I didn’t. Just had 15 straight sessions. I was lucky though it hardly affected me at all. In fact the travelling was the hardest bit really!! 

Thank you again. So kind of you to write me!

Love 

Kebbs x x